Health committee  The focus is indeed on the disease rather than on healthy lifestyles. The latter is an underdeveloped area, and Dr. Yusuf mentioned this. This is precisely part of the contribution we can make in the long term, and it is an aspect that is becoming increasingly important as our po

Health committee  In practice, a pan-Canadian system has yet to be developed. The current system is still based on 10 health networks. Clinically, we are not yet able to exchange patient data, which we are already doing for research purposes. This is the structural challenge we are currently tryin

Health committee  It could indeed play a role at the organizational level. For their part, the provinces are autonomous; they participate when they want. However, they are increasingly realizing the benefits of increased collaboration. If we fail to share and consolidate this data, everyone will s

Health committee  Yes, in general in genomics there's always been a history of putting your data out almost as you generate it and making it available in the evolution of the science. There was an earlier question in this area, but the challenge for us—and maybe our contribution to the drug pric

Health committee  Exactly. The objective here is to be able to connect to a network of collaborators who have treated patients with the same disease, to find families who are victims of the same circumstances and to promote solidarity not only between these families, but also between health profe

Health committee  Just as a broad sweep, I think you're right. The academic side is “unmuzzleable”, so it goes all over the place. Of course, government science works for organizations, as do people who work in big corporations. I think there was a time when there was a fair bit of pressure to li

Health committee  As a general statement, whether it would be government science or academic science, I think we all collectively benefit from open access to general information. The idea of publishing, sharing and engaging more broadly is very potent. Occasionally people can use that information

Health committee  I think that in most of the universities in Canada, in fact it's the university that owns the intellectual property. There are a few universities where it's the individual, but in most cases—and I've worked in San Francisco and places like.... As an economic model, that model ha

Health committee  I would agree with Aled's comments. In fact, I remember that when we funded the original SGC, the whole idea was to have open science discovery of drug targets and then maybe to have 10 companies go after those targets, increasing the likelihood of something coming out, instead o

Health committee  Yes. It's a dynamic we're quite familiar with. As Mr. Edwards mentioned, people who have connections in the research community are able to find partners in the network of researchers working in another province as well as other families in the same situation. Solidarity between

Health committee  Well, as all the speakers have said, I think that part of the role of public policy is to create a research ecosystem. That is one of the fundamentals of a thriving community. I would say that ecosystem includes funding for public health research and public-good activity. If the

Health committee  I was thinking about this and expecting a variation of this question. When we started, we were thinking about brain drain, with 2,000 human genome programs going gangbusters. It wasn't pretty. If you look at it today, using the example of a hockey scene, we have a team, and we ge

Health committee  Thank you, Mr. Chairman. Good morning. Thank you for the opportunity to speak to you today. I'm joined by my colleague Dr. Cindy Bell, who is our senior VP of Corporate Development and one of the founders of Genome Canada. I'll make a few comments in French and English, so