Thank you, Chair.
In the limited time, I will jump into questions. I do hope to get to two witnesses, so I ask that you keep your answers tight, if possible.
My first question is for the ALS Society. When it comes to ALS in the public narrative, I find there's a lot of focus on how difficult the illness can be for people who live with it and their families. I want to draw attention to the quality of life that people who live with it have. I lost an uncle to ALS in September. His name was Leo Duggan. He was the most interesting guy you will ever meet, and a terrific volleyball coach. He organized the Terry Fox Run in Upper South River, and he worked the horse barns in Sherbrooke Village for years. He was terrific guy and made a world of difference.
In addition to the asks you outlined in your presentation, when I talk to your local chapters, one thing is the importance of supporting the ordinary needs to help people be comfortable in their homes, and the attention—or the lack of attention—that their families give. I'm sure my Aunt Janet, for example, who was an absolute saint, could have used additional support.
Are there things that we can do to help improve the quality of life for people who continue to live with ALS and the people who take care of them?