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Information & Ethics committee  Yes, whether it's 18 or not. I think with anything before age 18, you should be able to get a clean slate and make it all just go away.

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  Again, it speaks to the earlier comment. It's the kind of remedy that would work well with social media, for example. I would know where my information was because I gave it to that particular organization. Information about me that floats around is typically only brought to li

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  Those are good questions. It seems to me that destroying data means magnetizing it, making it go away so that it's no longer held at all. I am very skeptical about the ability to anonymize data, and I think the loophole it creates is this space for de-identified or anonymized

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  Okay. Typically, as I said, in a regulatory regime, we figure that if someone discloses something then it's no longer private, whereas their notion of privacy is relational, and they want to negotiate it with different audiences. If I post something on my Instagram account, a

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  And that certainly has also been found in studies that have been done by CPIC, for example. Andrew Clement has found the same in work he has done at U of T. So from what we can tell from the research, compliance is quite low. In work I've done, what companies have said has been

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  In any complaints-driven process, you're going to find out what's going on only when someone is angry enough to complain. So as the tip of the iceberg, certainly the free flow of health information has created a certain number of complaints. As it moves from private sector legisl

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  If you look at both the EC and the EU, they've actually undertaken a number of studies recently that have expressly rooted privacy for children in the Convention on the Rights of the Child, even if you look at something like cyber-bullying where, in the Canadian context, we've be

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  Do you mean fraudulent use among children?

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  That's interesting. I think part of the problem is that, from young people's point of view, when we create those kinds of remedies, they are less likely to use them. What they're looking for is more control over their information. So even again, when you look at cyber-bullying as

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  I'd refer you to the statement that's been put together by the Electronic Privacy and Information Center. They have an interesting statement of rights when it comes to algorithmic transparency. In a lot of ways, it's already in our legislation. They have to tell us what they're d

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  I would agree, yes.

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  My colleague Michael Geist has argued that it is a foot in the door and that we're moving in that direction.

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  It's a de-linking kind of thing. To me, with the CanLII thing, it's closer to the way courts responded to their actual paper copies of records, so it seems to me that we're not quite there yet. I think it's something that would best be articulated by a thoughtful piece of legisla

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  They're not the arbitrators but the curators. Those are different.

February 16th, 2017Committee meeting

Dr. Valerie Steeves

Information & Ethics committee  Well, right now we're letting it be Google—

February 16th, 2017Committee meeting

Dr. Valerie Steeves