Thank you for inviting me to speak. I'm going to talk about it a little more personally—what in the past has caused people with disabilities to be where we are. Nothing has really changed.
I'm the chair of the Stratford advisory committee on accessibility issues. We're an advisory committee that recognizes the needs of persons with disabilities in Stratford and makes recommendations to the city council. We have had many discussions about poverty, affordability and accessible housing.
I want to begin by sharing my story, as it is relevant to my views of this bill.
Forty years ago I was at Humber College studying engineer technology—a good future—but after my second year, in the summer, I dove into shallow water, broke my neck and became a quadriplegic for life.
While in rehab, a number of men had begun planning to incorporate subsidized, accessible housing units with Metro Toronto Housing so that they could move out of the rehab centre and into an apartment. Before this, there wasn't any assisted living, wheelchair-accessible housing in Toronto—or anywhere else, for that matter. This was groundbreaking. Because the board majority was over 50% persons with disabilities, it was consumer controlled. In other words, we had the decision-making in terms of what was being done in that building.
I lived on family benefits, which is now called ODSP. It was $900 a month, and the rent subsidy was $200. This left little for gas and groceries, insurance, etc. It's not much different from today.
I returned to school, but as a rehabilitation worker, and I got a job at the Centre for Independent Living. My job was to help persons with disabilities and their families find funding for equipment, housing and government grants, and to communicate their needs to the government.
The ILC is also a consumer-run organization. I had a one-year contract, and I made $20,000 to start. I threw away all my opportunities to stay on the security of government funding, and instead I went it alone. It was only a one-year contract, and after 11 years—it went on and renewed regularly—I had to go on long-term disability due to syringomyelia. The insurance company paid 70% of my long-term disability, plus CPPD, but it would not pay any benefits because there were too many people working at the organization who were at high risk to go on disability. My benefits cost thousands of dollars.
I've had a disability for 40 years. I raised my son by myself, starting when he was a teen. It was hard to make ends meet. I know a lot of persons with disabilities from work, wheelchair sports and committees. In the 1990s, it was the UN Decade of Persons with Disabilities. It was supposed to be a celebrated time. Vancouver put on a world show, and everybody was invited. It was supposed to change the world with regard to disabilities, start providing regular funds and the things we need, and recognize people with disabilities as human beings.
It was 1990 when the Americans with Disabilities Act came in. We thought for sure that Canada was going to come up with one. It didn't happen. As a matter of fact, halfway through the 1990s, the government lost money. It didn't prepare for this. It had no money left over. By 1993 or 1994, it ran out of money, and all the funding was cut. I was the one who was taking the calls and trying to tell people why they were cut. I had to do it, and I couldn't explain, other than the failure of the government. It didn't prioritize people with disabilities. It didn't care.
Now is it different? I don't know. I don't think it's much different. I know friends of mine who have gone to MAID. My best friend went to MAID. He was the first one to go to MAID. I didn't want him to do that. I know a guy who starved himself to death for two years because he couldn't stand living in the conditions: no money, nothing to do and no ability to really enjoy life whatsoever. He passed away, and I know many others who passed away. Then, when we got the one-time $500 payment for COVID, it demonstrated a total lack of understanding of the costs we incur. I get a cheque now, and it sounds good, but the problem is that I have no benefits. The benefits I need are thousands of dollars. Many others are on different conditions. The way to set this up is going to be so difficult. You have to really think about who needs it, and you're going to have to look at very diverse ways, because not everybody's the same.
People on ODSP are different from me. They get the benefits; I don't. Everything's different. Twelve hundred dollars a month is absolutely no way to live.
Bill C-22 is for the “working-age” disabled. I'm not crazy about that. I've advocated for persons with disabilities since I was 22. I'm now 61, and the projection for this bill to come into effect is approximately 2024. I'll be 64, which is one year away from retirement and being cut off from any part of this.
Why do we suddenly stop being disabled at 65? Bill C-22 needs to include those over 65. Our costs are still high, and we have no ability to save for retirement.
I'm in Stratford and I'm very happy here, but we are a rural community. There are higher transportation costs and extremely high housing costs. Very few houses are accessible, if any. There's one supportive housing unit for the physically disabled, and the building condition...is in dire need of repair.
We also have a homelessness problem due to mental health. Many in Stratford have a disability, whether physical or intellectual, or have mental health issues. It will be a challenge to achieve equity. Stratford is expensive. Many rural areas are very expensive. Toronto is expensive, but they all have different expenses and different needs.
I hope Bill C-22 will be very quickly delivered, but it has to be expanded for the age; it has to be equal to the needs of the people, and it has to not leave anybody out. More importantly, it needs to be delivered with input from persons with disabilities.
Thank you.