Evidence of meeting #125 for Human Resources, Skills and Social Development and the Status of Persons with Disabilities in the 42nd Parliament, 1st Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was bereavement.

A video is available from Parliament.

On the agenda

MPs speaking

Also speaking

Moire Stevenson  Psychologist, MAB-Mackay Rehabilitation Centre, As an Individual
Susan Cadell  Professor, School of Social Work, Renison University College, University of Waterloo, As an Individual
Karima Joy  Ph.D. Candidate, Dalla Lana School of Public Health, Social and Behavioural Health Sciences, University of Toronto, As an Individual
Mary Ellen Macdonald  Associate Professor, Pediatric Palliative Care Research Program, McGill University, As an Individual
Alexandra Lihou  Registered Clinical Counsellor, Reproductive Mental Health Program, Royal Columbian Hospital, Fraser Health
Blake Richards  Banff—Airdrie, CPC
Elizabeth Cahill  Committee Researcher
Matthew Blackshaw  Committee Researcher
Gordie Hogg  South Surrey—White Rock, Lib.

8:45 a.m.

Liberal

The Chair Liberal Bryan May

I call the meeting to order.

Good morning, everyone. We're going to get started right away this morning. We do have a busy morning, and there is a chance that we're going to get interrupted.

Without any further ado, pursuant to Standing Order 108(2) and the motion adopted by the committee on Tuesday, September 18, 2018, the committee is resuming its study of supporting families after the loss of a child.

Today the committee will be hearing from witnesses and will deal with some committee business a little bit later.

I want to introduce all of the witnesses here today. Appearing as individuals, we have Susan Cadell, professor, school of social work, Renison University College at the University of Waterloo. Welcome to you.

We have Karima Joy, Ph.D. candidate, Dalla Lana School of Public Health, social and behavioural health sciences, University of Toronto. Welcome.

We have Mary Ellen Macdonald, associate professor, pediatric palliative care research program, McGill University. Welcome.

Coming to us via video conference from Montreal, we have Moire Stevenson, psychologist, MAB-Mackay Rehabilitation Centre.

You can hear me okay, obviously.

8:45 a.m.

Dr. Moire Stevenson Psychologist, MAB-Mackay Rehabilitation Centre, As an Individual

Yes.

8:45 a.m.

Liberal

The Chair Liberal Bryan May

Also appearing here in Ottawa, from Fraser Health, is Alexandra Lihou. Ms. Lihou is a registered clinical counsellor in the reproductive mental health program at Royal Columbian Hospital. Welcome.

Thank you very much, all of you, for being here today. We're going to start with opening statements of seven minutes each.

First up, we have Susan Cadell. Seven minutes are yours.

8:45 a.m.

Dr. Susan Cadell Professor, School of Social Work, Renison University College, University of Waterloo, As an Individual

Thank you very much.

First of all, I'd like to say that I am very grateful for the work of this committee and that I'm honoured to be here today to present some of my work.

Let me introduce myself. I am a social worker by training. I have a number of years in family practice—in family counselling, including grief counselling. Now I'm an academic with a research program in death and dying, and grief and loss, for 20 years. I'm one of the few social work researchers in Canada in pediatric palliative care, and I have an association with Canuck Place Children's Hospice in Vancouver. I'm a wife and a mother to three adult children.

I have never experienced the death of a child. My research work in grief, however, began after my own experience of numerous friends dying of AIDS.

The first point I want to underline is our changing understanding of grief.

My social work education included absolutely nothing at all about grief and loss, death and dying. All my training and understanding has come from my own research and the collaborations in which I've been involved.

We now acknowledge in the field that grief does not end. There is still the popular notion that there are some stages involved in this, but that's largely been debunked. Grief is about relationship, and it's the price we pay for loving. When someone we care about dies, our relationship with them changes; it does not end. The work of grief is making that transformation. Now we talk about continuing bonds, not severing or detaching. There is no timeline. Grief can and does resurface months and years after a death.

Death is a part of life. Hospice palliative care is a philosophy of care that includes the notion that death is a part of life. Many of us do not like to talk about death and dying, and by consequence, grief is often stigmatized. Grieving is difficult. Grieving is difficult when someone close dies. Grieving is difficult when that death defies expectations. For the most part in this country, we expect that as adults and parents, children will outlive us.

