Mr. Speaker, I am happy to be here today with my colleagues to speak to Bill C-210, an act to amend the Canada Revenue Agency Act (organ and tissue donors), which was tabled by my colleague and friend from Calgary Confederation. It is important to note that this critical legislation was tabled in the House in the previous session, passing the House, but dying on the Order Paper in the Senate when Parliament dissolved for the last election. When the hon. member for Calgary Confederation tabled the bill, it was seconded by members from all parties and supported by numerous transplant organizations and doctors.
Currently, 4,600 Canadian are awaiting a life-saving organ transplant. Polls have shown that 90% of Canadians approve of organ and tissue donation, but the reality is about only 25% of Canadians have registered their consent with the province or territorial registry where they live. This creates numerous issues that I will address shortly, but Bill C-210 is simple. The legislation asks Canadians when filing their taxes if they consent to having the provincial or territorial government informed of their desire to be added to the organ and tissue donor registry in the province or territory.
One hurdle to this is that currently the Canada Revenue Agency forbids the use of the income tax form for any purpose other than tax administration. For this simple change to be implemented, asking a simple question regarding organ and tissue donation, a legal exemption needs to be created. This has been done before to allow Elections Canada to ask Canadians for updated contact information, so it is not out of context.
Making a simple line addition to the tax form would have little to no cost implications and it would not infringe on any provincial jurisdictional concerns or create any privacy concerns. The legislation would allow for the use of established protocols for information sharing between the federal government and provinces as they currently use an encrypted method to share sensitive information. Another reason that this simple addition to the tax form makes sense is that we see the current voluntary method of registering is not proactive or effective.
Another unfortunate complicating factor with donation, particularly when someone passes away, is a grey area that exists for hospitals and families. Sometimes there is confusion between family and what exactly the wishes of the deceased are with respect to organ and tissue donation.
In the Standing Committee on Health report on organ donation in Canada, Dr. Levy, vice-president of Medical Affairs and Innovation at Canadian Blood Services, says, “it behooves us not to miss the opportunity...to use that donation of an organ or set of organs.”
In 2016, 260 Canadians died while waiting for a transplant. While Canada has seen an uptake in living and deceased organ donations, Canada ranks among the top 20% of countries in the world when it comes to deceased donor rates. It was also noted that those rates were half the rate of some other high-performing countries in the world, for example, Spain.
Dr. Levy noted to the committee “Our living donation rate, on the other hand, compares quite favourably internationally...Canada ranked 14th internationally for living donors in 2016”, even with the rates declining or staying stagnant. We can do better; we need to do better. If we do not make changes now, the issue is only going to get worse.
Currently, donation rates are not meeting the needs of patients' needs. There is a fragmented approach across the country with respect to donation programs and some areas are considered the gold standard while others are facing challenges. It is incumbent upon us in the House to ensure that provinces have the tools to deliver for those in need. Supporting the private member's bill of my colleague from Calgary Confederation is the smartest and most effective way of doing that right now.
Several issues with respect to organ donation in Canada were highlighted to the committee in testimony. Some gaps in the systems and reporting and classification of the need and type of donation needed are a couple.
A couple of things jumped out to me as I was researching for this topic. The total annual costs of dialysis range from $56,000 to $107,000 per patient, where the cost of a transplant is about $65,000 in year one and $23,000 in subsequent years. It is estimated the health care system would save up to $84,000 per patient per transplant annually.
The National Transplant Research Program explained to the committee that organ transplantation was not only a treatment option for people facing organ failure, it was becoming the preferred treatment for ailments such as type I diabetes, kidney disease, cystic fibrosis, heart failure and congenital heart disease, lymphoma, myeloma and leukemia.
Giving the provinces the ability to obtain accurate and up-to-date information on donation intentions allows them to ensure their wait-lists are accurate. Knowing who intends to donate through a legally binding declaration would further address consistency for provinces when it comes to measuring and reporting those willing to donate so that they can better prepare. The member for Calgary Confederation's private member's bill would address all of these. This is not a political issue. As my colleague said in his original speech in the previous session, this is a human issue.
Anyone in this House, family or friends, could need donor organs or tissue at any time. Adding a simple line item to the tax form could save hundreds of lives. If we couple that with increased public education and awareness, we could see even more registrations. We saw in the fall of 2018, in the tragic accident with the Humboldt hockey team, that one of the victims, young Logan Boulet, had registered for a donation. That donation saved six lives, as Ms. Ronnie Gavsie, President and Chief Executive Officer, Trillium Gift of Life Network noted at committee when testifying.
The time has come for this legislation to pass this House and the Senate. My colleague from Calgary Confederation has spoken eloquently and dedicated his efforts to his friend, Robert Sallows. The legislation has received support from all parties in this House and stakeholders have been universally supportive of the bill. Families who have loved ones awaiting this are welcoming this legislation. It is now up to everyone in this House to make sure that we do not delay this much-needed legislation any further. We owe it to the hundreds of people who pass away every year on the wait-list. We owe it to the organizations on the front lines and we owe it to the provinces to give them the tools they need to adequately support and deliver their donation programs.