Mr. Speaker, I would like to start by sharing with you about Hayden and his mom Rebecca from my community. Hayden was born with Cornelia de Lange syndrome with epilepsy and microcephaly. When Hayden was a child, he and Rebecca had access to various supports, including the disability tax credit and assistance for children with severe disabilities. His mom describes him as the most smiley, happiest, chattiest boy.
When he turned 18, though, the supports his mom received dropped off like a cliff. The first three months, while waiting for the Ontario disability support program, they had no support at all. Then when ODSP did kick in, with nothing provided retroactively, it provided not nearly enough and very little supplemental for Hayden's additional needs.
As an example, Hayden required a particularly special diet, for which they put in a request for an additional $1,000 a month, a request that was never approved. His mom, as a result, had to go about making impossible choices about what had to go and what could stay. For example cans of Ensure, a necessary supplement for Hayden's diet, were ratcheted way back.
Hayden went downhill fast. Within a year, this past December, Hayden passed away. His mom describes her relationship with various government entities as like being in an abusive relationship. She shared with me that all she wanted were basic human rights. There were not enough funds provided even for a funeral, so they had a simple visitation instead. From this, Rebecca still owes $3,000. She is slowly paying it down.
As a country, we let Hayden down. We let Rebecca down. There are so many others across the country. In fact, Rebecca herself has spoken with four other parents, each with similar devastating stories. We could choose to do so much better for them and for all Canadians across the country with disabilities.
It is why the Canada disability benefit would be so critical, a guaranteed livable income for Canadians with disabilities. It is no wonder it is already supported by 89% of Canadians. Is there much of anything that 89% of us can all agree on? We know Canadians with disabilities are disproportionately living in poverty across the country. Over 40% of those living in poverty would be brought up through this support.
We need to not only fast-track the Canada disability benefit, but also ensure that Canadians with disabilities are involved every step of the way, as we have been hearing, not only from individuals and organizations in my community but also from folks right across the country. There is a recent petition that secured almost 18,000 signatories, each of whom are just looking for a glimmer of hope.
Can the minister share the progress made in working to fast-track the Canada disability benefit? As Rebecca would say, everybody has a Hayden. Every day that we wait for the Canada disability benefit, we risk losing another Hayden. This legislation would save lives, and it is far past time we get it done.
