moved:
That, in the opinion of the House, the government should create a national strategy for autism spectrum disorder that would include: (a) the establishment, in cooperation with provincial governments, of national standards for the treatment of autism spectrum disorder and the delivery of related services; (b) the study, in cooperation with provincial governments, of the funding arrangements for the care of those with autism spectrum disorder, including the possibility of transferring federal funds to assist provincial governments to provide no-cost treatment, education, professional training and other required supports for Canadians with autism spectrum disorder without unreasonable wait times; (c) the creation of a national surveillance program for autism spectrum disorder to be managed by the Public Health Agency of Canada; and (d) the provision of funding for health research into treatments for autism spectrum disorder.
Mr. Speaker, first, let me thank the large number of people who have aided in my understanding of this issue. They are parents, community activists and autism support workers. They are Canadians concerned about something that is unfinished business for Canada.
This is a moment when the national government can step up, accept responsibility within the context of its own authorities in this Confederation, and show leadership on this issue. This is a very rich country and, as such, we can no longer afford to look the other way in terms of this rather outrageous limitation of what is available through the public health insurance program in Canada.
I understand there are jurisdictional limitations to which we have to attend, but within that there is an opportunity to show leadership on this file, to work with provinces, to encourage them and incent them to deal with those areas, such as research and evidence-based public policy and standards.
The motion appeals to the government to show that leadership and to Parliament to ask the Government of Canada to do that. The rationale for this is relatively simple and stunningly inconsistent with my view of my country.
The reality is when parents are told their child, at 18 months old, has been diagnosed with autism spectrum disorder, depending upon how profound that condition might be, the effect on the child for the rest of his or her life could be incredibly limiting. Then they are told that there are treatments, therapies and things that can be done, but they are expensive. They may cost them their house. It means that somebody probably has to stay at home, which may cost a parent a job.
This is unacceptable in a country that prides itself on its public health care system. We have to move on this, and the Government of Canada can show leadership on this issue.
I am former assistant deputy minister of intergovernmental affairs with the province of New Brunswick. I understand the jurisdictional issues, but we cannot let those jurisdictional issues get in the way of doing what we know to be the right thing as a national government for Canadian citizens.
I became most aware of this as the member of Parliament for Fredericton. I have a military base at CFB Gagetown. When members of the forces were transferred to New Brunswick, if they happened to have children who were diagnosed with autism, they would call me to say that they needed to get back to Edmonton or some other place in the country. As a parliamentarian, as somebody who feels an obligation to those military personnel who serve our country, I was concerned. However, I was also concerned as a New Brunswicker. What does that say about everybody else who lives in New Brunswick, who would wish to have those services that are better provided in other places in the country?
The other thing that has been revealed to me is all the treatments and therapies available. It is a spectrum disorder so I do not think we can get caught in a narrow debate about this one or that one. The reality is there are things out there at which we need to look. There are things available today that work and they need to be supported by the government so they can be used by parents and families.
I like to see this as a rights issue, something that we do because it is the right thing to do. However, if I cannot convince everybody to do it for that reason, just think about the long term costs of not doing intervention early and now. Think about what that means in terms of the life of that individual and the role the state will have to play. If it is not enough to simply speak to the rightness of this issue, then we should realize that the state will carry a tremendous cost if we do not do the right thing early.
In putting forward a motion to Parliament to appeal to the government, the process I envision would be the national government would recognize that medicare formularies are the jurisdiction of provincial governments. The national government could work with provincial governments, on behalf of Canadian citizens, to advance this issue, with the ultimate objective being that the treatment and care of Canadians with autism would be covered under medicare.
We cannot do that from here and we accept that. However, we can show leadership, offer incentives, do the research and establish surveillance so we can do good evidence-based public policy. Those are all things that are clearly under the purview of the national government. Until we do those things, we really do not have any right to expect the provinces to do the right thing. When we do those things, then we will have a stronger moral position on the other issues.
Again, I want to ensure that it is understood. I know this will be a difficult issue for the government to deal with because of the jurisdictional issue. That is an understood aspect of this debate. I do not think for a second that should allow the national government not to do the things within its purview. It will make it more difficult for the provinces to say no. More optimistically, it think it will encourage the provinces to do the right thing as well.
