The other thing we need to think about here is that we need to make resources available not just in English and French. Those are our languages in Canada, but there are, as we talked about, new families coming to Canada. For example, in our case, most families who have bilateral renal agenesis come from abroad. They don't know until their baby is born at the hospital and passes away before it's born or just after it's born, because they don't have the same prenatal care in those other countries.
We should make sure that we have things available in other languages and take into consideration that these families that are coming in don't know how to navigate our health care system. We have a hard time and I was born in Canada. We need to make sure we have advocates there who can also take care of those families who are coming in and may not know how to use the system and what supports are available to them.