Mr. Speaker, with regard to (a) and (b), the incidence rate of tuberculosis, or TB, in Canada is broken down by province and by territory and by Indigenous group, namely First Nations, Inuit and Métis, for the 2008-2018 time period and can be found at https://opencanada.blob.core.windows.net/opengovprod/resources/1ff8f1b6-02a8-425a-bd0b-af9495d2e53c/tb-in-canada_2008-2018_eng_march24-2022.pdf?sr=b&sp=r&sig=D6d5ljkzoXi4CwVF9%2BMAAxZrPYJN2tG8/yQBAvKkhzA%3D&sv=2019-07-07&se=2024-01-30T02%3A27%3A38Z.
Surveillance data for the 2012-2021 reporting period will be published on the Government of Canada website in winter 2024 in a new report entitled “Tuberculosis in Canada: 2012-2021 Expanded report.” The report will include updated data broken down by province and by territory, as well as descriptive statistics on a wide range of variables related to TB. A summary of TB data for the 2012 to 2021 time period was recently published and can be found at https://www.canada.ca/en/public-health/services/publications/diseases-conditions/tuberculosis-surveillance-canada-summary-2012-2021.html. With regard to the incidence rate of TB in 2021, the data showed 135.1 cases per 100,000 among Inuit people, 16.1 cases per 100,000 among First Nations people and 2.1 per 100,000 among Métis people.
Additionally, an infographic with surveillance highlights entitled “Tuberculosis in Canada: Infographic (2021),” is available at https://www.canada.ca/en/public-health/services/publications/diseases-conditions/tuberculosis-canada-2021-infographic.html. It is expected that an infographic presenting 2022 data will be released by March 2024.
With regard to (c), the Public Health Agency of Canada, or PHAC, Health Canada, and other federal departments such as Indigenous Services Canada and Immigration, Refugees and Citizenship Canada meet regularly to discuss national TB surveillance trends and interventions to support TB elimination such as support for outbreaks, access to TB medications, capacity building, and other activities. These departments and other partners, such as the provinces, territories, Indigenous groups and TB experts, use national TB surveillance reports to measure Canada’s progress towards TB elimination targets and commitments which in turn help to inform TB policy and program decision making, research initiatives and innovation related to TB. TB surveillance reports are also used by provincial and territorial partners for benchmarking and to inform decision-making.
With regard to (d), demographic data collected through Canada’s TB surveillance system originate from the provinces and territories. The data includes province or territory of residence, population group, namely the country of birth, immigration status, the year of arrival in Canada and Indigenous groups, age and sex. A complete list of variables can be found on our case report form available at https://www.canada.ca/content/dam/phac-aspc/documents/services/diseases/tuberculosis/active-tuberculosis-reporting-form-eng.pdf.
The national surveillance system consists of TB related data submitted from provincial and territorial public health departments but does not include specific information on health care.
With regard to (e), the TB surveillance program at PHAC has a total funding of $1,222,030 for fiscal year 2023-2024, which includes employee salaries, program operations and maintenance. Furthermore, the dissemination of the infographic and surveillance report have an estimated cost of $6,500.
With regard to (f), active TB cases are reported to the National Tuberculosis Surveillance system on an annual basis in the summer months following the calendar year in which they were diagnosed. A national report is then produced usually in the fall and published in the winter. The time period between when data are submitted to PHAC and published include requirements for cleaning data, verifying quality, analyzing, reporting, and publishing.
With regard to (g), guided by recommendations from an Expert Advisory Group, there was significant collaboration between the federal, provincial, and territorial governments towards a pan-Canadian health data strategy, focused on common priorities such as modernizing and aligning health data standards, policies and governance, and building public trust. This work set the stage for enhanced collaboration across the country, under the Government of Canada’s “Working Together to Improve Health Care for Canadians” Plan, announced in February 2023, and a Federal, Provincial, and Territorial Joint Action Plan on Health Data and Digital Health, which was endorsed by Ministers of Health on October 12, 2023. More information on the “Working Together to Improve Health Care for Canadians” Plan is available at https://www.canada.ca/en/health-canada/news/2023/02/working-together-to-improve-health-care-for-canadians.html.
The Pan-Canadian Health Data Strategy, or PCHDS, led to the release of a final report in May 2022 led by an Expert Advisory Group which includes recommendations for health data partners from all jurisdictions, namely federal, provincial and territorial, which can be found at https://www.canada.ca/content/dam/phac-aspc/documents/corporate/mandate/about-agency/external-advisory-bodies/list/pan-canadian-health-data-strategy-reports-summaries/expert-advisory-group-report-03-toward-world-class-health-data-system/expert-advisory-group-report-03-toward-world-class-health-data-system.pdf.
Some of these recommendations align with the work being undertaken by PHAC’s TB surveillance program. The program works collaboratively with federal, provincial and territorial surveillance stakeholders to collect common indicators for TB. In addition, to better understand data needs, gaps and expectations, bilateral discussions with provincial and territorial TB partners took place in the summer and fall 2023. This aligns with recommendation #5 from the PCHDS: Establish meaningful and ongoing engagement with the public and stakeholders to understand their health data needs and expectations.
Furthermore, the PHAC TB surveillance program is exploring the development of a new surveillance infrastructure to modernize the storage, management and analysis of data. This is expected to improve timeliness and data quality and aligns with recommendation #9: Establish common integrated health data standards and data architecture and drive and monitor their roll out.