Madam Speaker, I am honoured to rise in the House to speak in support of Bill S-211, An Act respecting World Autism Awareness Day.
There are many of us who have been affected by autism, either through families or friends. Many of my constituents in Don Valley East have approached me to help them with this problem.
Autism can manifest itself in a variety of ways. Many times families of children of autism notice that their child's personality is different from other babies the same age. They hit milestones later and increasingly showed little awareness of the outside world. Their words became fewer, or they would bang or chew on their toes rather than playing with their toys.
Families could not understand why their child had so many tantrums and why tantrums were so common, or when a child flapped his or her arms wildly or shoved a nearby adult who ventured too near. Birthday parties or grocery shopping could be distorted by outbursts of anger and frustration and they were compounded when other people did not understand or judged the parenting of these families.
Eventually parents received the crushing diagnosis of autism spectrum disorder. This diagnostic was made worse because there was a lack of understanding by the people around them.
Most parents are concerned whether their child will be an engineer, or lawyer, or teacher, or doctor or whether their child will marry and go forward in life. Parents with autistic children face the very real question of whether their children would lead independent lives or not and who would look after them when they were no longer around.
Autism spectrum disorder, or ASD, is a neurological condition that causes a range of development disability. Some people can function well, while others are locked in a world of their own.
Today ASD occurs in one in 165 children. This represents a 150% increase in the last six years, with no explanation for the dramatic increase. Worldwide, more children are affected by autism than AIDS, diabetes, pediatric cancer. In Canada a total of 48,000 children and 144,000 adults have some form of ASD.
Someone who shows a number of the following characteristics and behaviours would likely be diagnosed with ASD: first, shows no interest in other people; second, does not know how to play with or talk to people; and third, develops language and speech skills slowly or not at all, or initiates and maintains conversations with difficulties, repeats ritualistic actions such as rocking, spinning, or staring.
Someone with a mild case could go undiagnosed for years and might only be detected when the person goes through a crisis. This would then bring them in contact with professionals, who may or may not be able to recognize this disorder.
There is no known cause for autism, but research is focused on differences in brain function, environmental factors, genetics, immune responses and viral infection.
There are those who believe that autism is caused by vaccination and this has led them to endanger the lives of their children and countless others by refusing to allow proven vaccines to be given to their children. This unproven theory of a cause and effect of vaccination and ASD has no basis in science. Parents should not be scared into making irrational choices, but should weigh all the options in regard to the treatment necessary for their child.
No single test will confirm that someone has ASD. Some people with mild forms of autism may never need treatment as they may function well and even excel. However, those with severe forms of disorder cannot function and may benefit from active therapy.
There are several ways people with autism are treated. There is the applied behavioural analysis and intense behavioural intervention. These are both designed to actively engage children with behavioural communication, learning and socialization problems. However, therapy can be extremely expensive, as it may involved a one-on-one teaching for up to 40 hours per week, with a cost ranging from $30,000 to $80,000 a year.
When I heard my hon. colleague say that the government was committed, I hope it will do the right thing and instead of wasting money on corporate tax cuts or jets, it will focus on what is necessary for kids. These kids and their parents need the money. It is very important that we have our priorities right.
Other therapy may include counselling, development of motor and language skills, diet and medication and physiotherapy. It takes hard work, patience and sheer determination to help navigate the system and allow a child to emerge from the bonds of autism. The physical and psychological strain on a family can be overwhelming and the isolation profound.
I would like to first thank the sponsor of the bill, Senator Munson, as well as many colleagues who have been supportive in advancing this cause, MPs from Etobicoke North, Sackville—Eastern Shore, Sudbury, Edmonton—Mill Woods—Beaumont and Verchères—Les Patriotes for their important work.
I also want to thank Senators Eggleton and Keon who were the chair and deputy chair of the standing senate committee, which provided an extensive report on funding for autism entitled “Pay Now or Pay Later”.
Bill S-211 calls for Canada to join with member states of the United Nations to focus the world's attention on autism each April 2. World Autism Awareness Day shines a bright light on autism as a growing global health crisis and is one of only three disease-specific United Nations' days, reflecting the deep concern that the UN has.
Bill S-211 will not change the reality for families affected by autism. They struggle to make a future for their autistic child who is stuck, who needs better care and who needs better one-on-one intervention. These parents have to fight a battle every day to get treatments and make sacrifices to pay for those treatments.
I hope the government will put its money where its mouth is. Let us ensure that the government puts money for families, for care, because that is a very important aspect. As we can see, autism has increased 150% and there is no known reason. It is important that we, collectively, ensure that this problem is curtailed and that the parents whose child is autistic have the necessary resources.
The bill would increase the opportunities of Canadians to learn about autism and recognize that in their communities there are families living with ASD. Last year the United Nations hosted a rock concert by Rudely Interrupted, whose members have various disabilities, including ASD.
It is important that we fund research into the causes, prevention, treatments and cure of autism and raise public awareness about families. In 2006, the American combating autism act authorized nearly $1 billion in expenditure over five years to help families. One in three, or approximately ten million, Canadians will be affected by a neurological or psychiatric disease disorder.
This past year Yoko Ono unveiled Promise. Let us keep our promise and help those children.