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Health committee   benefit to Canadians. I'm wondering if the MS Society is gathering the information that is being collected by the various approaches on CCSVI that the provinces are taking and whether that information is being shared between jurisdictions as it comes out. Or are we really

May 1st, 2012Committee meeting

Mark StrahlConservative

Health committee   about looking at CCSVI in children. Even before that, we'd been funding research, by Dr. Brenda Banwell at the Hospital for Sick Children, looking at MS in children; it's rare, but it does occur. That actually provides perhaps some insight into what might trigger that disease

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee  Dr. Brenda Banwell's study of CCSVI possible in children is still ongoing. It's part of the suite of seven studies that the MS Society of Canada and the National MS Society are funding. The results are not yet available. We were at the 18-month mark a couple of months ago

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee   and so, as you can well imagine, scientific research is of great importance to me. One of the studies on CCSVI subsidized by the Multiple Sclerosis Society of Canada focuses, in particular, on whether chronic cerebrospinal venous insufficiency is a cause of multiple sclerosis

May 1st, 2012Committee meeting

Djaouida SellahNDP

Health committee  Sorry, I should correct that if I misspoke. It's not a request for clinical trials, but a request for research into the relationship between CCSVI and MS. It's not a trial.

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee   that responded to my request. So I'll further dig into this. Thank you. I'm going to continue if that's okay. On May 5, 2010, the MS Society called on the government to provide $10 million for research into CCSVI. Quoting from the release, it said: “The request for funding comes

May 1st, 2012Committee meeting

Kirsty DuncanLiberal

Health committee  The $10 million, I'm happy to say, would certainly be part of the funding of the CCSVI clinical trial. As you know, there was a fundable applicant, which is great news, so now we'll need to go through the ethics reviews; they have to take place. And most of that, in my

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee  We are continuing to advocate for clinical trials. Again, I assume that part of the $10 million would be certainly expended through a successful CCSVI clinical trial if we're able to have one.

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee   that there was something we immediately needed to look into concerning this possible treatment. So we launched our own request for proposals to look at the relationship between CCSVI and MS. We were the first organization in the world to issue a request for research proposals on CCSVI and MS

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee   situation, so it's a huge issue, which the federal government can directly assist with. That's not going to be my question, but I wanted you to know that we've heard everything you're saying. The questions I have focus more on where we're at with the CCSVI. We've all been visited

May 1st, 2012Committee meeting

Libby DaviesNDP

Health committee  Thank you. I'll provide a quick update about progress that has been made in determining the relationship between CCSVI and MS. First, The MS Society is very grateful to the Government of Canada and to all parliamentarians for making CCSVI and MS a health priority. People

May 1st, 2012Committee meeting

Deanna Groetzinger

Health committee   the committee to recommend that a strategy be developed. Today I will provide more details about one of the pillars of the strategy—income security. Deanna will then provide an update about progress in research on CCSVI and MS. The MS Society has long been concerned about the toll MS has

May 1st, 2012Committee meeting

Marie Vaillant

Petitions  Mr. Speaker, I am pleased to present this petition regarding CCSVI. While the government lags 60 other countries in treatment for CCSVI, it does allow people with MS to take Genelia and Tysabri. Health Canada is now reviewing Genelia after it was linked to 11 deaths outside

April 27th, 2012House debate

Kirsty DuncanLiberal

Special Committee on Subsection 223(1) of the Criminal Code   then tell physicians what they can or cannot do? Our own government has said recently, on the issue of CCSVI, that the government should not be dictating guidelines to the medical profession, so then what is the use of this debate in the first place, if nothing that comes out of debate

April 26th, 2012House debate

Hedy FryLiberal

Petitions  Mr. Speaker, I am pleased to present this petition regarding CCSVI. The petitioners understand that the government will fund a trial but question the non-announcement announcement. Who was the research team? Why phase I-II when three FDA phase II studies are under way

April 25th, 2012House debate

Kirsty DuncanLiberal