Sure.
I started having symptoms of endometriosis as a teenager, but because there's very little menstrual education in schools about what's normal, I didn't really know that my symptoms were abnormal. And that's the case for many people with endometriosis, they're just not aware that the pain that they experience with their periods, other pelvic pain throughout the month, gastrointestinal symptoms, bladder symptoms, fatigue, these things can all be a part of endometriosis. As teenagers, you don't know what's normal, there's a big taboo and stigma associated with talking about any symptoms that are associated with menstruation, so that prevents teenagers from coming forward. I never really spoke about that when I was a teenager.
I went to university, I started graduate school, I was doing my Ph.D. in medical genetics, so I was in a biomedical field and I still had never heard the word “endometriosis,” which is shocking in retrospect, but kind of not, because it's just not a topic that's generally understood or talked about. During graduate school, I realized that being debilitated for one week a month wasn't something that could move forward with me as an academic researcher, so I sought out other career options for myself.
After I was married, I wanted to have children, and my husband and I started trying to conceive and I ended up having recurrent miscarriages. I had six miscarriages with no known cause at the time; I still did not have an endometriosis diagnosis, although I'd started describing my symptoms to doctors. I saw five different gynecologists, and nobody gave me a diagnosis of endometriosis. I continued having miscarriages, nobody could explain why. Eventually, I had a very large endometrioma, which is a lesion of endometriosis on the ovary, and that was visible by ultrasound, which is how I ultimately got in to have surgery, confirm the diagnosis of endometriosis and treat the endometriosis at the same time.