National Spinal Cord Injury Awareness Day Act

An Act to establish National Spinal Cord Injury Awareness Day

This bill was last introduced in the 41st Parliament, 2nd Session, which ended in August 2015.

Sponsor

Manon Perreault  Independent

Introduced as a private member’s bill. (These don’t often become law.)

Status

Second reading (Senate), as of June 4, 2015
(This bill did not become law.)

Summary

This is from the published bill. The Library of Parliament often publishes better independent summaries.

This enactment designates the third Friday of September in each and every year as “National Spinal Cord Injury Awareness Day”.

Elsewhere

All sorts of information on this bill is available at LEGISinfo, an excellent resource from the Library of Parliament. You can also read the full text of the bill.

Votes

June 3, 2015 Passed That the Bill be now read a third time and do pass.

Members not seeking re-election to the 42nd ParliamentGovernment Orders

June 9th, 2015 / 7:55 p.m.
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Liberal

Lise St-Denis Liberal Saint-Maurice—Champlain, QC

Mr. Chair, I would first like to thank all those who thought to give members who will not be seeking re-election the opportunity to talk about their experiences. Many of those members have been here for a long time, but I have not been here very long. Like about 60 of the other members here, my election came as a complete surprise.

Although I had been volunteering in the political sphere for some time, I never thought that it would bring me to the House of Commons. That is often the attitude that women have with regard to a career in politics. As some of my female colleagues have said, strong arguments are sometimes needed to convince a woman to run for election.

In the party for which I was working, I was the president of the women's commission, and along with two other colleagues, I wrote the bylaws for the Quebec section of the party. I was active and involved, and I never thought about becoming a member of Parliament. However, in the end, parliamentary life turned out to be a rich experience for me in several respects.

It is really something to be able to participate in making decisions for a country, even as a member of the opposition. In my opinion, this was a great privilege. What will I remember about the four years I spent working in the House and in my riding?

In the House of Commons, members develop the ability to analyze the political fact differently from ordinary Canadians. Because of the tools at their disposal, they have more information available on which to base their decisions. Government bills move the country in the direction the government wants it to go, but such decisions cannot be said to be made lightly, even if the differences in the parties' approaches sometimes lead to outcomes that not everyone approves of.

Members also have the right to introduce bills and motions. The order of precedence for doing so is determined by a draw. Unfortunately, Parliament would have to stay in session for a few more months for me to have my turn.

Last week, I attended the debate in the House on a motion that proposed that all members should be allowed to vote freely on all matters of conscience or moral judgment. Even without having defined what was meant by a matter of conscience, something that must be done before we vote on the motion, we talked about whether we should be voting based on what our constituents want, the party line or our personal conscience. That is not an easy problem to solve.

That is the kind of dilemma we sometimes come up against—one where beliefs and ideologies stand in stark contrast and call for research, testimony and thorough analysis to ensure that, in the end, the vote is just and appropriate.

Fridays in the House are special. Most of the members have returned home to their ridings, and the House is getting ready to shut down for the weekend after one final hour of debate on a motion or a private member's bill. That is one of the rare instances when there is time for a more personal debate.

That is what happened last week when we were debating Bill C-643, which called for a national spinal cord injury awareness day. The bill, sponsored by our two MPs in wheelchairs, gave us a rare opportunity to step away from partisan rhetoric and learn more about their lives.

It was on that rare occasion that members set partisanship aside and shared the same human emotions. Such a rare situation, so different from what we see during question period, should be more common.

I would like to add that, in terms of life in the House during the 41st Parliament, debate was often restricted on the pretext that everything had been said.

However, it is often following the analyses of experts in a given field, analyses that are undeniably very important, that a more secondary analysis will bring out certain aspects that were overlooked the first time.

If I could make one wish in that regard, it would be that no debate ever be limited. Freedom of speech is vital to democracy. The diversity of analyses undertaken from various perspectives can only enrich the debate and allow for more enlightened decisions.

The second aspect of the life of an MP is the work we do in our ridings. The first thing my political staffer and I did was hire someone for the constituency office who knew our new work environment really well. Through her, we got to know the riding, with its 23 municipalities, its 37,000 km 2, its diverse landscapes, the social and economic diversity of its towns and cities, its difficulties and its unemployment issues. I thank her for that. We built relationships with all the mayors, community groups, organizations, small businesses and MLAs that we met at the various events we attended. We discovered all the physical beauty and human potential that exist in this riding. I learned to love it and defend it wholeheartedly.

Today, I know everything about the riding: the beauty of its scenery in every season, the lives of the Atikamekw people, the dirt roads leading to their villages, the importance of the train in remote regions, the difficulties that forestry workers are having, the factories that are closing, and the communities that are trying to attract tourists as a way of breathing new live into municipalities that have lost their lustre.

We travelled from one end of the riding to the other many times. We supported the festival in St-Tite and the tomcod fishing festival. We also supported the arts, including the wonderful Notre-Dame-de-la-Présentation church, which is home to the works of Ozias Leduc.

It is always a pleasure to meet with my constituents in a variety of different circumstances. I noticed that, whether we live in the city or the country, we are all human beings with feelings who are ultimately trying to make our dreams a reality.

I would be remiss if, before closing, I did not thank all of my staff from the bottom of my heart.

Anne Cleary is an experienced member of my staff in Ottawa who has been working on the Hill for 20 years. She is very organized and always available to help.

Every day, my researcher, Jacqueline Froidefond, gave me a press review of everything that was happening in the riding.

Nicole Duchesne and Mance Vallée had to be independent, since they worked in remote offices and were required to make arrangements on their own and often attend events I was not able to attend.

Jocelyne Rivest and Christine Boisvert shared time at the main office in Grand-Mère. I have heard so many good things about how welcoming they were to constituents.

Lastly, Roger Le Blanc, my political assistant, took on all kinds of duties, namely managing employees, drafting, analyzing bills, and always travelling with me in the riding. I do not know what I would have done without his political insight, his analyses and his good judgment. Thank you for everything, Roger. I will leave here having learned a lot.

National Spinal Cord Injury Awareness Day ActGovernment Orders

June 3rd, 2015 / 6:35 p.m.
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Conservative

The Acting Speaker Conservative Bruce Stanton

The House will now proceed to the taking of the deferred recorded division on the motion at third reading stage of Bill C-643, under private members' business.

The question is on the motion.

The House resumed from May 29 consideration of the motion that Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day, be read the third time and passed.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

May 29th, 2015 / 1 p.m.
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Independent

Manon Perreault Independent Montcalm, QC

moved that the bill be read the third time and passed.

Mr. Speaker, it is a real honour to present my bill entitled An Act to establish National Spinal Cord Injury Awareness Day. I am very pleased that it has reached this stage and that it was all done so cordially.

This bill made it through all of the previous stages and has progressed nicely to this point. That is the result of everyone working together, and I sincerely hope that this will be a turning point in the lives of people living with a spinal cord injury.

I must also mention our partners who have supported us throughout this process and who were all involved in some way in the development of this bill. I am thinking about the Rick Hansen Institute, which provided us with data, Bobby White, the director of Spinal Cord Injury Canada, and Walter Zelaya, from MEMO-Que, who gave their full support without reservation.

With this bill, we want to designate the third Friday of September as national spinal cord injury awareness day. After a number of discussions, we concluded that this awareness day could be very useful to individuals, employers and stakeholders in various fields. It will certainly also have a very positive and significant impact on people living with spinal cord injuries.

