Health committee  Yes.

Health committee  I am going to answer the last question and come back. We don't trust the PMPRB for the implementation. They are doing consultations on the evaluation right now. None of us knew about it, because it was promoted on Twitter, and we're not on Twitter all the time, so that was a bit

Health committee  No.

Health committee  They didn't tell us that, but it was said publicly.

Health committee  We have not heard back from anyone. Just thinking and listening to everyone, I sort of want to stress something. We were called out as a patient organization for spreading disinformation and being an opponent, yet we agreed with some of the changes made by the PMPRB, so I find t

Health committee  Thanks for your question. We've met with many of you, and you've met with your constituents, and we thank you for that. We, CF Canada, didn't ask them for an apology, but there was another letter this week that was written to another patient group that was called out. There was

Health committee  I was talking to my team about this today. I feel sad. I feel really let down. We are a 60-year organization that was built by parents. Now our board chair is a parent of somebody living with cystic fibrosis. We are so committed to changing the course of this disease and doing th

Health committee  That letter didn't come from us. It came from a sister organization called the Canadian Cystic Fibrosis Treatment Society. I'm not going to speak to the leadership of the PMPRB. I think the staff probably work hard there and try to do the best they can. What I do think is that

Health committee  We think the consultation should be redone in a fair manner. We've been public about that. We don't think that was done.

Health committee  I think the PMPRB is not set up to work with patient organizations, and they feel threatened by people when they speak up. When parents felt that there could be a barrier to their drug, they spoke up. I think you have to be prepared for that when you're forward-facing and you're

Health committee  Thank you for your question. People living with cystic fibrosis who advocate are just free agents. They are parents of kids who are sick. They are adults now who are living longer lives, which is a wonderful moment. I just want to stress that the drug available for these people

Health committee  Hello. Thank you for inviting us here today. I am the CEO of Cystic Fibrosis Canada. Cystic fibrosis is a fatal disease affecting over 4,300 Canadians who die far too young. We are, however, at a time of extraordinary change for this disease, as there are now drugs that can he