I would like to thank a number of people. The seconder for this motion, the member for Sackville—Eastern Shore, has long been a champion on this issue. In fact, when my bill was drawn in the process earlier than his, he offered me the opportunity to put this forward so it would be a votable motion, and I appreciate that.
I appreciate the many meetings I have had with representatives of the government. I believe the government genuinely would like to find a way to get this done. For those who watch this place, sometimes not operating at its finest, maybe we can come to a conclusion that would demonstrate just how well this place can work when something calls out to be fixed.
I was asked to read a letter by a constituent in my riding, who is in the armed forces. His name is Brian Rimpilainen. He is from Fredericton. He and his wife Tracy have two kids, a four year old and an eight year old, who has been diagnosed with autism. This was specifically written by him. He stated:
The birth of a child is both joyous and trying at times, but at the age of 3 yrs came the crushing blow of an autism diagnosis for our oldest boy. Overwhelming and frightening was the situation we were thrust into. With reason comes questions— What to do?—What information can we find to educate?—What treatments?— WHAT HELP?
Well, there is ABA (Applied Behavioural Analysis). At our own expense, we sought the guidance of Dr. Paul McDonnell and a therapist. 40 hrs/ week is the recommended therapy which is not always possible for some families. We learned the basics of ABA—we did the best that we could. Later, some assistance came—but too late for our son—he was already entering kindergarten. Tracy was fortunate to have the opportunity to be certified as an ASW (Autism Support Worker) at the University of New Brunswick's College of Extended Learning.
We know that we were blessed to have been given an autistic child—we celebrate the joys of both our children's successes and embrace the hardships/headaches of autism. But what now?— What more can be done?—What will happen when Tracy and I are gone? Will my son be taken care of in his adult years?
I see the heartache of parents who relocate to find services for their autistic children. Shall we all move to Alberta where services are enviable? As a member of the Canadian Forces I have contemplated the possibility of a posting. What services will be available? How will the move disturb our children's balanced life?
I see that there is research and training that could be done. The school-aged autistics need the help of trained Teacher's Assistants. “Inclusion” is not the answer for all autistics, some require one-on-one instruction, some flourish with the social interaction of peer mentoring. I question why all autistics across Canada can't get the same level of services within reasonable wait times. Stress and hardship in the autistic family leads to a higher than normal divorce rate: the mother becoming the primary caregiver.
With such a high prevalence rate we must act now. Does it not make sense to invest in trying to facilitate the ability of autistics to achieve their potential as productive citizens? The alternative is an immense cost to society in long-term care. AUTISM does not discriminate, it does not wait, it does not stop at age 6. As a father/ parent, all I can hope is the recognition, dignity, and security for our children as citizens of Canada.
For Brian and Tracy, their story tells the story. I do not know how we can turn our backs on the thousands of Canadians who can tell that story.
As a Parliament, we need to recognize our responsibilities. The Government of Canada needs to show leadership in its dealings with the provinces. It should be respectful. It should not pretend or grandstand. I am not grandstanding. This is something that needs to happen. In this place we have the opportunity to do that. We have the opportunity to show the leadership, to do the research, to make money available, to do the surveillance and to do good evidence-based public policy to ensure that parents know what treatments are working, where they are, who does them and so on. That is critically important.
Also, I thank a Grade 12 political science classroom in Fredericton. Last year the classroom, which graduated in June, took on the project. The class this year has picked it up. The students are writing to members of Parliament. I am sure all members have received letters. These kids have brought in parents and professionals. They had somebody in who drafts legislation for the Province of New Brunswick. They have committed themselves to this. Their teacher is an amazing teacher, by my thinking, and these kids are absolutely committed to this. In fact, I suspect right now there is a full class taking a look at this.
It really speaks to making this place work for Canadians. They are watching. They would like to see this happen. They have put a lot of time in it. They understand the science. They understand the implications for parents and their families.
At the end of the day, I do not think there is anything else to say. In a country with this kind of wealth, and Canada is a wealthy country, and in a country that takes such pride in our public health insurance program, as Canadians, regardless of jurisdiction, we need to step up and say this is wrong and it needs to end. People who need this service have a right to expect their government to pay for it.