I am quite certain that I will be able to show my esteemed colleagues that implementing this bill, which will not cost anything, can have a major and meaningful impact on people with spinal cord injuries. It will do so much to raise widespread awareness of their needs and abilities.

This bill would designate the third Friday of September as national spinal cord injury awareness day. Why that day? We took a number of factors into consideration, including two major ones: accidents that happen in the summer and accidents related to winter sports. The third Friday of September is also symbolic. There is an analogy here. When someone has just suffered a spinal cord injury, it is like autumn: they see dark days ahead. In the months after a spinal cord injury, patients have to cope with a kind of darkness that is comparable to a difficult and trying winter.

This simple and effective bill that will cost nothing provides one more tool to those involved in helping people with spinal cord injuries, as well as to agencies that work on prevention and raising public awareness and recognize the harsh reality just outside the door of the rehabilitation centre. That is exactly when spinal cord injury patients first feel that those around them really are looking at them differently, that each and every outing will require considerable effort and that their new limitations mean that they have to dig to the very depths of themselves as they try to improve their lives each day and start living anywhere close to the way they did previously. They have to have the courage to forgo some activities or to summon the perseverance they need to adapt those activities to their new reality.

This bill has three components. Naturally, raising awareness among our fellow Canadians is the first objective. We want people with spinal cord injuries to feel more encouraged to take an active part in society without any prejudice towards them. If possible, they should be encouraged to develop a talent and, even better, to use it for the benefit of others. In my view, that is a fundamental part of human activity.

This day will allow people with spinal cord injuries to communicate with each other, gather information about the possibilities open to them, and listen to people with experiences to share.

It is also about recognizing the determination of those with spinal cord injuries to build a new life. One of the biggest accomplishments for anyone with a spinal cord injury is understanding that life is going to have its challenges and costs. The higher the injury is on the spinal cord, the more severe the physiological damage is and the faster the aging process seems to go.

Even people whose work requires little physical effort run into problems in terms of getting around, transfers, personal care, housekeeping, ice, snow clearing and so on.

We also want to recognize the dedication of the people who help out on a daily basis. Thanks to them, the injured persons can resume a nearly normal life. This help goes a long way toward alleviating anxiety, problems of all kinds, and especially physical exhaustion. However, what is most important in my view is that these people gently force the injured to be disciplined and to tune out the little voice in their head that tells them in the morning that they do not have the desire, energy or need to get out of bed. Believe me, that little voice is tenacious and having someone to rely on during those times is truly a blessing.

I want to acknowledge the perseverance of scientists who, through their research, are improving the lives of thousands of people with spinal cord injuries. In recent years, there have been significant advances in the neurosciences, which study everything to do with the nervous system, such as the mapping of the sensorimotor cortex.

At the trauma unit at the Hôpital du Sacré-Coeur de Montréal, you learn that the spinal cord is made up of nervous tissue and cells and that it looks like a cable the thickness of your little finger. It begins at the base of the brain and passes through each vertebra, ending between the first and second vertebrae. Basically, the spinal cord is the communication link between the brain and the body.

Adapting to a spinal cord injury is very difficult and takes a long time. It requires a great deal of personal effort by the injured person and the people around him or her. It turns a person's life upside down and is often accompanied by many negative emotions such as fear, anxiety and anger. It brings long hours of reflection interspersed with highs and lows.

However, as with any situation, there are also positives. Those with new injuries are taken care of by an interdisciplinary team that quickly addresses the objectives identified by specialists based on the injuries.

For several years, the notion of inclusion has dominated the debate on the place of people with disabilities in our society. A so-called inclusive society adapts to individual differences and anticipates people's needs in order to give them the best possible chance of success in life. As a result, in order for a society to be truly inclusive, collective will and collective mobilization are needed, on the part of society and the economic and political communities. They need to change their way of thinking and the way they organize things in order to integrate people who are sometimes more fragile.

Every little action to improve the living conditions of people with disabilities requires a collective and political effort, and I think that we are making such an effort today.

I also believe that as elected representatives, we must promote inclusiveness. We must position ourselves as open people who create bridges with our living environments. Of course, the inclusion of people with disabilities in society cannot be done without the support and knowledge of the medical, social and political sectors.

Finally, I sometimes get the impression that we have incorporated the notion of inclusion into our speeches, but it is difficult for a person with a disability to be convinced that political authorities are truly committed to the notion of inclusion because so much remains to be done in terms of accessibility and home care.

It is important to understand that the bill to designate a national spinal cord injury awareness day is much more than symbolic. It has the potential to help save lives and reduce the number of spinal cord injuries that happen in Canada every year.

Let us not miss this opportunity to help everyone. As I often say, spinal cord injuries do not discriminate.

As I went through the process that got me to the point of talking about this bill again today, I believe that I developed a better understanding of the real needs of people with spinal cord injuries. Let me explain. Naturally, people might think that I do not really understand them, but talking to other people can sometimes help us see other problems.

I gained a better understanding of what this special day on the calendar can contribute. This bill is representative of the political work we are all here to do because it helps us all better ourselves as a society in meaningful ways.

Sometimes we get the feeling that we are not doing enough, but in this case, even though this bill seems like a modest initiative at first glance, it is an incredible tool that leads us to a new stage in our progress toward accepting people with disabilities in Canada.

This step forward will lead to others and so on. The quality of life of all our fellow citizens, whether they are affected by spinal cord injuries or not, will certainly improve.

Creating a national spinal cord injury awareness day will ultimately significantly help improve health care, promote treatment advances, technological innovations and research in medical science, and even contribute to the Canadian economy.

Raising hope is a winning strategy, and today, the first thing we must do is make sure that this bill continues to make its way through the legislative process. We also need to make social acceptance more universal and to raise awareness among employers of the unsuspected qualities of those with spinal cord injuries, thereby making our communities more effective, productive and just.

The practical nature of this reality and the idealism of these principles work well together in this much-needed bill. We have to promote acceptance within social networks and value inclusion because it is both compassionate and for the common good.

I should mention that governments are doing their part when it comes to research, but most of the funding comes from appeals to the public's generosity. Creating a national spinal cord injury awareness day will allow for new fundraising opportunities. It will not cost us anything to provide this opportunity to organizations that offer services to persons with disabilities, and the potential returns could be extremely beneficial.

To sum up, this bill will help raise public awareness and acceptance of spinal cord injury victims. It will maximize funding and research initiatives and stimulate volunteer support and personal involvement in general. It can help communicate and draw attention to specific issues, while bringing together people on similar paths. It will validate the help and support provided by loved ones, family members, colleagues, neighbours and specialists, as well as the exceptional contribution of researchers in this area of expertise.

We are all equal before this terrible scourge and every bit of progress is a victory for all. My personal experience and that of the people I consulted, as well as the conversations I have taken part in, have convinced me that creating a national spinal cord injury awareness day is a productive, effective, economical and sensible way to do our part for Canadians with disabilities.

I often say that people living with a physical limitation who meet daily challenges have the same very strong abilities, qualities and character of people drawn to extreme sports. I am sure that my colleague across the way will agree with me. They have to have determination, courage, perseverance, and especially the will to improve their daily lives.

