Health committee  Initially, I think the research to do the actual drug was done by Alexion, but since then, research has been done at different hospitals. I don't think any has been done at any of our universities. Most is done outside of Canada, other than at the place my mom mentioned. Dr. Licht is the expert there.

Health committee  I think you have to help people across Canada and not just in certain provinces. I know our board works at trying to help all the different provinces. Yes, we do it in Ontario and Quebec, and I think we're working on it elsewhere, but if a pharmacy comes in and works with only one province and offers one price to that province and a different price to another province....

Health committee  They're the same drug.

Health committee  Pills?

Health committee  I'm down a lot, but I do hemodialysis at home every day.

Health committee  Some are covered by the Ontario government. They have a whole bunch of outlined rules, and if you don't meet certain criteria, they take you off the coverage. One of the main criteria problems is that after a transplant they can cut coverage after, I think, six months or something, and if someone's illness were to reoccur, they would lose the transplant.

Health committee  There are a bunch of tests. I think one of them is for ADAMTS13. If you were having problems, that would also distinguish between ITP and aHUS. There are some tests that would go with those symptoms, and you'd send this test in and it could determine which disease you have.