Absolutely, I would agree with that quote. It is hard for an individual to be the one to come forward and to say they have experienced genetic discrimination, and it's important that there be some protection for these people in that case. Right now, when we hear about these cases of genetic discrimination, there's not much we can do. We feel powerless at this point when we have given patients test results and they come back to us a year later or call us a year later to tell us about something that has happened. In some cases, we've tried writing letters and doing things to advocate on their behalf, but we feel that we just don't have a lot of power to help these people.
On November 17th, 2016. See this statement in context.