I think that we can do a better job of equipping these people to deal with what others would see as insurmountable obstacles. I recognize that it is often stressful and painful for the people around us, because they are not living it and do not truly understand. It is up to us to reassure them, if we want to maintain their friendship and respect, and to recognize that they may be an incredible, and even vital, source of support.

The House resumed consideration of Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day, as reported (without amendment) from the committee.

Human Resources, Skills and Social Development and the Status of Persons with DisabilitiesCommittees of the HouseRoutine Proceedings

May 13th, 2015 / 3:20 p.m.
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Conservative

Phil McColeman Conservative Brant, ON

Mr. Speaker, I have the honour to present, in both official languages, the 10th report of the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities in relation to Bill C-643, an act to establish National Spinal Cord Injury Awareness Day. The committee has studied the bill and has decided to report the bill back to the House without amendment.

I also have the honour to present, in both official languages, the 2013 Annual Report on the Administration of the Centennial Flame Research Award Act. This report includes the 2013 Centennial Flame Research Award report submitted by Ms. Sara Carleton, entitled, “Clara Hughes: Opening Hearts, Opening Minds”, as well as the financial statements of the Centennial Flame Research Award Fund for the fiscal years ending March 31, 2014, and March 31, 2015.

May 5th, 2015 / 3:30 p.m.
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NDP

The Vice-Chair (Ms. Jinny Jogindera Sims (Newton—North Delta, NDP)) NDP Jinny Sims

I'd like to call the meeting to order. This is meeting number 53 of the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities. Our first business of the day today is a bill before us, Bill C-643, an act to establish national spinal cord injury awareness day, and we have Madame Perreault with us.

Madame, we're going to have you present for up to 10 minutes.

Thank you.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

March 26th, 2015 / 6:05 p.m.
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Conservative

Mike Wallace Conservative Burlington, ON

Mr. Speaker, it is my honour to speak to Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day. We have a number of awareness days in the House, and for me, this is one of the more important ones we have had since I have been here, which is nine years.

I would first like to congratulate the member for introducing this legislation. It is obviously an important issue to the member for Montcalm, but it is also important for members from ridings across the country. Spinal cord injuries are happening all over Canada because of accidents and other things. As the previous speaker mentioned, disease can cause issues with the spinal cord.

My spouse works for an organization that helps young people with physical disabilities, and spinal cord injuries is one of them. It is a tremendous burden, if that is the right word to use. “Challenge”, I think, would be a better word. Such an injury is a tremendous challenge not only to the individual who is suffering from a spinal cord injury but also to the family members and friends who are asked to look after them.

The previous speaker from the Liberal Party mentioned that about 95,000 Canadians live with neurological conditions caused by spinal cord injury. My research shows that it is actually likely that in 2011 it was closer to 120,000. There are a significant number of people in this country suffering from issues due to spinal cord injuries. They are often life-altering, of course, to individuals and their families. We see that in the House with our colleagues. We have been very fortunate that our colleagues who have spinal cord issues overcame those challenges, ran for office, and were elected to the Parliament of Canada. It took a tremendous amount of courage on their part to make that happen.

These injuries also have a significant impact on the Canadian economy. It sounds cold for me to say that, but there is a loss of opportunity both for individuals who suffer from spinal cord injuries and for their families, who have to take time and effort away from what they might otherwise be doing in terms of being productive in jobs or other areas and instead look after their loved ones. That is a loss.

In 2013, a study supported by Health Canada and the Rick Hansen Institute estimated the following:

...the lifetime economic burden per individual [with traumatic spinal cord injuries] ranges from $1.5 million for persons with incomplete paraplegia to $3.0 million for persons with complete tetraplegia....

Bill C-643 reminds us of the importance of recognizing the courage and determination of those with spinal cord injuries as well as the perseverance of the scientists whose research has improved the lives of hundreds of people with spinal cord injuries.

We have a lot of bills these days. This one in particular is important, because it would bring attention at least once a year to the challenges that individuals face and would also bring awareness to the public. We need to leverage these days that we have and not just pay lip service to the issue.

That particular day of the year would be an opportunity for all organizations, individuals, and families to rally together to make sure that governments, organizations, not-for-profit organizations, communities, and even community planning have an understanding of the issues and challenges facing people who suffer from spinal cord injuries. It would be an opportunity to make sure we have the resources and opportunities for those who have suffered from a spinal cord injury, whether those resources are in finance, research, or a physical plant, as was previously mentioned.

I think the mover of this bill should be fairly excited, because I think the vote is going to be unanimous in the House. I certainly support it. I know that our government supports the actions we need to take to help prevent these injuries in the first place and supports research for the development of innovative treatments for those who are suffering from spinal cord injuries.

From 2006 to 2014, the Government of Canada invested close to $57 million in spinal cord injury research, including more than $6.5 million in 2013-14 alone, through the Canadian Institutes of Health Research, which we all know is a great organization. It provides support in a number of areas of health research for the betterment of Canadians.

Research projects supported through this investment cover a broad range of issues related to spinal cord injuries, from regeneration to repair of damaged nerves and nerve fibres in the spinal cord to the development of new guidelines on best practices for the treatment of patients. This investment also contributed to improving our understanding of how the spinal cord transmits neural signals between the brain and the rest of the body.

For example, last June, CIHR announced an investment of $1.7 million for a research project at Dalhousie University on mapping how a family of neurons in the spinal cord controls subconscious movements. This fundamental knowledge is an important first step in the development of new tools to restore movement in patients suffering from neurological injury or disease.

As we learn new things that are brought to us, it always amazes me the importance and quality of scientists we have in this country. We are proud as a government to be supporting those scientists who are doing great work, which is way beyond my comprehension. I am very thankful that we have people with that skill level, knowledge, and commitment to finding health solutions, including for spinal cord injuries in this country.

Another good example of research supported by CIHR is the project of Dr. Yves De Koninck of Laval University. It aims to improve our understanding of how nerve cells regulate pain and how this process is altered in the spinal cords of individuals with nerve damage. This research will contribute to designing treatments for preventing and alleviating chronic neuropathic pain or increased pain sensitivity in people with traumatic spinal cord injuries.

This fantastic scientist received the Barbara Turnbull award for his contribution in this important area. The annual award has been presented since 2001 by CIHR, the Barbara Turnbull Foundation, and Brain Canada to raise awareness of the thousands of Canadians who are living with a spinal cord injury and to promote research in this area.

CIHR is also supported by a number of research initiatives that have contributed to advancing knowledge on the effects of spinal cord injuries and the most effective treatments to address them. For example, from 2004 to 2010, CIHR and its partners invested more than $82 million to support a major strategic initiative called the regenerative medicine and nanomedicine initiative. Research supported through this investment focused on the renewal of bodily tissues and organs, the restoration of function with natural and bioengineering means, and the development of new materials to diagnose, treat, and repair damaged tissues.

Many of us have a friend, a neighbour, a family member, or a colleague right here in this House who have suffered a life-altering spinal cord injury. While there have been many scientific advancements to help in treatment and sometimes in recovery from these injuries, there is still much to be done. Bill C-643 will help raise awareness so that everyone can learn how they can play a role in preventing spinal cord injuries.

