I'm going to give my answer in English, if you don't mind.
Globally, there is a tension between how to ensure we have effective oversight and privacy of data, especially human patient data, and the recognition that bringing that data together allows us to find the treatments, diagnostics and so on that so many patients need.
Best practices are still being developed, but we actually have a wonderful organization based here in Canada called the Global Alliance for Genomics and Health. It is an international organization that sets standards for how to effectively share data across jurisdictions while protecting those privacies.
Generally speaking, there's a bit of a combination between federating that data so that the data are being held in different locations, often at a provincial level when it comes to hospital data and so on, while at the same time recognizing that some data needs to be combined, and identifying the set of what we call "minimal metadata". This is patient data that ideally won't identify individuals but can be used to make the data more useful.