Grief can be supported when it is acknowledged. This is often not the case, because people don't like to talk about death and dying. This makes grieving harder when the griever encounters people and systems that do not understand what the griever is going through. Supporting grief does not mean making it better. Grief is harder when it is ignored by those around us. Supporting grief means acknowledging that there is nothing that does make it better.

We often think we should no longer talk about the person who died. While this may be true in some cultural contexts, for the most part the participants in various research projects that I've been involved in are clear that they feel unsupported when people ignore their grief and do not talk about the person who died. Talking about the person who died, whatever the age or relationship, does not make grief harder.

The next point I want to underline is the idea of the worst kind of grief.

The grief literature is full of the notion that parental bereavement is the worst kind of grief, and I want to say that I'm guilty of this. If you look at some of my publications, I have written that.

Over the years, in my practice and research, I've come to realize that this creates a hierarchy of grief that is a disservice to everyone. Especially in a context in which we are uncomfortable with death and grief, a hierarchy of grief only distances grieving parents even more. People often feel afraid of grieving parents and are afraid of saying the wrong thing.

In my head, I have the voice of a research participant. She told me a story about seeing someone she knows crossing the street to avoid her when she was a bereaved parent.

We need to be careful not to perpetuate the notion that some kinds of grief are worse than others. Grief is very personal and individual. When we talk about kinds that are worse than others, we make it harder for people and systems to support them.

Telling the story matters a lot. I have a good friend—and we collaborate on a current research project—whose son died 16 years ago at 22 weeks of pregnancy. I've heard her grief story many times, but in preparing for today, I realized I had never heard the part about going back to work, so I called her and I asked.

She said two things that stick with me particularly that I'm bringing here to you. One was that she repeatedly had to navigate the system of unemployment insurance. She had to tell her story over and over again to various people numerous times. She felt that they were all cold. Her wish was for a system that, upon hearing of the death of a child, would immediately refer the person seeking services to an individual or a specific service where the people are qualified to listen, to support, and to help navigate the system.

When people participate in research, they're choosing to tell their story. Our participants often feel validated in doing this. The choice of telling can be therapeutic when it is received in a supportive context. The need to repeatedly tell one's story to a person or people is unnecessary and potentially cruel. The key here is choice. Grieving parents need to be given choices. Even when something needs to happen, they should be able to choose the timing of it. In an ideal system context, this would involve the parents choosing appointment times to deal with necessary tasks and built-in flexibility in the system so that if they just couldn't possibly do it that day, in an unexpected way, then they could reschedule.

The second point my friend brought up to me is that even though she got her maternity leave sorted out, there was nothing for her partner. His only option was to request sick leave through his doctor. In grief, many people are left behind in our society. In the context of the death of a child or infant or pregnancy loss, husbands and partners are often forgotten. Fathers grieve too, and they need support.

Siblings are also forgotten. There are often other children—before or after—and sibling bereavement has lifelong consequences. Grandparents are also sorely neglected. Grief sends ripple effects through families and communities for years.

I want to close by saying that I think the motion I've read about and the proposed changes are definitely a step in the right direction. Grief is being acknowledged, as is the recognition that a system can support when the people working in that system are also prepared with the skills to do that. But I see this as only a first step. I began with the notion that death is part of life. Bereavement in general needs to be better recognized and supported in our society. We need public education as well as skills development for those in the systems of government.

I commend you on this first step, and I thank you for this opportunity to present to you.

8:55 a.m.

Liberal

The Chair Liberal Bryan May

Thank you very much.

Up next we have Karima Joy, a Ph.D. candidate at the Dalla Lana School of Public Health in the social and behavioural health sciences division at the University of Toronto.

8:55 a.m.

Karima Joy Ph.D. Candidate, Dalla Lana School of Public Health, Social and Behavioural Health Sciences, University of Toronto, As an Individual

Thank you for inviting me today and to Blake Richards for Motion 110.

As mentioned, I am a Ph.D. candidate at the University of Toronto. I have a master's degree in social work and am a registered social worker. I hold a Joseph Armand Bombardier Canada graduate scholarship. I am also a parent. I have not lost a child to death.