I would like to thank hon. colleagues for their attention and invite them to support this legislation when it comes to a vote.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

March 26th, 2015 / 5:55 p.m.
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Liberal

Hedy Fry Liberal Vancouver Centre, BC

Mr. Speaker, I stand today to say that the Liberal Party will be supporting Bill C-643, which, as we know, seeks to establish a day to recognize the impacts that spinal cord injuries have on Canadians, the health care system, and the economy.

This bill would bring awareness to this serious and debilitating condition. We support that idea because not a lot of people understand and know about spinal cord injuries. They think it is something that happens after a car accident and do not understand the full nature of it, the costs to the health care system, and the long-term residual effects on its victims.

The front end of a spinal cord injury is acutely traumatic and places great costs on the acute health care system, such as long-term hospitalization. A lot of care is necessary, depending on the severity of the spinal cord injury.

Then there are the long-term health implications. People who have suffered spinal cord injuries tend to have very reduced mobility and life expectancy. They also have impaired neurological recovery and are unable to recover some of the use of their central nervous system.

What is surprising to a lot of people is that currently 95,000 Canadians are living with spinal cord injuries. This number is expected to rise with the increasing age of the population, because age, interestingly enough, is a factor in spinal cord injuries.

The Canadian Medical Association Journal is predicting 4,300 new cases each year. The number of persons suffering with spinal cord injuries will increase as the population ages. Approximately 51% of spinal cord injuries are a result of trauma, such as car accidents, skiing injuries, and so on. We know that is true. Most people think that is the only reason, but there are also non-traumatic injuries, such as ALS, cancer, and degenerative diseases of the neurological system that cause the spinal cord to be severed or damaged so that the spinal cord is not continuous and does not work.

The Rick Hansen Foundation estimates that the economic costs for newly injured Canadians is approximately $2.7 billion. That is a huge amount of money. This cost includes not only acute, long-term, or chronic health care but also new equipment and modifications made to people's homes to enable them to live with the long-term injury they have sustained. For instance, the lifetime medical costs for a quadriplegic exceed $3 million in the lifetime of that one person. With respect to a paraplegic, we are looking at $1.6 million in lifetime costs. For many Canadian families the average cost of a simple manual wheelchair is $4,000 to $5,000, and the average cost of a power wheelchair is about $10,000 to $15,000. Those costs are not currently covered under the health care system.

We also know that people who are confined and unable to move because of long-term injuries, such as spinal cord injuries, suffer from higher levels of depression and ill health consistent with a changed ability to cope with life. Depression in people with spinal cord injuries is one of the biggest reasons they tend to go to see family physicians.

With respect to awareness of spinal cord injuries, people do not know or realize that while 51% are from trauma, the other 49% are from other effects, such as seniors becoming older and falling or as a result of basic neurological defects such as ALS and the like. People think the spinal cord has to be severed to cause a traumatic injury.

Therefore, if we do anything this day, we need to bring awareness of this problem to Canadians with respect to the costs to the health care system, to families, and to society, as well as the loss of person-days of work. Many people are not able to work in the system or can only do certain jobs. It is important for people to understand this and to realize the importance of research on spinal cord injuries with respect to how we can bridge that damaged spinal cord to allow people to live with some quality of life. We are now finding out that research is showing that if a spinal cord injury is caught early enough, some regeneration of the spinal cord is possible.

This is good. It is helpful for all of the people for whom the tragedy of a spinal cord injury is not only one of cost and loss of productivity but also of loss of ability to do things they used to do before, as well as the depression and the mental health problems that come with it.

If this day would improve awareness for Canadians, then we can get the political will to do the necessary research in prevention of spinal cord injuries, treatment of spinal cord injuries, and recovery from spinal cord injuries.

We learn. I was one of the Chair-Leaders on the Hill trying to get around in wheelchairs and suddenly realized that ordinarily I should not use the disabled section of the women's washroom. I had this realization because I was waiting there in a wheelchair while someone who was able was using it. Lack of consideration in that simple area was enough to show how difficult mobility is for people with spinal cord injuries.

Motor vehicle accidents, including those involving all-terrain vehicles, account for 31% of spinal cord injuries, so we might want to look at how we regulate the use and safety of all-terrain vehicles. Seniors and age are issues, as 46% of injuries result from falls, while 5% result from acts of violence and 18% result from sports and recreational injuries and other unknown and degenerative diseases.

New methods for treating spinal cord injuries are being worked on, but we need to ramp it up, because the ability to continue with life the way one knew it is invaluable. We cannot even weigh the cost of not being able to do that to the human person.

Work is being done at UBC, my home province, and in 2012 CIHR gave a grant for research on cardiovascular health in persons with spinal cord injuries. The main cause of death of persons with spinal cord injuries has become cardiovascular disease, because of their inability to be mobile and the inactivity that followed, so work is being done now to see how we can prevent cardiovascular disease in persons with spinal cord injuries. There is hope for that.

We can improve the quality of life and save the health care system up to $70 million annually, but the most important thing is to give back to persons with spinal cord injuries the ability to regain their lives, do the things that they formerly could do, and have a full quality of life.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

March 26th, 2015 / 5:35 p.m.
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Conservative

David Wilks Conservative Kootenay—Columbia, BC

Mr. Speaker, it is with great pleasure that I rise today to speak to the private member's bill, Bill C-643, an act to establish a national spinal cord injury awareness day, put forward by the hon. member for Montcalm. It is important that she has brought this issue of spinal cord injury before the House.

Bill C-643 recognizes the courage and determination of Canadians living with spinal cord injury, and raises awareness of the importance of creating environments that encourage an active return to an inclusive society.

The bill also recognizes the dedication of their caregivers, which may include their families, friends, and professional health care workers who provide them with the vital support they need.

It also acknowledges the important contributions of leading Canadian scientists, whose research has improved the lives of hundreds of people with spinal cord injuries.

Bill C-643 aims to establish the third Friday in September every year as national spinal cord injury awareness day.

This would seek to reduce the risk of spinal cord injuries through increasing awareness and prevention, and it would also benefit those currently suffering from a spinal cord injury by shining a light on this important health issue across our country—with local government, non-government organizations, volunteer groups, and the private sector.

Spinal cord injuries include damage to any part of the spinal cord and may be traumatic or non-traumatic in nature.

Traumatic spinal cord injuries can result from many different causes including falls, traffic accidents, occupational and sports injuries, as well as violence.

Non-traumatic spinal cord injuries typically involve an underlying cause, such as an infectious disease, tumour, a muscle or bone disease such as osteoarthritis, or spina bifida

Regardless of how spinal cord injuries occur, both traumatic and non-traumatic injuries can be devastating for individuals and their families.

In terms of how traumatic spinal cord injuries occur, based upon hospitalization records from 2010 to 2011, there were 577 hospitalizations in Canada attributed to spinal cord injuries. Of these, 54% were the result of non-sport related falls, while 31% were attributable to vehicle accidents, and 4% were a results of a sport injury.

To gain a better understanding of neurological conditions in Canada, our government made a $15 million investment in 2011 to initiate the national population study on neurological conditions. It was led by the Public Health Agency of Canada and Neurological Heath Charities Canada in collaboration with Health Canada and the Canadian Institutes of Health Research. The study was composed of thirteen research projects, three national surveys, and seven simulation models.

After the study was completed, Alzheimer's disease, multiple sclerosis, epilepsy, and Parkinson's disease were all added to the existing Canadian chronic disease surveillance system, which is managed by the Public Health Agency of Canada.

