Mr. Speaker, today I am presenting petition e-2868, with 3,710 signatures. It is petitioning the Minister of Health regarding a rare disease, spinal muscular atrophy. Health Canada has just approved a gene therapy called Zolgensma that can be close to a cure if administered before the age of two, but it costs $2.8 million per dose. The petitioners are asking the federal government to work with the provinces to help families with the high cost of these treatments and with other rare diseases so that we can save these children.
In the House of Commons on January 26th, 2021. See this statement in context.