moved that Bill C-206, an act to amend the Employment Insurance Act (persons who leave employment to be care-givers to family members), be read the second time and referred to a committee.
Madam Speaker, I cannot say how pleased I am, along with my colleague from Vancouver East and all of the New Democrats, and all members of Parliament and yourself sitting in the chair, to lead off in what I think is a historic debate. We are debating how we could use the laws of Parliament to change Canada's employment insurance system to assist anywhere from 200,000 to three million Canadians when they provide care.
On a personal note I am honoured that my hon. colleague and good friend from Vancouver East seconded the bill. She has experience on the subject and can give personal testimony to exactly what we are speaking about. It would be unfair for me to go into that as she will so eloquently state her personal experience.
Every single one of us probably knows someone, or we ourselves have gone through what the bill addresses. Bill C-206 would allow individuals to care for a dying relative or someone who is under severe rehabilitation in the comfort of their own home. Individuals would be able to leave their place of employment and would have job protection and would collect employment insurance while they provided the loving, palliative care that is so desperately required by dying Canadians.
Bill C-206 will not solve or even get into the discussion of all aspects of caregiving. It is not meant to do that. Being a member of the fourth party, the New Democratic Party, in order to assist the government and other opposition parties it is our role to provide some advice or suggestions. It is our role to say, “Here is an idea. Let us forget about the politics and let us work together to see where we can go on this initiative”. That is the purpose of this debate.
This bill originated in 1997. I had received a call from two of my constituents. Unfortunately, one of them has since passed away. Their names are Pearl and Doug Fleming of Oakfield, Nova Scotia. They were in their seventies and Pearl was dying of cancer. She had been a robust woman of 120 pounds but when I met her she was down to 75 pounds.
All of the doctors told Mr. and Mrs. Fleming that she was dying, that she must be in the Nova Scotia hospital for 24 hour care. Mr. Fleming said no, that if his wife was going to die, he was going to care for her in their home. The doctor said fine and listed the equipment that would be required and the concerns that should be kept in mind. They needed an air filtration system, a ramp, a lift for the vehicle, a special tub, widening of rooms, et cetera.
All the man wanted was to deduct those expenses from his taxes. After fighting for it for over two years, we were finally successful in getting a tax deduction for him. That opened my eyes to what happens in this country and the difficulties that people face time and time again.
I will not use any names, but I know of a woman who now lives in Fort McMurray, Alberta. She was working in the tar sands. She left a small community in Newfoundland for economic reasons. Her father passed away in 1998. In 2001 her mother was diagnosed with cancer and Alzheimer's and was dying.
Being the only child, the young lady had a choice. She could either institutionalize her mother so that her mother would die in a strange building surrounded by people she did not know, or she could quit her place of employment, move back to Newfoundland and provide the care that her mother so desperately needed. She chose the latter. When her mother passed away, she returned to Fort McMurray to see if she could get her job back but unfortunately, it had already been filled.
That should not be allowed. That young woman made a life decision which affected her career. All she wanted to do was care for her dying mother in the comfort of her mother's own home. She did not want the taxpayer to pay hundreds of dollars a day for health care in a nursing home. She wanted to give her mother the care that her mother had given to her when she was a child. She saved the state a lot of money. This young lady left her home in Newfoundland to find work, which is what we encourage Canadians to do to become productive members of society. Yet when she made a life choice, there was no program in place to assist her.
This is just one story of thousands of stories I could tell and they are all true. Every day in our society people make that difficult choice when they get a phone call telling them a relative is dying or has been in a severe accident. I hope and pray that it never happens to any parliamentarian or staff member or anybody in Canada who is watching this.
Madam Speaker, imagine if you were to receive a call today that one of your children had been involved in a severe accident. I know what you would be doing right now. You would be rushing to the aid of that child and you would be with your child for as long as you could. But what if you suffered financially because of the concern and love you have for your child? Madam Speaker, what if your employer could not let you go because of constraints or some other reason? You would then have to make a very difficult choice.
I know what most Canadians who are loving parents would do. They would worry about the money aspect later and would concentrate on the here and now which is the care and love for the child.
Madam Speaker, if you were pregnant and gave birth to a wonderful child you could take a year off with pay under the maternity leave provisions in the employment insurance program. There are paternity leave provisions as well. This is a great program to have at the beginning of a person's life. That nurturing for the first year of a child's life is wonderful and I do not think anyone wants to take that away.
But what do we have at the end of someone's life? Nothing. That is what the bill is meant to correct. Bill C-206 is not perfect. What I am asking is that members send the bill to committee so we can debate the issue more thoroughly and carefully. I am asking for a full year but if members of Parliament feel that is a little much and that we should start slowly and work up, I would agree with that.
I am trying to start the debate on palliative care, end of life care, and severe rehabilitative care, and there is hope. It has been mentioned recently in two throne speeches given by the Liberal government. In his report Senator Kirby has dedicated a whole chapter, either chapter 8 or chapter 9, to this issue. Commissioner Romanow in his recent report on health care mentioned it on pages 184 to 188. There is hope. The debate is out there.
We recently sent out letters to over 500 organizations across the country looking for their support. In the span of two days we received close to 200 e-mails saying that we absolutely have to do this. Those e-mails came from across Canada.