My dissertation topic—which, to be clear, is in the early stages—is about how bereavement experiences in Canada are accommodated in federal and provincial legislation and workplaces, with a focus on those in precarious employment.

I have experienced the life-shattering grief that comes from love and loss. In one instance, I found myself caregiving for my then-partner's family after his dad's sudden death from pancreatic cancer. Unable to negotiate a leave from my contract position, I left my job for four months to care for the family, entering a precarious situation with my employer. I did not have the capacity to think clearly or consider my financial or career consequences.

Stung by feelings of helplessness at the lack of resources and support, I was motivated to learn about how to better prepare for bereavement. I have now worked for a decade in the bereavement field, including for a suicide loss survivor program in Toronto and Bereaved Families Ontario-Toronto, an agency that for the last 40 years has been dedicated to supporting families grieving all types of losses. Witnessing how underfunded and overburdened these agencies were, I was moved to study bereavement academically to explore the macro forces impacting these circumstances.

I have completed an extensive review of the academic literature and found that the scholarship in this area mainly explores psychological or therapeutic aspects of grief, which does not adequately capture the role of social, economic and political factors that shape the space allotted to accommodate these experiences. However, this is changing, and attention is increasingly being directed to the context of bereavement.

The best Canadian study on this topic that I have come across is by Mary Ellen Macdonald, Susan Cadell—who are here today—and their colleagues. In it they compare and critically analyze Canadian and international bereavement legislation. One important question they ask is why other leaves—parental, maternity and compassionate care leave—are offered generous provisions, but bereavement leave is not. Their answer is that grief is not considered labour or a public good, an attitude that needs to be challenged as it communicates to Canadians that their grief is undeserving of attention and support, forcing people to suffer in silence.

Bereaved individuals often feel pressure to return to work and resume productivity. Prematurely returning to work may restrict some employees' grief experiences, negatively impacting their well-being and mental and physical health. Presenteeism can affect workplace productivity and costs more than absenteeism, meaning that returning to work does not signify that bereaved employees are ready to resume full functioning. Consequently, workplaces may face an increase in sick leaves, lower quality and quantity of work, and lower employee morale.

There is a lack of accountability or funding for bereavement, as it is not under the mandate of any Canadian health system, professional association or government jurisdiction. Alternatively, the American Hospice Foundation argues that offering bereavement programs and flexible leave arrangements leads to improved employee morale and a decrease in sick leaves and staff turnover.

Some employees have access to more generous leave, depending on their employer and labour arrangement. However, those in precarious employment—a work arrangement that offers limited job security, stability or protections—may be more vulnerable to bereavement, given that they have little or no access to standard benefits, facing concerns that taking leave would threaten their job or financial security. In Ontario, for example, precarious employment is increasingly the norm for workers across demographic categories, impacting everybody. Faced with funeral expenses, unpaid time from work, or job loss, individuals in precarious employment may be forced to choose between grief and poverty. Therefore, I want to caution that if EI is the chosen mechanism for a bereavement benefit, there may be a significant and vulnerable group who will not qualify, putting them at risk for further marginalization.

In my notes, I included an appendix—and I don't know if you have access to it—of the Canada Employment Insurance Commission's “2016/2017 Employment Insurance Monitoring and Assessment Report”. It illustrates how large some of these groups are that may fall into the gaps of not being covered by EI.

For my recommendations, I agree with many of the solutions that have been proposed in the past meetings, including training Service Canada employees with a skill set that is compassionate to grief and bereavement;

having a dedicated Service Canada bereavement line, or creating a landing page or one-stop shop for grief and bereavement; preventing Canada child benefit overpayments and clawbacks; and initiating a bereavement awareness campaign to communicate to Canadians that the Government of Canada values and respects grief.

Also, consider introducing incentives for employers or workplaces to support bereavement and examine other models and systems of support for parental bereavement, including the U.K.'s new parental bereavement, the Canada benefit for parents of young victims of crime, and Ontario's child death leave to figure out how they're organizing their policies.

Grief arises out of our humanity and capacity to love and attach to each other. No one should be marginalized or punished for that. We need to value our relationality and interdependence. All levels of government need to proactively take responsibility for bereavement so that we can move past death ambivalence towards respecting grief as one of our greatest expressions of humanity. Taking responsibility for bereavement accommodation can support Canadian families and workers as they adapt to death and transition back to work.