The study has improved our understanding of the incidence and prevalence of neurological conditions such as spinal cord injury. It has also shed light on the impact of neurological conditions on individuals living with these conditions, their families, and their communities.

Through this bill, we can create greater awareness for spinal cord injuries and their impact on the lives of those affected. We can highlight federal injury prevention efforts and showcase advancements in spinal cord injury and stem cell research in Canada, so that we as a country can make further gains.

Our government recognizes the impact spinal cord injuries have on Canadians and has directed significant financial investment into research to generate new knowledge and technologies to improve patient outcomes and quality of life.

Through our support for research on the functioning and disorders of the brain and spinal cord, I believe we are making a difference. With federal support, the work of top researchers has contributed to our understanding for the changes in nerve cells that could prevent and alleviate chronic neuropathic pain syndrome and improve recoveries of limb function following spinal cord injury or trauma.

Through the Canadian Institutes of Health Research, our government funds research that covers the full spectrum of spinal cord research. This includes basic biological and clinical research to population health, health services, and quality of life and health determinants.

Since 2006, our government has invested $57 million toward spinal cord injury research to generate new knowledge and technologies to improve patient outcomes and quality of life. We have also invested $470 million in stem cell research since 2006 and over $53 million in 2013-14 alone.

Research in stem cell clinical therapies has the potential to revolutionize the treatment of degenerative diseases, such as spinal cord injury, and greatly improve the quality of life of many Canadians.

In September 2014, the Minister of Health announced a federal investment in support of 32 new research projects under the Canada Brain Research Fund. One of these included the development of the Rick Hansen Alberta Spinal Cord Injury Registry through the University of Calgary.

As some may recall, the Rick Hansen Foundation was founded in 1988 after Mr. Hansen so bravely and with such determination completed the Man in Motion World Tour in Vancouver. The foundation works toward removing the barriers that limit the participation of people with disabilities in society. Our government proudly supports the Rick Hansen Foundation, an organization that is inspired by the dream of creating an accessible and inclusive world, and driven to finding a cure for spinal cord Injury.

An investment of $30 million was provided by our government to the foundation from 2007 to 2013, to implement a spinal cord injury data system across Canada, support spinal cord injury research and promote best practices in spinal cord injury care. This investment aims to improve health care and quality of life for Canadians living with a spinal cord injury.

In order to maintain the momentum of the Rick Hansen Foundation, our government announced a further investment of $35 million to this foundation until 2018.

Bill C-643 would add to significant efforts already under way in Canada for people living with spinal cord injury.

In Canada, other jurisdictions such as Saskatchewan and Manitoba have commemorated spinal cord injury awareness. In 2009, the government of Saskatchewan, in collaboration with the Canadian Paraplegic Association, proclaimed May 2009 as Spinal Cord Injury and Physical Disabilities Awareness Month to raise awareness about spinal cord injuries and other physical disabilities. Manitoba declared a similar Spinal Cord Injury Awareness Day in May 2011.

I hope my comments today have given everyone an understanding of the impact spinal cord injuries has in our country.

I would encourage each member to lend their support to Bill C-643 to establish the third Friday in September as the designated day for national spinal cord injury awareness day across Canada to increase awareness of spinal cord injury.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

March 26th, 2015 / 5:25 p.m.
See context

NDP

Hélène LeBlanc NDP LaSalle—Émard, QC

Mr. Speaker, this afternoon, I am pleased to express my support for Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day.

Bill C-643, which was introduced in the House of Commons for the first time on December 8, 2014, designates the third Friday of September in each and every year as national spinal cord injury awareness day. Like my NDP colleagues, I want to voice my support for this legislative initiative.

In Canada, there are 86,000 people with spinal cord injuries and, unfortunately, 4,300 new cases are added each year. These injuries cost almost $2.67 billion per year and cause a great deal of physical and psychosocial suffering for those who sustain them. This national day is important to raise public awareness of the reality of people living with these injuries and the difficulties they have to face, as well as the work done by their caregivers and the scientists who are trying to improve their lives.

In my riding of LaSalle—Émard, many organizations work not only with people who have spinal cord injuries, but also with people with reduced mobility, people in wheelchairs, in short, people with any type of disability. Many organizations work to try to help people with disabilities integrate into society and especially to raise public awareness in order to make that integration easier.

I want to mention the organization Handicap Action Intégration and its director, Mody Maka Barry, who also has reduced mobility and uses a wheelchair. He wants to use his organization to help people with reduced mobility find their inner strength and have a healthy and fulfilling life and to prove to them that a physical limitation does not have to hold them back, because it is courage and determination that count.

Handicap Action Intégration also raises awareness among employers to encourage them to hire people with a disability. A recent report in The Globe and Mail talked about the benefits of hiring a person with a disability. That diversity is often very rewarding for a workplace. It creates bonds and allows people with a disability to work, whether or not their disability is due to a spinal cord injury that forces them to use a wheelchair.

Those who are integrated into the workforce will not only benefit from a well-paying job and, often, get out from under financial difficulties, but will also be able to contribute a great deal to society. The article mentioned a number of cases where employers benefited from the rewarding experience of hiring people with a disability. I would like to quote the article:

The article is entitled “Working wisdom: How workers with disabilities give companies an edge”. It says:

Opportunity for many people like him [a person living with a disability] is still scarce.

It means that there are not a lot of opportunities, as not a lot of employers are bold enough to hire people with disabilities.

It continues:

More than two million Canadian adults, or 11 per cent of the population, have some sort of disability and only about half of them participate in the labour force. Of those who do look for work, the jobless rate is 40 per cent or more for some groups. Underemployment is higher and even if they hold a job, incomes among adults with disabilities are typically far lower than the rest of the population.

I think a day like the one proposed in Bill C-643 could raise awareness about what life is like for people with a disability and how vulnerable many of them are. It could also help us see what we might do to help them integrate into the workforce and improve not only their financial situation, but also their physical and psychological condition.

I will share an example of an employer who hired someone with a disability. These are the benefits he discovered.

The benefit for the [employer], he added, is that it has a work force that more closely resembles its customer base. And its workers can give insights into how to reach different customers and keep them happy.

In other words, someone who has a disability or who uses a wheelchair to get around can bring new ideas to an employer such as a bank, for example. If the employer provides services to a broad clientele, the employee with a disability will be more in tune with the clientele's needs. What other employers have found is that many of these employees are very loyal and are also hard workers. They pour their hearts into their work and diversify a company's workforce. This article also shows very clearly that employers who recognize the strength of their employees and hire people who live with a disability, have reduced mobility or use a wheelchair gain a clear advantage.

The day of awareness proposed by Bill C-643 will promote all these benefits. First and foremost, it will shed light on the situation and the vulnerability of many people with disabilities and show how society in general can benefit from their integration.

I would like to reiterate the NDP's support for initiatives that foster the employment of people living with a disability and make our society even more accessible. The NDP is also a strong champion of the fight against poverty, whether it affects people with disabilities or people in precarious situations in general.

We continue to support people with disabilities and to work towards a more open and inclusive society. We also want to make our workplaces more inclusive.

I reiterate my support for Bill C-643.

The House resumed from February 25, 2015, consideration of the motion that Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day, be read the second time and referred to a committee.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

February 25th, 2015 / 6:20 p.m.
See context

Liberal

Kirsty Duncan Liberal Etobicoke North, ON

Mr. Speaker, I am pleased to rise today to support Bill C-643, an act respecting a national spinal cord injury awareness day.