Again, for those who are watching, my bill would allow a person who leaves their place of employment to care for a dying loved one to have job protection. The person would be able to stay at home and care for their dying loved one, under a physician's care. The physician would have to indicate that if that person was not getting the care at home, the person would need to be institutionalized.
We all know how much institutional care costs. Depending where one is in the country and depending on the level of care, it could cost $180 a day, $700 a day, or even more.
We are asking that an individual be able to collect employment insurance so they can leave their place of employment in order to provide that care. It would save money. In fact we have hard evidence from very good sources that for every dollar spent on the employment insurance program we would save five to six dollars in health care. Who would be the biggest winners financially? The provinces.
I was very pleased to see on CBC National after the federal and provincial health ministers met that Mr. Gary Mar of Alberta said he was more than willing to work with the federal government on a palliative care leave program. Gary Mar and I may come from different walks of life politically but I was very proud of him for having said that. He knows that something has to happen.
The burden of care is really hard on a lot of people. In fact, an awful lot of employees feel they have to fudge their statistics at work, that they have to lie. They have to claim sick leave or take stress leave. That costs the economy almost $2.6 billion a year. Employees have had to leave because of the tremendous stress they are under providing that type of care.
Financially, the provisions in the bill would make it a win-win situation for the country. It would be a win situation for the families.
There are companies doing this already, for example, GlaxoSmithKline, a big pharmaceutical company. I called Leanne Kitchen the other day. That company has a 13 week program that allows its employees leave with pay in order to assist a relative under palliative care in an end of life situation. GlaxoSmithKline is quite large and very profitable so it can afford to do that. Many businesses cannot afford to do that, so we need the federal government to step in and show leadership.
The House of Commons can show leadership. Every single program we have has come with a struggle but nothing compares to the struggle that families have in making decisions when it comes to their loved ones.
I want to state four points. Every Canadian has the right to die with dignity. Every Canadian has the right to be free of pain. Every Canadian has the right to be surrounded by their loved ones. Every Canadian has the right to die in the setting of their choice.
On a personal note, I cannot thank my sister enough for the care she gave my father when he was dying. I was fortunate that my mother and father lived in the basement suite of my sister's and her husband's house. When my father was dying it took a long time but my sister and my mother provided the care for him when he was dying. I was lucky because members of my family could do that.
Think of that woman from Newfoundland who did not have family members to do that and think of the choice she had to make. She had to quit her job and move back to Newfoundland because of her love for her mother. She watched her mother die knowing she was out of work and wondering what she was going to do when her mother did pass on. Fortunately, after a year she was able to find work again and she is back on her feet but what a struggle. She has asked me not to use her name because of her pride. That is just one story of many others.
I cannot thank enough Gail Broom, of the Family Caregivers Association of Nova Scotia, who has been helpful in assisting me in drafting the bill knowing full well that the bill is just one aspect of caregiving. There are many aspects of caregiving, from Alzheimer's to physical disabilities to mental disabilities, and so on. We can talk for a long time in the House on all aspects of that.
Again, I am concentrating more on the end of life care and severe rehabilitation. If we were to move toward that effort it would be wonderful.
I wish to mention another aspect that we tend to forget sometimes, that of seniors who in many cases are looking after more elderly seniors, especially in rural areas. Those of us who come from rural areas know that the access to medical care and facilities is not as available as it is in major urban centres.
A classical example is my good friend Floyd Day from the Eastern Shore in Nova Scotia. He is 72 years old, his mother is 92. His wife is elderly as well. His wife and mother are not doing well and he has to provide the care for both of them.
This particular bill would not assist him in that particular case, but it would show the possibilities of what we can do to assist people like Floyd Day, when seniors care for seniors, especially in rural areas.
Approximately 220,000 Canadians die every year. A recent poll said that 90% of Canadians, if they had the choice, would prefer to stay in the comfort of their own home and be able to die in their own home. About 6% of caregivers in the country feel that they could adequately care for their loved ones under that circumstance. Nearly 75% of those 220,000 people die in strange places, such as hospitals and long term care facilities.
We will all get old one day. Dying is something we should not be afraid to discuss or talk about. It is a fact of life.
Madam Speaker, if you had the choice, where would you prefer to die? Would you not want to be free of pain? Would you not want to be surrounded by your loved ones? Would you not want to die in a setting of your choice? Would you not want to know that your caregiver was not suffering under financial strain, or respite strain, or whatever requirement to be able to provide you with high quality care?
We all know that when people enter a strange building, such as a long term care facility or a hospital, right away they are emotionally drained and are looking around, saying, “Is this it? Is this what I have to look forward to for the rest of my life?” No.
When the time comes for me to die I hope that I am surrounded by my daughters--hopefully they would have kids of their own--my dog, or if my dog is not around maybe another one, my beautiful wife, my brothers and sisters, and my good friends. I do not want my caregivers to suffer financially because there was no program in place that would assist them.
I want to thank the members of the House of Commons for listening today. I want to thank my seconder, the hon. member for Vancouver East, who has personal experience with this issue. I want to thank Floyd Day, and Doug and Pearl Fleming for their stories, and for the ability to meet with them and share with them their experiences.
I encourage the House to move the bill along. If it needs to be amended, so be it. But let us work on it together and let us give Canadians truly a beautiful and blessed Christmas present. God love you.