Subcommittee on Neurological Disease committee  I think Nigel actually brought out already a few points that I would also highlight. I think the EI benefits are very important, but also flexibility in that system to allow, for example in my case, my husband to maybe start with a day off work and then increase that time as th

Subcommittee on Neurological Disease committee  It was very difficult to wait for the diagnosis. I have a wonderful family doctor, but he's never had an ALS patient, so he did not even really suspect ALS, and it wasn't until we got pretty far and got specialized doctors looking at my case that ALS even came into the picture. I

Subcommittee on Neurological Disease committee  Yes, I'm getting there, because there are limitations that the clinic can't offer because of the number of patients. We have been lucky to access hospice services. It's only to talk about hospices as such, but I think “hospice” nowadays, as Nigel was saying, actually talks about

Subcommittee on Neurological Disease committee  Thank you. Good morning. Madam Chair, members, I'm Sari Jormanainen. I'm 45 years old and living in Ottawa with my husband Paul and our two daughters, who are nine and twelve. I was diagnosed with ALS in April 2010. The diagnosis took quite some time to come out, and after a lon