Mr. Speaker, as members know, in recent weeks this House has reflected extensively on what it means to be Canadian, yet regardless of our sociological or cultural differences, all Canadians share common values on what kind of country we have worked so hard to create together, a country where each and every citizen has an equal chance to make the most of the great opportunities here in Canada.
All Canadians share the same values and want a country where everyone has an equal chance to seize the wonderful opportunities here in Canada.
We have had remarkable success, yet today we are failing over 300,000 Canadians. Every 166th child born in Canada is afflicted by autism spectrum disorder. Either those children are left unable to function in society or their families face a crushing financial burden, and all the while our universal health care system is silent to this suffering. Canada has neglected autism for too long and the time has come to begin to address it.
Autism affects more than 3,000 Canadians. We have long neglected autism, and the time has come to address this problem.
Autism has a devastating effect on a child's quality of life. I think all members can agree on that.
Autism is a neurological disorder that causes developmental disability. It affects the way the brain functions, creating difficulties in communication and social interaction and unusual patterns of behaviour, activity and interests. Its symptoms, as we know, vary widely. Some autistic children display repetitive behaviour. Others suffer self-inflicted injuries. Some cannot even speak and must communicate through the use of computers and full time support staff in schools.
Autism not only affects the individual, but also the individual's family, friends and caregivers who must cope with the individual's difficult childhood.
There is hope for these children. Applied behavioural analysis and intensive behavioural intervention have been shown to dramatically improve social and intellectual functioning of autistic children and thereby their quality of life.
It is critical to get these children the treatment that is required as soon as possible, as soon as they are diagnosed in their formative years. Proper treatment gives autistic children the chance they deserve to enjoy all the joys and opportunities that other children do.
Autism has a devastating effect on a child's quality of life. Autism affects not only the individual, but also the individual's family, friends and caregivers. But there is hope. Some treatments are producing dramatic results. With help, these autistic children can have the same opportunities as other Canadian children.
While the courts have rejected the idea that governments have a legal obligation to treat autism, we parliamentarians here in this House have a moral duty to uphold the promise of all those who have worked to build our country. Treating autism, I would argue, is a matter of equality of citizenship.
But we are not fulfilling that commitment today. Medicare does not provide for the treatment of autism. Some provinces offer limited programs for autism as has been discussed here already and other provinces offer nothing at all. Without medicare coverage, families with autistic children are left to bear the crushing financial burden of treatment on their own at a cost of approximately $45,000 to $60,000 a year. Some families mortgage their house to pay for treatment; others simply go bankrupt. Some parents must choose whether they can afford to give their child certain therapy.
The cost of treatment ranges from $45,000 to $60,000 a year, and this is quite simply beyond the means of most Canadians. We should not and cannot ask a family to choose between a normal life for a child and financial security.
No family should have to bear such an enormous, arbitrary burden. We have recognized the importance of this principle in other areas, such as the deepening of our catastrophic drug coverage.
How should the House address this issue? First, we should acknowledge from the outset that provincial health plans are not within our jurisdiction and that we must respect the divisions of power between our two levels of government. However, the federal government can and I would argue indeed must play a constructive role to ensure that Canadian families have equal access to treatment.
The federal government must lead a national strategy because the cost of treatment is so great that a lack of a national standard will create what I call medical arbitrage. Families with autistic children will be forced to leave their communities to move to the provinces with the best programs. No province will push to create more comprehensive treatment when it is being penalized by inflows of patients. There will be a race to the bottom, not a race to the top.
It is clear that the federal government can play an important role in autism, but it must also respect provincial jurisdictions. Bill C-304 lays out avenues for dealing with autism.
The bill before the House lays out a way forward. It addresses the two most important steps that Canada must take to address autism.
First, this bill would require the Minister of Health to convene a conference between all provincial and territorial health ministers for the purpose of developing a national strategy for the treatment of autism. To address autism we must work with the provinces. They have the responsibility here, but not the funds. One solution that could emerge from this conference is the development of a funding mechanism to assist provincial governments in providing the support that Canadians with autism need.
This bill would also amend the Canada Health Act to make applied behavioural analysis and intensive behavioural intervention defined as medically necessary for persons with autism.
It is somewhat absurd to suggest that therapy is not necessary for an autistic child. Without therapy, an autistic child simply cannot live a normal life. For the child's humanity, treatment is necessary.
This bill lays out avenues that involve the provinces. It is time Canada took action against autism, a blight on society. We must support this bill.
Funding autism treatment means the investment of not insignificant funds in our children. As such, it must be carefully considered, but it has to be considered. Simply putting funds into websites and public relations does not nearly do enough for these families, and the reward of turning a dysfunctional, socially troubled child into a productive member of Canadian society is worth it.
It is time we stood shoulder to shoulder with all our fellow Canadians. Treating autism is an important step in the never-ending march toward realizing the Canadian dream of equality.