Thank you.

9 a.m.

Liberal

The Chair Liberal Bryan May

Thank you very much.

Up next we have Mary Ellen Macdonald, associate professor with the pediatric palliative care research program at McGill University.

9 a.m.

Dr. Mary Ellen Macdonald Associate Professor, Pediatric Palliative Care Research Program, McGill University, As an Individual

Thank you.

I would like to begin by thanking the committee for taking so seriously an issue that has simply not had a public place to be voiced.

I come to this panel as an academic. I'm a medical anthropologist with 15 years of experience researching socio-cultural issues in death, dying and bereavement. As an anthropologist, I can contribute to these issues through a social and cultural lens and offer my reflections.

I will start with a small point for consideration, and this has to do with the language of loss that is in the motion and also in the language that we use for talking about death.

Euphemisms for difficult topics are common, given our discomfort with difficult issues. However, a deceased person is not really lost. While they are no longer physically present, they remain present in their loved ones' lives in new, transformed ways, even after the death.

We have heard in prior testimony about the relationship that bereaved parents have with their deceased children. They strive to keep their children present through legacy projects, through scholarships, through saying the child's name out loud. One witness mentioned that this was how she continued to parent her deceased child. I worry that the language of loss misrepresents these parenting efforts.

My second point is also a concern about clarity. In the original version I received about this motion, the focus seemed to be on infant death. In listening to the testimony, it seems that this has shifted to child death more broadly, and I certainly support that broadening scope. My concern, however, is how discourses on grief, both in the academic and in the public realm, can produce what Professor Cadell has called a hierarchy of grief. From my knowledge of the scientific literature, these hierarchies are much more political than they are supported by science.

We are compelled to be concerned about some kinds of death, such as infant death, in ways that other kinds of grief seem to not merit—a hospice death of an elderly spouse or death by suicide. I am concerned that the motion may contribute unwittingly to reproducing such a hierarchy by focusing first on the death of an infant child compared to other children, including adult children, and second by focusing on parents as compared to other kinds of grievers, such as grandparents.

Of course, parents whose infant child has died need more support than our context currently affords; however, so do all grieving parents, and indeed all grieving people. My concern is that such distinctions may actually do harm to the other grievers by excluding them and thereby reinforcing the isolation in which they are already living.

If the concern is really to attend to the issues of grieving an infant child, then I wonder why we should consider infant death differently from other kinds of parental grief. While the death of an infant child will certainly produce unique experiences and sequelae, I'm not aware of definitive literature that suggests infant loss merits extra special treatment when compared to other kinds of grief. In contrast, I think that the literature shows that age is a very complex variable when it comes to understanding grieving the death of a child, and we need to be careful about our assumptions. Older couples who experience the death of an adult child can be catastrophically impacted as well.

If the concern is to attend to the issues of grief more generally, then I wonder why we would consider parental grief differently from other kinds of grief. The overall intent of the committee is to imagine ways to ensure that grieving parents do not suffer any undue financial and emotional hardship; I would put forth a plea that simply no grieving person should suffer such hardship. I am concerned that we might be creating new kinds of vulnerability by unwittingly reinforcing the idea that some kinds of grief do not matter as much.

My third point has to do with normative social values. As Karima just mentioned, we did a review of bereavement accommodations in labour standards, first focusing on Canada and then internationally. A surprising homogeneity emerged in this review. Every document we analyzed categorically contradicted what the empirical research says about grief.

The empirical literature pulls together a phenomenology of grief that describes it as individual, as isolating, as painful, as a process, as something that challenges and changes a person's identity and sense of self. It can manifest as a debilitating illness without a predictable presentation or course, with long-term sequelae and repercussions.

The labour standards, in contrast, provide simple, managerial responses to accommodate a worker who needs to go to or plan a funeral, usually one to seven days with or without pay, depending on the jurisdiction.

Grief is cast as a generic, time-limited process involving instrumental tasks that are resolved within a discrete time frame—planning and attending a funeral. The value of employee loyalty is also demonstrated in some programs through which an employee can access more generous leave based upon their years of service—not based upon the kind of death, as if you can actually earn the right to grieve.