I would like to congratulate my colleague, the member for Montcalm, for bringing the bill forward and for being an advocate for those living with disabilities.

Establishing a day to recognize the impact spinal cord injuries have on Canadians, the health care system, and the economy would bring awareness to this debilitating and serious condition.

Up until 2010, health officials, shockingly, had no idea how many Canadians were living with a spinal cord injury or the economic cost of the condition.

However, there was a report commissioned by the Rick Hansen Institute that revealed some startling data. I know this House will all want to, and we have heard it already tonight, recognize Rick Hansen, who became a world-class wheelchair athlete before undertaking the Man in Motion World Tour in 1985, during which he rolled more than 40,000 kilometres in 34 countries in two years raising $26 million for spinal cord research.

The report indicated that there were over 86,000 people living with a spinal cord injury in Canada, or about the same number as the population of Red Deer, Alberta. About 4,300 new cases are identified in our country each year. After speaking with Spinal Cord Injury Canada yesterday, I am informed that the number is now 96,000 Canadians. Approximately 51% of spinal cord injury cases are the result of traumatic injury and 49% are the result of non-traumatic injury or, rather, diseases such as ALS and cancer.

The report laid out, for the first time, the scale, magnitude, and cost of a spinal cord injury in human and economic terms. This was an important milestone because measuring the extent of the problem is the first step in developing strategies for preventing, mitigating, treating and, hopefully one day, curing spinal cord injuries.

Spinal cord injuries require substantial medical care. Canadians with a spinal cord injury who are admitted to intensive care units have reduced mortality and morbidity, as well as improved neurologic recovery. The average length of a hospital stay after the initial injury is 140 days, or almost five months, including critical care, acute care, and in-patient rehabilitation.

New methods for treating spinal cord injury are being studied, including surgical decompression, therapeutic hypothermia, and neuroprotective agents.

The economic cost of traumatic spinal cord injury is $3.6 billion a year, including $1.8 billion in direct medical costs. The lifetime medical costs, in the words of a recent study, for a quadriplegic exceed $3 million and for a paraplegic, $1.6 million. For Canadian families, the average cost of a manual wheelchair is $4,000 to $5,000 and the average cost of a power wheelchair is $10,000 to $15,000.

The long-term health care costs are not due to paralysis but, rather, to medical complications. Severe depression is also common among people with a spinal cord injury. Treatment for depression accounts for almost half of physician visits.

These are just numbers and do not speak to the impacts on the person affected and on the families. I cannot begin to imagine how frightening and overwhelming are the days, weeks, and months following a spinal cord injury. Everything changes in an instant and people will have many questions.

Canadians with a spinal cord injury need to know that they are not alone and that there are people and organizations that will help them through acute care, rehabilitation, and a return to the community. Canadians with a spinal cord injury need to know there are resources available to help them find the latest information on research, clinical trials, and rehabilitation techniques that may have an impact upon improved function and recovery. They need to know that there are financial resources, peer support, and organizations that can help renovate their home to make it accessible, get assistive devices to help with everyday tasks, and help them return to the community.

As a country, we can and must do more to support Canadians living with spinal cord injury and their families. All levels of government must work together to put in place essential measures to secure the right to education and economic participation. We need policies and programs that promote physically accessible homes, hospitals, schools, transportation and workplaces, inclusive education, elimination of discrimination in educational and employment settings, vocational rehabilitation to optimize the chance of employment, micro finance and other forms of self-employment, benefits to support alternative forms of economic self-sufficiency, access to social support payments that do not act as a disincentive to return to work, and correct understanding of spinal cord injury and positive attitudes toward people living with it. The member for Montcalm's bill would help to raise awareness, and this is positive.

The Urban Futures institute predicts that the number of people living with spinal cord injury will increase sharply in the coming years, reaching 121,000 in 2030. The expected increase is largely due to the aging population. Older people have more falls and suffer disproportionately from illnesses such as cancer.

I have had the honour and privilege of working with Canadians with physical and mental health challenges my whole life, and everyday I learn from them and am inspired by them. I also want to recognize the work of all health practitioners and organizations which work hard to improve the quality of life of Canadians living with a spinal cord injury and their families.

I know many of us have taken part in Spinal Cord Injury Canada's chair-leader event, during which we spend the day in a wheelchair and live first hand what accessibility really means. We learn very quickly the obstacles Canadians in chairs face. Everything is harder. It is hard to manage the chair. It does not always turn well. Getting into an elevator is hard, managing in the washroom is hard, reaching counters is hard, getting up and down Parliament Hill is really hard, and cars do not always see the chair.

The chair-leaders event is extremely important to get exposure for people in chairs, to raise awareness, to see the obstacles people face, to understand that there are financial hurdles and that we as a society must do more to help. The member for Montcalm's bill would ensure that, annually, there would be a day devoted to raising awareness about spinal cord injury.

In closing, spinal cord injuries have severe, long-term impacts. They affect almost 100,000 Canadians and their families, have far-reaching consequences, including financial hardship and caregiving needs, and the number of Canadians suffering is increasing as the population ages. The costs for people suffering from spinal cord injuries number in the billions. Spinal cord awareness would foster an environment for greater research into new treatment options. Awareness would help provide doctors with improved options for treatment.

Let me once again congratulate the member on her bill and let us all remember there is life after injury. Canadians with spinal cord injuries are active, social, and vibrant members of our communities. Let us all celebrate ability and fight for more help for Canadians with spinal cord injury and their families.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

February 25th, 2015 / 6 p.m.
See context

Kamloops—Thompson—Cariboo B.C.

Conservative

Cathy McLeod ConservativeParliamentary Secretary to the Minister of Health and for Western Economic Diversification

Mr. Speaker, it is a real honour to stand in the House today to speak about spinal cord injuries. This important issue deserves a discussion not only in Parliament but at the national level. I would like to take a moment to thank the hon. member for Montcalm for introducing this bill.

Bill C-643, an act to establish national spinal cord injury awareness day, proposes the designation of the third Friday of September each year as national spinal cord injury awareness day. At a fundamental level, this bill is about raising awareness of spinal cord injuries across Canada. It acknowledges the many challenges faced by Canadians living with spinal cord injuries as well as the critical role played by those who provide support and care for people with spinal cord injuries. It recognizes the important and significant contribution of the scientific community in improving the lives of thousands of people living with spinal cord injuries through research.

According to the final report of the national population health study of neurological conditions, entitled “Mapping Connections: An understanding of neurological conditions in Canada”, there are approximately 120,000 Canadians living with neurological conditions caused by spinal cord injuries. From this report, we also know that the incidence of spinal cord injuries is likely to be anywhere in the range of 1,400 to 1,700 a year over the next 20 years. These are alarming statistics. However, for Canadians living with spinal cord injuries, they are not just numbers.

Our Conservative government recognizes the significant impact spinal cord injuries have on the individuals affected, their families and friends, their community, and society at large. Spinal cord injuries entail enormous human, social, and economic burdens. There are staggering personal costs, including the cost of care and support over a lifetime. That is why raising awareness of injury prevention initiatives is critical. This includes the important initiatives our government has undertaken as well as those undertaken by national and regional non-governmental organizations. Reducing injuries among all Canadians, including spinal cord injuries, is important and achievable by increasing awareness of spinal cord injuries and by reducing the risks.

