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Health committee  I know that Dr. Hawkins is very interested in medical education, and that is something that he is highly qualified to discuss. I'm sure he would be more than happy to be involved in the development and design of proper modules to train our upcoming medical students as well as cur

June 6th, 2017Committee meeting

Sue Faber

Health committee  Yes, we need to train our doctors, so that they're aware of the concern in the first place. One of the things I actually spoke to Dr. Njoo about yesterday, which we agreed on and I'm very excited about, is that he agreed to reach out to the Canadian Pediatric Society, the Canad

June 6th, 2017Committee meeting

Sue Faber

Health committee  One other thing I'd like to say is that there are Lyme-literate doctors for adults, but there are no Lyme-literate doctors, to my knowledge, for children. Children who present with chronic systemic illness, such as my daughters, cannot seek help or treatment here in Canada. No ch

June 6th, 2017Committee meeting

Sue Faber

Health committee  It's not that they're not going to be treated for tick bites. It's the children who weren't treated for tick bites who then get systemically ill, or the children who are born, in utero with this illness, who aren't going to get treatment.

June 6th, 2017Committee meeting

Sue Faber

Health committee  It wasn't that there was no knowledge. Health Canada reported themselves in 1988; the transplacental transmission has been documented. When I spoke with Dr. Njoo, I said his agency has known for 29 years that this is happening, and asked why they hadn't done anything about it, wh

June 6th, 2017Committee meeting

Sue Faber

Health committee  The framework can't go into every possible study—I correct myself. I said, “So you mean the lives of my children and of babies yet to be born are not considered high-level, highly urgent issues?” He did not respond to me.

June 6th, 2017Committee meeting

Sue Faber

Health committee  Is that for us?

June 6th, 2017Committee meeting

Sue Faber

Health committee  My bent is congenital transmission but we also need areas of the blood supply and persistence looked into. Why would someone like me be fully treated and cured and six weeks after completing treatment be very sick again and not get help? Instead of saying that they don't know w

June 6th, 2017Committee meeting

Sue Faber

Health committee  It is present in the literature. That is why I am going to leave this textbook, Remington and Klein's Infectious Diseases of the Fetus and Newborn Infant, from 2001. I am just going to read one little paragraph from chapter 11: It is uncertain how many episodes of gestational

June 6th, 2017Committee meeting

Sue Faber

Health committee  It's the diagnosis, so our clinicians must be aware. There are guidelines, currently available to our clinicians, that set out proper treatment for individuals, whether they are children or adults. The problem is that many times, from many stories we have heard, children are ac

June 6th, 2017Committee meeting

Sue Faber

Health committee  May I give an example of that? I tested two-tier positive in Canada. My infectious disease doctor treated me with IV antibiotics for a set period of time. When that time period was up, she declared me cured. Within six weeks of my curative treatment I developed new symptoms that

June 6th, 2017Committee meeting

Sue Faber

Health committee  I didn't, no.

June 6th, 2017Committee meeting

Sue Faber

Health committee  Actually, if you have a child or a grandchild who does get bitten by a tick, there is treatment and the key is that it needs to be early treatment. That child needs to go to the emergency room or to your family doctor and whether they have a tick attachment still on them doesn't

June 6th, 2017Committee meeting

Sue Faber

Health committee  Thank you. My name is Sue Faber. I'm a registered nurse by profession, with a majority of my experience as an ER nurse. I'm a Lyme sufferer, advocate, and married mother of three daughters who also have Lyme. My husband Andrew has been my rock and has focused me on this unrelent

June 6th, 2017Committee meeting

Sue Faber