Mr. Chair, it is not exactly a delight, but I am really pleased that we are having this very important debate tonight.
Organ donation is not what typical Canadians are running around thinking about, especially at this time of the year. They are busy working, some of them two or three jobs. They are busy trying to get ready for Christmas, looking after their children. Normally this kind of conversation does not enter our households unless we have a family member or a friend who is impacted.
For 4,000 Canadians who are waiting for an organ transplant to save their lives, tonight's debate is very critical, not only for those who are waiting for the organ transplant but for every member in the family and for all the friends. Therefore, the circle of concern widens.
For many of us, as we listen to the debate tonight, it brings home to us the importance of us shining the light on this issue. Who knows, one of us may need an organ transplant one day. We would never wish that on anyone, but we never know. That is the kind of conversation we need to have.
Canadians are very generous and very giving. I am very proud that in Canada we do not allow the sale of organs for transplants. We have a lot to be proud of. Despite that, there is no incentive, but the incentive that exists is the one of giving that comes from the heart, and Canadians give. We have to find a way, not just in Parliament, but at every dining room table, at every water cooler, at every coffee stand, all over the country, where people are consciously having a conversation about organ donation.
I heard a colleague mention earlier that years ago there was a form we filled in and there was a mark on our driver's licence. We knew that we had time to think about it.
However, when we look at how many people are waiting for organ transplants and how many are actually performed each year, only 1,803 were performed last year and many people were left waiting. They go into the evening and their families never know if their loved one is going to make it to the next day, or to the next week. It is that kind of angst that we need to have a discussion about, because it is only when people hear about the real stories that they are then moved. That is how Canadians are. They hear of a need and they will rise to the occasion.
I must be honest that I am always in absolute awe of those who give one of their organs, for example, a kidney, while they are still alive. It always brings tears to my eyes because I cannot think of a greater sacrifice one would make for a loved one, or a stranger or a friend than to give one's organ, not knowing what the future holds in store.
When we look for heroes in our lives, those people are true heroes. With a bit more education, there would be more heroes. I remember a few years ago there was the case of a very young person needing a kidney and people from all over were phoning in, emailing, asking to be tested to see if they were compatible.
I think that kind of generosity will occur once people get engaged in this conversation. When the light is shone on the real impact on the lifestyle of that person who is waiting and the impact it has on his or her family, it moves people. It is going to move them far more than technical reports and appeals from politicians, even parliamentarians. Most of them are not going to be moved by us. We can shine the light on those stories. We can send communication out and we should.
However, at the end of the day, what moves Canadians to give is when stories touch their heart. That is one aspect of what we need to do. The other aspect is the absolute need for an integrated, coordinated national registry, not only of the donors but the recipients who are waiting for an organ as well.
I absolutely agree there needs to be some form of an independent panel that makes the determination if a kidney becomes available and there are six or seven people who are a match. I would not want to make that decision. It should not be made by a roll of a dice or by who made the first phone call.
Those people need to be skilled, to have the medical knowledge and the expertise so they can make the determination, giving it to the person who is the most needy at that time. We are going to get into the situation where six or seven people match and there is only one kidney. That decision has to be made. I would hate to see those kinds of decisions being made by who got an email in first. That is not how this should be.
We are not talking about widgets, or buying flowers or buying groceries or a TV set. We are talking about a life-giving organ. Because of that, I would really want to there to be some very tight guidelines.
All of us have stories of people in our lives who have waited for organs or who suffer some form of kidney failure and need dialysis. I have a very dear friend, and I do not know how she has managed over the last great number of years, going in, having dialysis and getting right to work. She is leading a productive life, supporting her kids, while all the time she is waiting for a donor.
I think this is where I absolutely agree that we do have a role as parliamentarians. We all do have outreach. We all connect in our communities. It is something we can do to create and encourage space for these conversations to occur. These are not the kinds of conversations that are Twitter friendly. These kinds of conversations have to be much deeper.
When I go home and sit down with my grandchildren, it is a conversation I want to have with them. By having that conversation with them, they will then start to think about this and will have that conversation outside as well. If all of us were to commit to start that circle of conversation and watch that circle grow, it would be great. We are going to have an opportunity to go to so many events.
I would not really recommend, if members are out for at Christmas do and somebody is about to toast, merry Christmas or happy new year, that they say “Stop, let us talk about organ donation”. We all know we have to find the right moment, and we will all do that.
There is a quote from the Canadian Blood Services that I would like to read into the record. It states:
Canada is one of the only countries in the western world without a national, coordinated system for organ and tissue donation and transplantation...The system as it stands today is at capacity, and is struggling to cope with current needs and projected future demand.
It is really important that even though health care is a provincial issue, and we all know that, that organ donation in Canada also has to be a national issue, coordinated with the provinces. We have a huge country with a huge geography, but we have a very small population. When a country has a very small population, a national strategy becomes really critical.
I would invite all parliamentarians, as they go into their communities, to look for spaces to create this conversation. Let us have the will here to have a national registry.