Mr. Speaker, Jacob “Jake” Daniel Edelson passed away in his sleep on March 24, leaving behind his mother, Miriam, his father, Jim, his sister, Emma, and thousands of people who knew him and were touched by him.
In his 13 years of life this young man made a huge difference in the world. He was born with lissencephaly, a condition which presented challenges every hour of the day to his caregivers, his loved ones and of course, to Jake himself.
His mother, Miriam, fought fiercely and publicly for quality care for her son and for recognition of his rights to a dignified life. She spoke out for the need for strong public policies that support families of children with special needs.
Last summer Jake had his bar mitzvah and it was a jubilant occasion for all who attended.
Last weekend his sister, Emma, and his mother visited Jake at Susie's Place, his home away from home, the excellent group home where he lived in Belleville, Ontario.
Jake gave back so much to the world around him. Today in the House we wish to celebrate his birth and his short precious life.