Thank you, Madam Chair.
I certainly appreciate the opportunity to once again speak to this CPC amendment. Madam Chair, this has been something else.
However, I would like to speak to this amendment. It's to extend the assessment period from 90 days to 120 days for those seeking medical assistance in dying whose death is not reasonably foreseeable. The decision to receive medical assistance in dying is incredibly complex and utterly irreversible.
An additional 30 days would add an extra layer of security to reduce the risk that someone would be choosing medical assistance in dying without proposed support or information, or because they have some other unmet need in their life. Line 8 of page 5 in clause 1 of Bill C-7 reads:
ensure that there are at least 90 clear days between the day on which the first assessment under this subsection of whether the person meets the criteria set out in subsection (1) begins and the day on which medical assistance in dying is provided to them
The proposed amendment here is that this 90-day period be replaced by 120 days. In order to legislate responsibly on medical assistance in dying, we need to ensure that every patient making a decision for assisted death has adequate time to consider their decision and weigh it against the other options for care and pain management that are made available to them.
Dr. Mimitha Tresa Puthuparampil is a family doctor from Ontario who submitted a brief to this committee which was originally rejected due to the arbitrary deadline not being communicated to the public. In this brief, and this is important, she says the following:
Moreover, 90 days is not enough time to access and take full advantage of mental health and palliative services for those not facing imminent death. At best, it is wishful thinking. I know the challenges of arranging follow-ups and referrals for my patients, and share their frustration at being told, time and time again, to wait. Time is required to help patients make such a decision; only after receiving the best of what medicine has to offer them.
According to the testimony of this doctor, in our current medical framework it is not realistic for a patient to receive the care they need within the timeline of 90 days. Physicians should always present life as a first option and providing care should be of the first priority. Access to care should always be available faster than access to MAID. At the bare minimum the timeline to access MAID and a timeline to access a proper standard of care should be the same. It would be completely unacceptable to have patients able to access MAID before they can access the care they need. As has been mentioned before in this committee, in some parts of our country it is easier to access medical assistance in dying than it is to get a wheelchair. Why is this government intent on making assisted death available so quickly that MAID is considered a higher priority in terms of this timeline than getting a disabled person a wheelchair?
This is a really neat one. A review of the Canada pension plan disability benefit showed that it takes approximately 120 days to complete the application process, leaving many people forced to file an appeal before obtaining benefits. Again, in the case of people struggling financially, it is easier and faster to receive assistance in ending your own life than it is to receive assistance for desperate financial struggles. If patients who are already burdened with the weight of their physical or financial conditions have to fight an uphill battle to choose life, yet their path towards assisted death is made easy, inevitably many more people will choose to end their lives rather than keep them.
It is critically important that our nation develops a proper standard of care that is easier to access than assisted death. This will prevent people from choosing assisted death for lack of a better care option. In regard to the need for better standards of care, the Canadian Medical Association Journal says:
Previous research has illustrated that individuals with months of high levels of disease burden (physical, emotional and spiritual/existential distress) and the convergence of certain psychosocial factors leads to depression and hopelessness and ultimately to a desire for hastened death. Providing palliative care to those who have already been suffering for months and thus end up distressed and suffering enough to request hastened death is most often providing palliative care too late.
This is an interesting one as well. It states, “This is not even to mention the substantial minority of 22.8% of MAiD recipients in the study by Downar and colleagues who apparently had no palliative care involvement whatsoever at any time before medically assisted death.”
Bill C-7 seeks to expand access to medical assistance in dying to those whose death is not reasonably foreseeable and, in accordance with the statement made by this doctor, we should seek to be as careful as possible with these safeguards.
The Council of Canadian Academies medical experts panel wrote an opinion column for CBC news on “Why the federal government should rethink its new medical assistance in dying law”. I don't believe this has come to this committee yet, so that's why I'm bringing this forward, Madam Chair. It speaks directly to this amendment:
For people whose death is not "reasonably foreseeable," the bill introduces an assessment period of 90 days, combined with an evaluation of eligibility by a practitioner with expertise in the patient's condition. These measures are meant to ensure that people with disabilities and chronic illness are informed of other available treatments or support options outside of medically assisted dying. But unlike any other country in the world, the new bill fails to explicitly require that all reasonable options be made available and tried first, before allowing physicians to end a patient's life.
In other words, the bill makes their dying easier than living. Rather than instilling hope and helping to build resilience by focusing options for living, health care providers will now be asked to discuss an early death.
That speaks specifically to the 90- to 120-day reflection period.
Further, it goes on and points out in a portion of the article that one of the problems with the current medical assistance in dying framework in Canada is how it creates two classes of Canadians. For young and healthy Canadians, suicide is discouraged. We put a great deal of emphasis on and effort toward suicide prevention, and rightly so. There are suicide help lines, mental health care, support groups and a lot of other resources to keep Canadians alive and help them work through the struggles they are facing.
However, the easy access to assisted death in Canada has the potential of making vulnerable and disabled Canadians feel that their lives are of less value than those of other Canadians. The reason for this is that when they feel suicidal, those thoughts are affirmed to them, and they are presented with assisted death as a viable and good option to relieve them of their pain and their struggles.
In other words, when some Canadians confront temporary suicidal ideation, they will receive suicide prevention. When other Canadians confront temporary suicidal ideation, what Canadians living with disabilities are asking us is the following: Why do some receive suicide prevention while other people receive suicide facilitation? Isn't that something that is communicated about the social and political views of the value of certain people's lives if they are in the category that is offered suicide facilitation?
Further on, and specific to this amendment, we have to recognize that choice is exercised in a social context in which people choose between the realistic options that they have lived and experienced. How is it autonomy when people may not be able to access care before the end of the 90-day timeline? That is why we need to, at a minimum, give people that space of 120 days so that they, at the very least, have the real option of real care put in front of them.
Dr. Harvey Chochinov, professor of psychiatry and family medicine at the University of Manitoba, was one of the witnesses this committee brought forward, and we had the pleasure of hearing from him. He completed a study on terminally ill patients who will live to the end of their lives.
According to The New York Times' coverage on this report:
[The doctor] and his colleagues studied 168 cancer patients admitted to the hospital for end-of-life care. The patients were screened to make sure that they had the mental competence and the physical strength to participate in the study, which involved filling out a questionnaire twice a day—
There's very important information coming up here, Madam Chair.
—a process that [the doctor] said took about a minute—and continued until shortly before death. The participants were asked to rate themselves on 100-point scales measuring pain, nausea, appetite, activity, drowsiness, sense of well-being, depression, anxiety and shortness of breath. They also rated the strength of their will to live.
...Over a 12-hour period, [the doctor] said, the patients' will to live could fluctuate by 30 percent or more. Over a 30-day period, the shifts were even larger, on average up to 60 percent or 70 percent.
“These large fluctuations suggest that will to live is highly unstable,” the researchers wrote.
The study goes on to speak about the very objective that—