Health committee  To answer Ms. Leslie's question, I would say that we should expand on the second point in the letter to the minister; this is establishing a national plan for promoting the prevention, diagnosis and care of rare diseases. I would like to give some examples from our patient assoc

Health committee  The story of neuroendocrine tumours remains a story, and there are many like that in Canada. Unfortunately, it is often dealt with case by case. Fabry disease is another case that was dealt with to some extent. Often, the case was handled because parents or adults went to the med

Health committee  Good morning. I am Gail Ouellette, the director of an information and support portal for orphan genetic diseases in Quebec and president and chief executive officer of the Quebec Coalition for Orphan Diseases, which includes 20 rare disease organizations.