Health committee  Yes. For example, I have seven different symptoms associated with my disease, but I never put them together. Growing up, I would talk about one or the other when I went to see my doctor, or about whatever was bothering me that day or that week. If I could record what was happen

Health committee  It took almost two years.

Health committee  Yes.

Health committee  I've had it my whole life.

Health committee  My mother was also diagnosed. I just keep her out of it.

Health committee  Yes, in her sixties.

Health committee  It's genetic. We don't know. We can't trace it back. Her mother was already on her deathbed. We don't know where it came from after that. We've since found it in two of her siblings and some of her nieces and nephews.

Health committee  When we were diagnosed, we were numbers 11, 12 and 13 in Canada, but there's an umbrella, so there is a larger disease that we are one of the sub-variants of. We thought at the time that there were about 40 people in Canada with it. Now we're in the hundreds; we're identifying a

Health committee  Good morning and thank you. As Professor Brudno said, I went 32 years without a diagnosis. Throughout the time I was sick, I had arthritis, headaches, full body rash, fevers and a generally low sense of self-worth, to be honest. I went to my doctor's office—my family doctor—abou