Madam Speaker, just to confirm, now that the motion has passed regarding Motion No. 39, I lose my unlimited time and I now have a 20-minute slot. Therefore, I will have to share my time with the member for Cumberland—Colchester, even though I would have enjoyed continuing to speak to an issue that I hold very dear to my heart, which is the approval of drugs for rare diseases in Canada and how patients can get access to them. Those two words actually only appear once in the legislation.
People with a rare disease are some of the most needy patients in Canada. As I said during the debate on Bill C-213 back in 2021, the hardest medication to get in Canada is the one that is not approved and not available because the manufacturer will say that Canada is too complicated, too difficult and it is not worth its time to try to get it onto our market. That is because of all the regulatory hurdles and steps that exist that make it very difficult for patients with rare diseases to get access to the drugs they need.
We saw this with cystic fibrosis drugs for patients who were trying to get access to Trikafta. It took many years from the time when it was available to patients in America to when it was available in Canada, and it was regulatory hurdles that made it much more difficult to do so.
Now that the government has passed this gag order on the gag order, it will direct the Standing Committee on Health on how it will consider the matter.
I want to draw the attention of the House to the debate on May 6, page 23051, where the Minister of Health responded to a question from the member for Berthier—Maskinongé about the timelines and why the Liberals were limiting debate. At the time, the minister said, “ there will be time for the committee to conduct a study.” I would put to members and constituents back home that a potential 10 hours of witness testimony at a committee is insufficient time to consider this pamphlet of a bill that the NDP-Liberal coalition is pretending is pharmacare. I have read the legislation in full, so I will comment on its contents as well.
The minister went on to say, “Yes, it is important to debate. However, there is plenty of time for debate in committee and during the rest of the House process. It is time to get on with it and move forward.” With this programming motion, the Liberals have essentially ordered the MPs on the committee to only consider it for a few more hours and then send it back here. In fact, after this bill has passed, there is now only one more day left for amendments to be considered. How can amendments be proposed without hearing from officials and witnesses who might bring forward amendments that would be of value to be considered by parliamentarians on that committee? It seems this is completely backward.
I want to comment on the issue of Conservatives delaying the bill, because this is a favourite talking point now of the Liberals and their colleagues in the NDP. I want the member for New Westminster—Burnaby to pay close attention to this. The bill was tabled on February 29. I would suggest that almost three and a half years into this mandate, this bill was not a priority of the government. Second of all, this bill was considered on April 16, May 6 and May 7, three days of consideration by the House of Commons. There were secret negotiations held between the Minister of Health, because he actually said it on the record, and whichever person on the NDP side who was negotiating so they could cobble together this particular piece of legislation.
I would put to members and my constituents back home, who deeply care about patients with rare diseases like I do, that there is nothing in this particular piece of legislation for them. It is not the job of the House of Commons or members of Parliament to simply ratify a secret deal reached between the Minister of Health and the NDP negotiator or negotiators. Our job is to debate, to bring forward ideas and potential amendments from expert witnesses, stakeholder groups and individuals back in our ridings who deeply care about this issue.
I will also mention that although Quebec has been mentioned several times, there is another province that has said openly it will not participate in this pamphlet of a pharmacare plan. It is Alberta, where I am from. Successive ministers of health have said they will not participate in it. One of the talking points I have heard is that we have a patchwork system right now in Canada. Saying “patchwork” is a way to kind of denigrate the hard work of the public servants in the different provinces in Canada who work for these public insurance plans. They are all over.
In fact, in Alberta, Blue Cross is available to anyone who wants it. There are lots of different public insurance plans. There are lots of public servants who work for them, and they work very hard to make sure they cover as many Albertans as possible. My province has said no and Quebec has said no, so we still have a patchwork. Even if this bill passes, even if it were to follow through on all the principles, the highfalutin language that I hear from the Liberals and the NDP on this, there will still be a patchwork in this country. We cannot force a province to participate.
As clause 6 of the pharmacare legislation clearly states, nobody's medication will be paid for. There are separate agreements that would have to be reached with each province. It says very clearly in subclause 6(1) of the pharmacare legislation, “in order to increase any existing public pharmacare coverage”. That would suggest that every single province has to either create or drastically expand a plan or successive series of plans that are single-payer, because that is one of the principles referred to again in that section.
If a province does not do that, it cannot negotiate a deal for future medication to be covered. No medication will get covered for either diabetes or contraceptives when this legislation passes. There will be none because no agreements have been signed yet. Alberta has said no, Quebec has said no, but the patchwork will continue.
I will move on to the legislation as I do want to mention this. Like I said before in a prior debate, there is a Yiddish proverb I used after listening to the minister's speech when he introduced Motion No. 39. He seems to think that pearls flow from his mouth because when I compared his speech at second reading on pharmacare, Bill C-64, and his speech on Motion No. 39, they were almost identical.
The minister actually used the exact same three anecdotes to make the case for why this plan is necessary. In the summary of the legislation, when the contents are reviewed, it gets into a lot of areas of provincial jurisdiction. This should be exclusive provincial jurisdiction. It is starting to interfere with how the provinces manage their public health care plans.
I will mention here that nobody with a rare disease will be covered by this piece of legislation. Nobody will be covered, whether someone has phenylketonuria, PKU, whether someone has cystinosis and needs Cystagon, or whether someone has MS, which is, I would say, the most common rare disease in Canada. None of their medication will be covered. If someone's kids have a rare disease, or a family like mine has Alport's syndrome, none of their medication will be covered by this piece of legislation.
The “Funding commitment” in clause 5 reads, “beginning with those for rare diseases. The funding for provinces and territories must be provided primarily through agreements with their respective governments. Then it goes on to talk about “payments” in clause 6 and completely contradicts clause 5 because it says, “for specific prescription drugs and related products intended for contraception or the treatment of diabetes.” In fact, there will be no payment plan for anything else. There cannot be because this legislation will not do any of those things. Nobody with a rare disease will be covered once this legislation passes.
I have been, I hope, consistent in this place about rare disease patients for the past nine years. That is the focus of my opposition to national pharmacare because it will not help them. Like I said, the hardest medications to get in Canada are the ones that are not approved in Canada. All the changes the government has done to the Canadian Agency for Drugs & Technologies in Health, CADTH, as well as all of the changes made to the Canadian Drug Agency, the PMPRB and the PCPA have been repetitive. The same mistakes are being repeated here.
The government says it is going to do bulk buying. Bulk buying is already done. It is done by the provinces through the PCPA. The government has an agreement for generics as well, which are not covered in this particular piece of legislation. There is no direct reference to generics. There is no direct reference to patented medication. It does not talk about those things. It takes years to get those drugs approved in Canada.
I would put to members and my constituents back home, who have emailed me because they are all so worried about this, that this is a pamphlet of legislation. The substance will be in the agreements that may come in the future. There are already two provinces that have backed out and other provinces are considering doing the same. Why is it that, since 2019, when the government announced it was going to fund drugs for rare diseases at $1.5 billion, it has done nothing? Not a single medication prescription has been filled for anyone I know with a rare disease in Canada. That money is just sitting there. The government has only started to put out RFPs to consider creating registries for rare disease patients. Registries, not medication. Most of the money remains unspent. The government has not done anything. That is the same thing that will happen here: a series of broken promises, unkept promises. The Liberals are being helped by the NDP to do this, giving people false hope.
I tell people who enter my office that the last thing I want to do is give false hope. I have two serious rare diseases in my family. Families who have rare diseases like mine cannot wait for the government to get its act together again.