I think the PMPRB is not set up to work with patient organizations, and they feel threatened by people when they speak up. When parents felt that there could be a barrier to their drug, they spoke up. I think you have to be prepared for that when you're forward-facing and you're changing drug policy that is life and death for people.
They were not prepared for that, and they felt it was very offensive.
I'm not condoning disparaging remarks. However, when people are feeling a sense of panic, they are going to talk to who they think is in the way of access to their drug, and that is what they did.