Mr. Speaker, I would like to thank the hon. member for Fredericton for bringing forward this motion which addresses this important issue.
For those members who might not be familiar with autism spectrum disorders, I would like to take a moment to describe the challenges, difficulties and the problems that individuals with autism spectrum disorders and their families face.
No one knows what causes spectrum disorders. Autism has been called by some experts arguably the most severe developmental disorder of childhood.
Autism spectrum disorders occur in all cultures and all social classes. They occur more often in boys than in girls. Furthermore, autism spectrum disorders occur often alongside other disorders, most frequently developmental disabilities.
It has been noted publicly that about three-quarters of autistic children have some degree of cognitive impairment. Between 60% and 80% of children with an autistic spectrum disorder function in the mild to severe range of mental retardation. What this means is that one person can have severe developmental disabilities and be mildly autistic, while another can be highly functioning intellectually but severely autistic. Of course, some will have severe difficulties both with respect to developmental difficulties and with respect to their autism.
How do autism spectrum disorders manifest themselves? Autism affects people in different ways, isolating its sufferers with compulsive behaviours and speech disorders that close people off from their family, friends, teachers, neighbours and society as a whole.
Autism affects all aspects of the disabled person's life and if untreated results in physical, emotional, social and intellectual isolation.
Families of children with autism spectrum disorders have reported improved self-functioning, self-sufficiency and quality of life for the children when they are provided applied behavioural analysis or intensive behavioural intervention services, particularly at an early age, starting at age two. It is a painstaking, expensive treatment that requires full time individual therapy for children. Success stories exist with this treatment.
In one study, with an average of 40 hours per week of one on one treatment for two or more years, almost one-half of children recovered to the point of being indistinguishable from their normally developing peers.
What is the cost of this behaviour therapy? The cost for a year of therapy ranges between $50,000 and $120,000, depending on the severity of a child's condition. Since these therapy services are provided in the home and do not constitute traditional health services, many parents face significant financial burdens.
There is no doubt that a situation for which the treatments most likely to be beneficial cost tens of thousands of dollars can be a profound challenge on top of the challenges that autism spectrum disorders may bring in the first place.
There is also no doubt that autism spectrum disorders have an enormous effect on the family. As the parents of individuals with autistic spectrum disorders have attested, the impact on families is often devastating, both financially and emotionally. Families raising children with autism spectrum disorders face particular hardships, including financial hardships, time poverty and social isolation.
Parents of children with disabilities report that caring for a child with a disability affects their availability to work, requiring them often to work fewer hours, forgo promotions and adjust their work schedules entirely. In particular, the majority of mothers experience a negative impact on their employment. In addition, most parents of pre-school children with disabilities need, but do not have, additional support to carry out basic family responsibilities.
When we hear of the challenges facing families with a child who has been diagnosed as having an autism spectrum disorder, we can only be sympathetic. No one on either side of this House denies that families affected by autism face gaps in the services, especially the social services that can be used to address the needs of their children.
It is not surprising to me that people in the autism community, parents and supporters of many kinds, have been so active in seeking action on autism spectrum disorders.
We recognize that national action on autism spectrum disorders would require cooperation between levels of government. Health and social services are clearly under provincial jurisdiction. The finance minister announced in budget 2006 numerous measures that we are using to assist families with disabilities.
I believe that we are all sympathetic to the situation facing families with children who have been diagnosed as having an autism spectrum disorder. I would like to take this--