Who of us, in our younger days, did not dive into a body of water not knowing what the depth was? There are many risks we take, and awareness is certainly important.

Through the Public Health Agency of Canada, our government is involved in enhancing efforts to increase awareness of sports-related injuries among children and youth, which in turn will help to reduce many different preventable injuries, including spinal cord injuries.

I will give the House some examples over the next few minutes of some of the interventions that are happening.

In 2011, our government provided $5 million over two years to support injury prevention initiatives that reached Canadian children and youth in the communities where they live and play. The overall goal of the active and safe initiative was to reduce sports and recreation-related injuries sustained by children and youth, up to the age of 19, who participate in hockey, snow sports, cycling, and swimming. Through community-based activities, this investment increases injury awareness in sports and recreational activities by empowering Canadians to make safe choices for their children to reduce the risk of serious injuries, such as brain and spinal injuries.

We have recently gained a better understanding of the impact of falls on older Canadians with the release of the Public Health Agency of Canada's “Seniors' Falls in Canada: Second Report”, which was released in May, 2014. This report confirms that falls are the leading cause of injury among Canadians over the age of 65, with approximately 20% to 30% of seniors experiencing one or more falls per year. Of those seniors who experienced injuries due to falls, 8% involved injuries to the back or spine. That is a statistic I was completely unaware of.

In addition to supporting injury prevention initiatives, our government continues to support spinal cord injury research through the Canadian Institutes of Health Research. The work of its top researchers contributes to understanding the changes in neurons and support cells that could prevent and alleviate chronic neuropathic pain syndrome and could improve the recovery of limb function following spinal cord trauma or neurotrauma.

There are number other world-renowned organizations that work tirelessly toward reducing spinal cord injuries and disabilities. They advocate for improved quality of life for Canadians with spinal cord injury and continue to raise awareness of this issue. One of these organizations, which is a name familiar to many of us in this chamber and to Canadians across the country, is the Rick Hansen Foundation.

Before I speak specifically about the foundation, I would like to take a few moments to acknowledge the truly inspirational Canadian that Rick Hansen is. Although Rick suffered a life-changing spinal cord injury as a teenager, losing the use of his legs due to an automobile accident, he maintained a positive outlook. Through rehabilitation and steadfast determination, he continued to keep moving forward. Rick was involved in sports and eventually became a highly respected advocate for people living with a disability. At the 1982 Pan Am Games, held in Halifax, Rick took home nine gold medals. He was also hugely successful at both the 1980 and 1984 Paralympic Summer Games, winning gold, silver and bronze medals.

In 1985, Rick set out on a two-year journey known as the “Man in Motion World Tour”. This was a visionary quest to demonstrate to the world that people living with a disability had huge potential and could contribute to society if communities were more accessible and inclusive. This was the raison d'être for raising awareness of spinal cord injuries and disabilities in Canada and around the world.

Shortly after completing this tour, the Rick Hansen Foundation was established in 1988. In addition to finding a cure, the foundation endeavours to accelerate the progress in prevention and care of spinal cord injury as well as raising both awareness and funds to support people with disabilities.

On the 20th anniversary of the Man in Motion World Tour in 2007, our government announced funding for the foundation in support of its search for a cure for spinal cord injuries.

From 2007 to 2013, we have provided $30 million to the foundation to implement a spinal cord injury data system across the country and to support spinal cord injury research and the promotion of best practices in spinal cord injury care so Canadians affected by spinal cord injury can benefit from an improved quality of life.

The spinal cord injury registry started in Vancouver in 2003 and has since expanded across Canada. As of 2013, the registry was operational in 31 facilities in 15 cities. It is a huge accomplishment for the foundation, and our government is proud that we have played a role in its success.

Some of this funding also supported the creation of the Rick Hansen Institute in 2007, which is focused on research and care management. This institute is an independent not-for-profit organization committed to accelerating the translation of discoveries and best practices into improved treatments for people with spinal cord injury. This means that the institute leads a network of people with spinal cord injuries, researchers, service providers and other stakeholders that facilitate greater collaboration within the care and cure communities nationally and around the world. It is truly commendable work and it showcases the steadfast pursuit to achieve a world without paralysis after a spinal cord injury.

To keep the momentum going, the government announced $35 million to support some additional work of the Rick Hansen Foundation in spinal cord research.

Many other activities are currently happening, but certainly the designation of the third Friday in September as a national spinal cord awareness day would highlight these and other related commemorative events throughout the year.

Raising awareness about an issue such as spinal cord injury is a positive action. It is a simple action that can have profound effects on those living with a spinal cord injury. Most important, if we can prevent future injuries so we can turn the tide on the troubling statistics, it will be time and effort well spent.

National Spinal Cord Injury Awareness Day ActPrivate Members' Business

February 25th, 2015 / 5:40 p.m.
See context

Independent

Manon Perreault Independent Montcalm, QC

moved that Bill C-643, An Act to establish National Spinal Cord Injury Awareness Day, be read the second time and referred to a committee.

Mr. Speaker, first of all, I want to thank all the members of the House who have helped get this bill to this stage in the process. It is the product of our collective efforts and co-operation over the long haul. My esteemed colleagues are doing their part admirably.

I would also like to thank our partners who have supported us during this process and have assisted us in developing this bill, which aims to designate the third Friday of September as National Spinal Cord Injury Awareness Day. I would also like to point out that my bill is seconded by the member for Victoria.

With the co-operation of MEMO-Quebec, we concluded that this bill could be very useful, and that raising people's awareness would have a very positive impact for people living with spinal cord injuries. Many people with disabilities in my riding of Montcalm, across Quebec and indeed throughout Canada are listening to us today. They are following the progress of our debates very closely and now want to see this bill move forward. I hope we do not let them down.

This bill would make the third Friday of September National Spinal Cord Injury Awareness Day. Why the third Friday in September? Simply for two key reasons. The first is that accidents frequently occur during the summer. The third Friday of September is a time of year when rehabilitation centres in particular are flooded with spinal cord injuries.

The second reason is that the third Friday of September also has a symbolic meaning. It is the time of year when the days start getting darker. In the months following a spinal cord injury, the injured person will endure dark days that are akin to a difficult fall and a painful winter.

This is a simple and effective bill that will cost nothing and provides one more tool to those involved in helping people with spinal cord injuries and to agencies that work on prevention and raising public awareness. We do not want to ignore the many difficulties people with spinal cord injuries face, far from it. Nonetheless, we wanted to create this awareness day to get across to Canadians the terrible, irreversible consequences of certain accidents. I was never one to tempt fate and so I could not have anticipated that life would test me so harshly. Often, people with spinal cord injuries joke that we are like cats who land on their feet, that after our accidents we set the clock back to zero and started a new life with new obstacles, but also with new and very interesting challenges.

That said, I will respectfully present our bill, which we have put a lot of thought into. This bill has three components. The first objective is to raise public awareness. Spinal cord injury victims must have more encouragement to actively participate, without prejudice, in our society. The bill would also recognize the determination of those with spinal cord injuries to build a new life for themselves, as well as the dedication of the people who help them and the perseverance of the scientists whose research has improved the lives of thousands of people with spinal cord injuries. This day would also serve as a tool to help prevent such injuries, as I mentioned earlier. I will come back to this a little later.