Upon closer examination of the language in the reports, we found a remarkable similarity in the values undergirding the documents. Birth, family life, caregiving, and religious practices are clearly celebrated through policies such as maternity and family leave, compassionate care benefits, and the allowance of time for funeral preparations. Workplace efficiency and economic salience were also primary concerns. What was entirely missing across all the documents was any kind of compassionate attention to caring for those workers who experience any kind of death.

These findings were unfortunately not surprising. They corroborated our prior reflections on how society views and deals with grief. While we hear the phrase that we live in a death-denying society, it is actually our grief taboo that needs serious social attention.

My final point has to do with responding to grief with sick leave. In our scan, we found that the only way to get extended leave is by drawing on sick leave policies, thereby turning grief into a medical category. We have heard similar comments in the evidence in these proceedings, and I have two concerns about this medicalization of grief.

First, most physicians have very little training in any kind of grief support, and they seem to turn to pharmaceutical solutions quite quickly. Many bereaved parents with whom I have spoken are not comfortable with this approach and are seeking a kind of support that GPs simply do not have the training to offer.

Second, and more fundamentally, treating grief as a sickness is perhaps exactly what we should not be doing. While of course some grief reactions need medical support, the research in public health suggests that the majority of grievers do not need specialized medical care. Instead, the literature suggests that efforts to normalize grief as a human experience will be much more successful in supporting the bereaved. Working to create a compassionate society that understands and supports grief will benefit all Canadians.

Thank you.

9:10 a.m.

Liberal

The Chair Liberal Bryan May

Thank you very much.

Now, via video conference from Montreal, we have Moire Stevenson, psychologist, MAB-Mackay Rehabilitation Centre. Welcome.

9:10 a.m.

Psychologist, MAB-Mackay Rehabilitation Centre, As an Individual

Dr. Moire Stevenson

Thank you.

First I want to say that I was delighted to see this motion going through and that we're moving forward with providing better support for bereaved families.

What I will speaking to today will be based on my doctoral research that I did as part of a Ph.D. in research and intervention in clinical psychology. I will also be speaking from my perspective as a psychologist and also as a bereaved sibling who was raised by two bereaved parents.

In my doctoral research, I interviewed 21 parents. I also interviewed seven health care professionals who provide bereavement support services to those parents and to parents in general. I have given the information to the committee in my speaker notes on where to find the peer-reviewed article that contains the results of that research and also my thesis, which puts the research into a broader context.

I'll move on to my key points for today.

I wholeheartedly agree with the comments made by the other witnesses. What I saw in the research that I did on the experiences of bereaved parents in the first year post-loss, and of parents reflecting back to that time one to five years post-loss, was that grief does not follow a timeline. We can't expect parents to have intense grief right after the loss and then be fine afterwards. We have to also understand that even years after the loss of their child—the death of their child—anniversaries and other difficult times of year can trigger parents to have, again, intense forms of grief.

I also want to say that the subject of my research was not focused on employment. I was very much focused on their experiences and their perspectives on the services provided to them. However, despite that, there were still some comments made about employers and employment. Parents had mixed views on how their employers understood what was going on with them. Some employers were understanding, others were less so.

Parents also spoke about returning to work. For some, it was a benefit. They wanted to keep busy. They wanted to get back to life. For others, it was too emotionally difficult and draining, and they also mentioned just not feeling ready.

Parents also mentioned again these intense emotions of grief returning around anniversaries and different times of the year. The grief resulting from the death of a child stays with parents for a lifetime. The intensity of the grief may change over time, but it can be reactivated for various reasons.

I also looked at the support that bereaved families receive. Many parents do fare well with little support because they feel well supported by their social networks, by their families, by different things that they already have in place. When I spoke to parents who felt that they did need support, they often felt that it was limited by the number of sessions provided, for example, by a social worker. Here in Quebec they receive 20 sessions.

Also, lack of expertise by professionals in the public sector was noted as problematic and unhelpful.

On a side note to that, I would just like to draw attention to the employee assistance program website, which I looked at the other day. To be honest, I was disappointed to read this statement from the grief section:

Grieving is an experience of detachment and affective disinvesting which leads a person to a new adaptation.

