Madam Speaker, it is a real pleasure to stand in the House today and support Bill C-210, with great thanks to my hon. colleague from Calgary Confederation. I had the immense pleasure of serving with him on the health committee for a number of years. I cannot think of a finer parliamentarian and a more collegial, publicly minded representative than he. I am so pleased to support legislation that I know he has fought so hard to make a reality in this place.
This legislation would amend the Canada Revenue Agency Act to authorize the Canada Revenue Agency to enter into an agreement with a province or a territory regarding the collection and disclosure of information required for establishing or maintaining an organ and tissue donor registry in the province or territory. In short, what the act would do is allow Canadians to indicate on their tax return that they wish to have their information shared with a provincial or territorial organ and tissue donation program to help facilitate and expedite the donation of organs and tissues in the country.
Canada's New Democrats believe that we must make every possible effort to ensure that every Canadian who needs an organ or tissue transplant receives it. Just one donor can save up to eight lives and benefit more than 75 people, yet, at 18 donors per million people, Canada's current donation rate puts us in the lower third of developed countries. Allowing Canadians to register as an organ and tissue donor through their tax returns will help increase registration rates, improve consent rates and help build a donation culture in Canada.
This legislation was first introduced in the 42nd Parliament as Bill C-316. Despite passing unanimously in the House of Commons, Bill C-316 was one of several bills that unfortunately were allowed to die on the Order Paper in the Senate before the last election. By the way, the Senate also blocked legislation to give mandatory sexual assault training to federally appointed judges, implement the United Nations Declaration on the Rights of Indigenous Peoples and ban unhealthy food and beverages marketing directed at children.
However, this was a life and death matter. Canadians are currently dying while on wait lists simply because our organ and tissue donation rate is so unacceptably low. At present, only 20% of Canadians have joined their province's organ and tissue registry. Provinces like Ontario are taking steps to make it easier by asking about organ and tissue donations on health card and driver licence renewals, which has increased registrations. However, even when everything is in place, some 20% of families refuse to transplant a registered donor's organs and tissue.
In our recent study on organ and tissue donation at the Standing Committee on Health last Parliament, we learned that of the 4,500 Canadians on the wait list, 260 died waiting for an organ in 2016 alone. In order to better meet this demand, improved coordination across provinces and territories is needed.
Bill C-210 would allow the federal government to coordinate with provinces and territories to allow Canadians to register as an organ and tissue donor through their federal tax filing.
The act would align with the long-standing advocacy and legislative work of New Democrat MPs around organ and tissue donations. The bill is essentially a version of the previous proposal to create a pan-Canadian organ donor registry to coordinate and promote organ and tissue donations throughout Canada.
In February 2016, Conservative MP for Edmonton Manning, whose son had been the recipient of three donated livers, reintroduced a private member's bill calling for a national registry. That bill had been previously introduced seven times by both the Liberals and two New Democrats, Lou Sekora, Judy Wasylycia-Leis and Malcolm Allen.
Unfortunately, the Liberal caucus voted to defeat the member for Edmonton Manning's bill. The Liberals defended their decision to kill the bill, without study, by claiming that it was a matter that was under provincial jurisdiction and it was for that reason the bill was unsupportable.
Leaving that question aside, I want to quote from a couple of important stakeholders. The Kidney Foundation of Canada says, “In an environment where the supply of donor organs is so low and demands are so high, missed opportunities for donation are literally a matter of life and death. Donor organs are rare and precious and every opportunity needs to be pursued to ensure that no potential donation is missed or lost because it also means lost lives of those waiting for transplant.”
Dr. Philip Halloran, professor of medicine at the University of Alberta, said, “Donations in Canada are not performing at the standard that our colleagues in the United States are performing and there isn’t really any excuse except organization and accountability.”
I was therefore quite disappointed to see jurisdiction thrown out by the Liberals as being a barrier to facilitating organ and tissue donation.
Here are a few facts.
While 90% of Canadians support organ and tissue donation, less than 20% have made plans to donate. Unlike the United States, Canada does not have a centralized list of people waiting for an organ or tissue transplant.
The efficiency of donor registration varies greatly from province to province to territory. In the case where someone dies outside of the province where they are registered for organ and tissue donation, it is highly unlikely the hospital would be able to identify them as a donor. Online registration is available only in five provinces: British Columbia, Ontario, Alberta, Manitoba and Quebec.
Even if someone is registered as a donor, the family has the final say. As I pointed out, about one in five registered organ and tissue donors had their wishes overridden by family members, according to a 2016 report in the Canadian Medical Association Journal.
For every patient in Canada who does receive an organ transplant, there are two more on the wait-list. In the past 10 years, the number of deceased organ donors has gone up by 42%, so there is progress, but the number of people needing a transplant has also gone up at the same time. Over 1,600 Canadians are added to the organ wait-lists yearly.
Canada is the only developed country without national organ donation legislation, such as the U.S.'s 1984 National Organ Transplant Act, so it is time that parliamentarians united and addressed this very pressing need. We cannot let jurisdiction, difficulty, party interests and technicalities get in the way of doing what we all know is necessary: We must make it much more efficient and simple for Canadians, who overwhelmingly want to donate organs and tissue, to do so to save their family members and other Canadians.
It is my view that the best system of all is an opt-out system, where everyone is considered to be an organ donor unless they specifically opt out. This respects the rights of everyone who does not, for various reasons, whether religious, philosophical, health or any other reason at all, want to be an organ and tissue donor. There are many countries around the globe that have such a system, and what we see in those countries is that their rates of organ and tissue donations and transplants dwarf Canada's rates. This saves lives.
I hope that all parliamentarians can work together, support the bill, expedite it through this place and ensure that the Senate passes it as soon as possible. Let us do everything we can in this country to facilitate organ and tissue donation and transplantation as soon as possible.