It would be useful to look at the actual statistics. In Canada, there were approximately 86,000 people living with spinal cord injuries in 2013. There are the victims themselves but also their families and friends, who live with the disability affecting the person they love. I would like to take this opportunity to salute all caregivers who look after a person with a disability, and who live and work close to them. I recognize that the situation is often stressful or harrowing for those close to people with spinal cord injuries because they are not the ones living with this disability and do not really understand it. It is up to us, as the people with the injury, to reassure them and to shed a different light on the situation. I am not saying that this is simple and easy to do, but I believe that, in the end, we will find a certain serenity and, above all, a zest for life that is great to share. We must admit that they will perhaps provide invaluable assistance.

We now know that there are 86,000 people affected in Canada, but to that total we have to add the 4,300 people who are injured every year. We must remember that prevention really does work, and that every policy that can promote the production and dissemination of new awareness and prevention campaigns has a positive impact on the work of the people on the ground.

This bill is a step in that direction, and I sincerely hope that it will be passed.

In Quebec and in Canada, falls are the leading cause of spinal cord injuries, followed by motor vehicle accidents. That includes all-terrain vehicles. In the United States, many spinal cord injuries result from acts of violence, a cause that is almost non-existent in Quebec and Canada.

Let us look at the number of casualties based on the etiology of the trauma: 31% of injuries result from motor vehicle accidents, including all-terrain vehicles; 46% result from falls; 5% result from acts of violence; and 18% result from sports, recreational activities and other unknown causes.

In Quebec, people with spinal cord injuries are hospitalized for an average of 14 to 57 days, depending on the nature of the injury, namely whether the patient has complete or incomplete quadriplegia, or complete or incomplete paraplegia. The average hospital stay of these patients in Quebec is shorter than the national average, which is between 24 and 63 days, but longer than the American average, which is between 9 and 18 days.

Most people with spinal cord injuries are transferred to an in-patient rehabilitation centre once their condition has stabilized. In Quebec, they remain in that centre for an average of 58 to 202 days, depending on the nature of the injury. The length of stay in these centres in Quebec is comparable to or slightly lower than the national average, which is about 173 days, but much higher than in American centres, which are between 30 and 56 days.

Beyond the physical injury, people with spinal cord injuries often suffer from emotional distress. It is very common for these patients to feel hopeless at the thought of never being able to go back to the life they knew before and also feel discouraged by the many rehabilitation challenges they must face.

People with spinal cord injuries will often remember their stay in the rehabilitation centre. I thought that some of the people who worked in the centre took some kind of sick pleasure in forcing me to hear about their reality, which was not one I was ready to accept. What is more, I did not like the ironic demeanor that some of them had. Today, I understand that they were probably just trying to lighten the mood, but at the time, I found it rather unusual. After many years, I think I have heard all of the wheelchair jokes hundreds of times. I have not heard a new joke for at least the past 10 years.

Public awareness has a profound impact on how easily people with disabilities can return to the workforce. Indeed, how other people look at you is often the first change that people with spinal cord injuries have to get used to. When our neighbours, colleagues and community are ready to make a small effort to make our day-to-day lives a little easier, and when society is willing to accommodate its services to our specific needs, as modest as they may be, we will always want to return the favour. Usually everyone wins. I am not talking about charity here, although the economic factor definitely does enter the equation.

However, when an employer gives someone with a spinal cord injury a chance and agrees to a few small changes in their usual methods to accommodate a worker, that employer will have a motivated and productive worker who really wants to contribute to the success of the business that hired them and is providing support. Through such actions, people with spinal cord injuries gain the same dignity that is essential to everyone, and participate just as actively in creating our collective wealth.

Truth be told, the return to the workforce for people with disabilities can be challenging, and greater public awareness would make this process a little easier. We can improve the lives of thousands of people while also enhancing our social cohesion. That is what I call a win-win.

Coming back after a prolonged work stoppage is a huge step, and for someone with a spinal cord injury, it is an even bigger one. Someone who deliberately chooses to leave his or her job for a certain period probably has a stronger feeling of control over the situation than someone who is forced to quit because of an illness or accident. I think the reason for the work stoppage definitely has an impact on the return.

When people are away from work following a spinal cord injury, it is not true that they return to work as though they left the night before. It is easy to understand since their colleagues will continue to carry out their professional activities, look for opportunities and manage workplace challenges. People with a spinal cord injury who were gone from work for a long time often doubt themselves and do not have the same priorities as their colleagues.

We become more aware of certain aspects of our personal life and also our professional life. We have time to figure out what we really want to improve and what we want to pursue and, conversely, what we want to distance ourselves from and what we no longer want to put up with, such as a heavy workload because we know our physical condition requires extra effort and we might tire more easily.

Nonetheless, there is also a sense of personal accomplishment and self-esteem, which help a person recognize what they are good at and feel like their knowledge is still in demand. I believe that developing a talent and using it to help others is a fundamental part of human endeavour and it is really quite nice.

By creating a national spinal cord injury awareness day, we can officially recognize the courage and determination of people with spinal cord injuries. These Canadians make gargantuan efforts to be independent and regain their quality of life, and the rehabilitation of newly injured people is a remarkable feat in itself.

Each of these individuals has invaluable potential and a lot to offer, and the rehabilitation of people with spinal cord injuries is undeniable proof of strength and determination.

Dear colleagues, that is a fundamental part of our bill, which I think will help improve our society as well as do a great service to our friends, family members, neighbours, colleagues, or anyone who suffered a serious traumatic injury and is working very hard to regain their dignity and quality of life.

Furthermore, we must use this day to highlight not only the dedication of caregivers, of course, but also the dedication and perseverance of the scientists and researchers who are focused on the cause and sacrifice a part of their life and energy to find medical breakthroughs and give hope to those with spinal cord injuries.

As we know, modern science is evolving very quickly and advances in medical research provide hope for new treatments and technologies in the near future that could affect the quality of life of people living with spinal cord injuries and even provide hope for recovery in some cases. In fact, 20 years ago, who could have imagined today's medical advances?

Whether in terms of treatments, technological innovations or therapeutic solutions, there are many fields of research. Advances are being made in tandem on many levels. The wonderful techniques of the present foreshadow those of the future and open the door to legitimate hope for many.

Before talking more about the current state of research in Quebec, I have to first acknowledge the progress and achievements that have been made. I must also acknowledge the work of the people who are invested in improving the quality of life of people with spinal cord injuries on a daily basis. We have to promote research and we have to promote hope.

When I hear that advances are being made in biomedical science, I know that the quality of life of many people has been improved. The assessment of injuries is more precise, the development of tools is increasingly effective and preventive measures, procedures and treatments are continually improving.

We must promote this field of research and stimulate investment in this area. A number of foundations across the country are constantly working on finding money for research and new sources of funding.

The national spinal cord injury awareness day can help in that regard by symbolically bringing together the different organizations and increasing the visibility of their various campaigns.

This is just one of many suggestions, and I am confident that the organizations concerned will be able to make good use of this day to maximize their efforts.

This bill and the establishment of a national spinal cord injury awareness day are far from being just symbolic. This has the potential to help save lives and to reduce the number of new spinal cord injuries in Canada.

Every year, let us not waste this opportunity, which benefits everyone, as I said. This issue should never be highly partisan. We should remember that anyone can sustain a spinal cord injury.