That was far from the experience of the parents whom I interviewed. There is no detachment. There is a reattachment. There is a change—now I'm speaking from the perspective of a psychologist—from attachment to a child that is physically living to attachment to a child that no longer is alive, but it's still an attachment. There is no detachment. There is no letting go. That dates back to previous grief theories that, based on research such as mine, we no longer hold to be valid.

To summarize, in my opinion employers should be willing to give parents leave following the death of their child, but parents should not be obligated to take this leave. It has to remain flexible.

For example, a parent may return to work, thinking it will be helpful, and then become overwhelmed or experience an episode of depression. The parent should be able to take leave at that time. Employers should treat parents with dignity and respect, and we should all understand the language of grief.

Parents should also be allowed to leave around the time of the anniversary of the death or on their child's birthday. In this regard, the parents I interviewed were very clear on what times of year were particularly difficult for them, so that is something that could most likely be pre-established.

In this same regard, bereavement support services should be flexible, consistent, and conducted by professionals with a clear understanding of how to support bereaved parents.

Once again, I just want to thank the committee for putting this motion forward. I hope that it continues to grow and that we continue to better support these families.

Thank you.

9:15 a.m.

Liberal

The Chair Liberal Bryan May

Thank you very much.

Now, from Fraser Health, we have Alexandra Lihou, registered clinical counsellor, reproductive mental health program, Royal Columbian Hospital.

9:15 a.m.

Alexandra Lihou Registered Clinical Counsellor, Reproductive Mental Health Program, Royal Columbian Hospital, Fraser Health

Thank you.

Good morning, and thank you for inviting me to speak here with you today. I'm honoured to be able to advocate for and represent the women and families that Motion 110 is exploring how to better support.

I'm a registered clinical counsellor at the Fraser Health reproductive mental health program at Royal Columbian Hospital. I sit on the Fraser reproductive mental health operations committee and I'm the co-founder of the Fraser Health reproductive community of practice.

As a clinician at the Fraser Health reproductive mental health program, I have the privilege of working with women who are struggling with new or pre-existing mental health concerns exacerbated due to struggles with fertility, premenstrual dysphoric disorder, pregnancy and the postpartum period, as well as pregnancy interruption, miscarriage, stillbirth and infant death.

Our program provides psychiatric consultation as well as individual and group therapy. For those we support following the death of a child, we listen to their experiences of trauma, loss, grief, social isolation, interpersonal relationship struggles and financial hardship.

Working with the bereaved mother, I provide grief therapy in two phases.

In phase one, the mother tells me, and we work to process, the story of her conception, pregnancy and loss. I teach her about the five stages of grief and normalize the grieving process. We work to continue the bond between between the mother and the deceased baby. The goal is not to push the tragedy aside and move on, but to integrate the death into her life. We discuss rituals and ceremonies that the family has done or is planning to do to say goodbye to the baby, and we work on creating memories and meaning. I educate the mother about trauma, and we identify triggers that are impacting her and ways to manage and cope with them. We devise a communication plan and create and rehearse a script she can utilize for when she's asked where her baby is. We process emotions. We identify and validate the anger, guilt, blame and shame. We utilize mindfulness and increase her self-compassion.

In phase two we work on reintegration. We work on strategies for the mother to start to face the previously identified triggers. We work on behaviour activation for depression, and we work on identifying new and appropriate supports. We cultivate ways for the mother to carry her baby forward with her and to learn how to parent the baby that has passed away, which is often through advocacy and supporting other grieving families.

It is not sufficient nor realistic to believe a woman or her family can heal and move forward from the tragedy and trauma of their baby's dying in a few short weeks and a few short therapy sessions. I often hear from patients when they first arrive at our program that they had no idea our subspecialty existed until they were referred for our services. Patients are referred to the program by their family doctors, nurse practitioners, obstetricians and midwives, or following a visit to the hospital emergency room. If there are concerns regarding the mother's safety, the psychiatric urgent response clinic will bridge for us until we're able to see the patient, and we are grateful for their clinical support.

Our wait-list can be long, and we are constantly problem-solving and developing programming options to try to alleviate the wait. Unfortunately, there is a shortage of appropriate, publicly funded, trauma-informed grief therapy for bereaved parents of miscarriage, stillbirth or infant death, and this is a problem. We have been working to mediate this concern and have created and host the Fraser reproductive mental health community of practice to provide support and education for community mental health clinicians.

