Health committee  I can't say.

Health committee  For us in this case specifically, and there's a lot that I don't know, but I'm also trying to raise and home school two children and take care of a sick one. There's a lot that I wish I understood more about, but from what I do see and have felt the direct effect of, with drug co

Health committee  In Canada, there are between 75 and 100 patients.

Health committee  In the U.S. there are roughly 500.

Health committee  In Ontario, yes.

Health committee  No, each province is different on who covers it and and how it's going to be covered. It's relatively new. They announced this within the past four to six weeks that it's going to be covered this way.

Health committee  No, we're spread out. There's one patient in Saskatchewan and a few in the Maritimes, and Quebec has the highest population of cystinosis; how many exactly, I'm not sure, but we do know that they have a large population there. I know, Dr. Midgely, who was here in front of you as

Health committee  Yes, in the States, where the biggest issue lies right now is.... Yes, they get it if they want it, if their insurance will cover it, right? Some patients pay $92,000 a month to be on this drug in the U.S. Yes, that's what it costs a month to be on this drug, but the insurance co

Health committee  This is where it comes down to the bureaucracy of business and Health Canada. It was basically because the new drug was approved. SAP is there for special access when there are no drugs currently available in the country to take. Procysbi was approved in July 2017, and we went t

Health committee  Okay, yes.

Health committee  Prior to all the changes, I didn't even know they had to apply every six months; honestly, I thought it was once a year. I would call the pharmacy when we were headed down to the clinic and I would just say that Olivia needs a refill on her prescription and there were no question

Health committee  For our daughter, we're just under $15,000 a year.

Health committee  Her dose would switch to potentially $300,000, because it's a cost per pill.

Health committee  That's correct.

Health committee  She is probably at 50 pills a day to maintain her health. I want to add, if I may backtrack—sorry—to what the issue is here as we talk about pharmaceutical companies coming here, and as Mr. McKinnon said. You asked about the cost. The pharmaceutical companies are two steps ahead