I would like to stress today that even after going through the most heart-wrenching experience of losing their baby, every single patient I have ever treated for a miscarriage, stillbirth or infant death has made the decision to try to conceive again. Approximately 85% of women who have suffered a loss will be pregnant again within 18 months. In my experience, most families continue trying to conceive again in approximately three to four months or as soon as they are medically cleared to do so.

A concern is that after a loss, women who become pregnant again are often not able to complete the 600-hour minimum EI contribution in the 52 weeks prior to delivery.

This is frequently due to psychological struggles or physical concerns, and they are advised not to work for the safety of the pregnancy. These are women who have contributed to EI their entire adult lives and are now not able to utilize the maternity or parental benefit because their beautiful baby died.

I advocate today for the creation of a compassionate and educational government website dedicated to supporting bereaved families and parents, as well as community supports and clinicians. It would include a national directory of supports and resources available by province or territory; educational and supportive literature and PDF handouts that could be printed and utilized by the bereaved family, community supports and health care providers; access through a dedicated Service Canada team phone number to a team that would be trained with accurate information and that would learn to deliver it in a caring and empathetic manner; a link to the Service Canada website, which would have a section dedicated to providing bereaved parents with the information and services available to them; and possibly even a secure area for parents to report the loss online, request the stop of parental benefits, start a bereavement benefit or check and manage the status of their report from home.

I advocate for a flexible bereavement benefit for both parents that could be accessed throughout the year following the loss. I recommend a total of 15 to 20 weeks for each parent, at a minimum. With regard to returning to work, a flexible or gradual entry schedule would be helpful.

At the time of the loss, it is important to provide immediate supportive and clinical resources in a timely manner for both parents. The care provider who is attending to the family, be it the doctor, midwife, nurse or social worker, could utilize and share the government bereavement website to gain information and resources to better serve the family. They could also begin the process of an automatic enrolment for a bereavement benefit with the parents' consent at that time.

Sustainable long-term supports also need to be addressed. Each bereavement is unique, and many families experience recurrent loss. Grieving parents and families benefit greatly from peer support, bereavement groups and clinical counselling. Through peer support and educating families, our local NGOs are doing such important and invaluable work in the effort to reduce isolation and stigma. They need predictable financial support to be able to maintain the quality of the work they are currently doing.

Finally, I advocate for families who have gone on to conceive again to be able to access a maternity and parental benefit for pregnancy after a loss, based on their history of contributing to employment insurance, rather than on the 52 weeks before delivery.

Thank you.

9:25 a.m.

Liberal

The Chair Liberal Bryan May

Thank you very much.

Up first for questions, we have MP Richards for six minutes.

9:25 a.m.

Blake Richards Banff—Airdrie, CPC

Thank you, Mr. Chair.

I really appreciate the testimony, and you all being here, and the expertise you're sharing with us today.

I am going to apologize to all of you in advance. I do have to do something that will take a little time away from the questioning today, but it's important that I do so. I would have waited until later in the meeting, but we're under the belief that there may be a motion moved in the House of Commons this morning that might take us away for a vote, so I apologize in advance for that interruption.

I do have to move a motion this morning, and I want to make it clear when I move this motion that attempts may be made by a Liberal member to make it move in camera, or we may have it later be debated in camera, which means it won't be public, and any decision that would be made about this motion would not be public.

I will make it very clear right now that if any decision other than to do as this motion indicates comes out, it will be because the Liberal government is trying to shut down the opportunity for this motion to proceed and do so in a timely fashion to be able to make sure that something can be done about the recommendations that this committee would make prior to an election.

That's why I want to make that clear, in case that effort is made.

On June 8, 2018, the House of Commons unanimously supported Motion 110 with all-party support. This important motion had this committee undertake a study of the impact of federal government programming on parents who have suffered the loss of an infant child and to make recommendations on what the federal government can implement to improve the level of support for grieving parents to ensure they do not experience further hardship.

Parents have testified to this committee about the heart-wrenching experiences of dealing with cold and clinical government programming, such as when a Service Canada official told a grieving mother that, and I quote, “Your child ceases to exist so, therefore, the benefits will cease to exist.”

This solidifies the fact that we as a committee have a responsibility to take immediate action to ensure that no grieving parent has to experience something like this again. This motion and study have received support from grieving parents across this country, who are counting on this committee to do its work and who are eagerly awaiting its recommendations.

Motion 110 clearly set out that the committee report its findings and recommendations to the House within six months of the adoption of the motion, which would mean by December 8, 2018. The parents expect it to be tabled before the House rises for the winter recess.

Therefore, I move:

That in relation to the study on supporting families after the loss of a child the Committee:

(a) sit for 30 minutes beyond its regular sitting time on Tuesday, November 22, 2018, to provide drafting instructions for the Library of Parliament analyst;

(b) consider and adopt the draft report during its regularly scheduled meetings on Tuesday, December 4, 2018, and if necessary on Thursday, December 6, 2018;

(c) table the finalized report no later than December 12, 2018, prior to the rising of the House of Commons for winter recess, or if there is not an opportunity to table the report prior to the rising of the House of Commons for the winter recess, that the report be tabled on the first opportunity by the back door.

That's the motion I'm moving. I'm doing that simply because I want to ensure that grieving parents across this country who are expecting action, who want to see the recommendations of this committee and want to see them acted upon before a federal election will have that opportunity to see that happen. I certainly hope we will get unanimous support here at the committee for that to occur. I see no reason we can't get that, why that shouldn't be possible, and there would only be one reason why we wouldn't get that support. That would be simply because members of the government would not want to proceed to fix these problems for grieving parents.

9:25 a.m.

Liberal

The Chair Liberal Bryan May

Thank you, Mr. Richards.

Wayne, I know you want to speak. Just beforehand, I don't believe that the last statement was very appropriate, but aside from that, as the vice-chair and I have already discussed offline, the issue with being able to table this before we rise has very little if anything to do with our desire to see this done. I know John is very aware that this is an issue of being able to draft a report in a timely fashion, but also in a way that does justice to this study.

We have asked for advice from the analyst to give us a sense of how long this could possibly take. Unfortunately, it would take us beyond the time in which we would be sitting.

Go ahead, Wayne.

9:30 a.m.

Liberal

Wayne Long Liberal Saint John—Rothesay, NB

Chair, can we suspend for a couple of minutes, please?

9:30 a.m.

Liberal

The Chair Liberal Bryan May

We can. I will advise everybody that we are going to be running out of time very quickly this morning, but if we need a moment to recess, we can do that.

9:30 a.m.

Banff—Airdrie, CPC

Blake Richards

Mr. Chair, before we do that, I just want to comment briefly on the comments you've just made.

I don't believe it is an accurate statement that somehow there isn't time to deal with this motion. Last night I briefly had a look at this committee's past proceedings. For example, there was a report done by this committee on the temporary foreign worker program. The last date of witnesses was June 1. I believe that was 2016, and the report was then considered on June 13th, which was exactly 12 days later. That would be the exact same timeline as what's being proposed by this motion, so there is no doubt that this could be accomplished if there was a desire to do so.

I can give many other examples from other committees—and even from this committee itself—of similar types of lengths, but certainly the indication from that report would show us that this is certainly possible. It would only be that there would be a desire and a willingness to do it.

9:30 a.m.

Liberal

The Chair Liberal Bryan May

Taking that into consideration, that report actually was not tabled until the fall of that year. That being the case, I'd like to—

9:30 a.m.

Banff—Airdrie, CPC

Blake Richards

Mr. Chair, tabling is not the issue. Your argument is that the report can't be done—

9:30 a.m.

Liberal

The Chair Liberal Bryan May

Excuse me.

There are other circumstances involved that did not apply in that situation. If I can ask the analyst to explain some of the logistics around this, that might clear this up.

This is not a political issue. This is a logistics one.

9:30 a.m.

Banff—Airdrie, CPC

Blake Richards

It's a will issue, Mr. Chair.

9:30 a.m.

Liberal

The Chair Liberal Bryan May

It really is not. Just give me a moment, please.

9:30 a.m.

Conservative

Blake Richards Conservative Banff—Airdrie, AB

If you'd like to have it done, you can have it done.

9:30 a.m.

Liberal

The Chair Liberal Bryan May

I'd like to ask the analyst to share what you shared with me this morning.