Human Resources Committee on May 22nd, 2020

[Bill Adair, Executive Director, Spinal Cord Injury Canada]

Thank you.

I'm Bill Adair, executive director of Spinal Cord Injury Canada. I'm pleased to be speaking with you today about the Government of Canada's response to COVID-19. I'm especially glad to be doing so as our organization celebrates its 75th anniversary.

Spinal Cord Injury Canada was founded by World War II veterans with spinal cord injuries, who were determined to return to Canada and make it a more inclusive and accessible place to live. I'm proud to be here with the same intentions, representing our organization and our founders.

There are an estimated 68,000 people living with spinal cord injuries in Canada. About one a day is added to that number. It is Spinal Cord Injury Canada's job to support this journey as people return to an independent and fulfilling life.

COVID-19 brings many challenges for people with spinal cord injuries. The best medical advice is to wash our hands and social distance to stay healthy. People with high-level quadriplegia—limited function below the neck—might find that handwashing isn't a simple task, nor would it be easy to put on gloves or a mask. As well, many people with spinal cord injuries use the services of a personal support worker to assist them in the activities of daily living. Social distancing is impossible in that situation.

For those with a spinal cord injury in a hospital or rehabilitation setting, COVID-19 is a serious threat due to increased exposure and because people often have a harder time with breathing and lung functions. When these people are discharged, a severe shortage of affordable and accessible housing leaves them with no choice but to move into long-term care facilities, which, as we know, puts them in grave danger. Because of scarce availability of personal protective equipment, PSWs sometimes arrive at people's homes without gloves and masks. This puts people receiving the service in a very vulnerable situation. The person can refuse service, but then how do they eat, go to the bathroom, get to bed, or get up in the morning? PSWs in the community need protective equipment just as hospitals and long-term care residences do.

Thankfully, PSWs are now considered essential workers and have received extra pay in recognition. Spinal Cord Injury Canada fully supports this change, but there have been ripple effects with the changes. Some PSWs could suddenly no longer provide services to people in the community. This change put pressure on family and friends for support, and people scrambled to try to find new PSWs in the middle of a pandemic. As well, some people tried to match the higher salary or even pay more to keep their PSW. For people on a fixed income, this was near impossible.

There have been extra out-of-pocket expenses too for services such as garbage pickup, grocery delivery, accessible equipment repair, or bulk buying of medical supplies because of availability.

To date, the Government of Canada has provided support to workers, parents, corporations, small and medium-sized-business owners, workers, families, children, students, indigenous peoples, homeless people, women facing violence, seniors, youth, seafood processors, dairy farmers, agriculture suppliers, energy companies, tourism companies, sports organizations and cultural organizations. Without a doubt, Canadians can be proud that we live in a country in which the government is responsive to our core values, and we do look after one another.

Although some people with spinal cord injuries qualify for the financial support our government has been announcing, people receiving disability benefits do not and are being left behind.

In 2019, the average CPP disability benefit was just over $1,000 a month, and the maximum benefit anyone could get was just over $1,300 a month. Even with access to other provincial and territorial funding programs the reality is that many people on disability supports live in severe poverty.

Furthermore, Spinal Cord Injury Canada is challenged to sustain our support for people in need. One of our provincial organizations has had to close and another is dangerously close to doing so because fundraising dollars were not able to be realized. Canadians are tightening their purse strings and people will not attend fundraising events. Yes, $350 million was announced in April, but the application process started only this week, and now we are faced with a more complex process to request this assistance, which we will be pursuing, but this leaves our federation in a very perilous situation. More importantly the people we serve are being penalized.

That being said, there are changes that have happened because of COVID-19 that Spinal Cord Injury Canada hopes will continue into the future. Video health conferencing is an amazing option. For people with spinal cord injuries who can't get out of the house or who have difficulty getting around, this is a real benefit and should continue.

Canadians have adjusted to working from home. We hope that in the future, more jobs will be advertised as operating from a home office, increasing the employment rate of people with disabilities.

Women with disabilities are twice as likely as women without disabilities to experience emotional, physical or sexual violence by a current or former partner. As we all shelter at home, women facing violence are in isolation with their abuser. COVID-19 has brought to the surface this horrific systemic issue that, as a country, we must fix.

People with spinal cord injuries and disability supports have been kept in financially desperate situations, literally having to make choices between getting food and buying medication, between rent and rehabilitation.

When Canadians lost their jobs during COVID-19, the CERB offered a basic living income of $2,000. We are calling for a universal basic income for people with spinal cord injuries and other disabilities who receive disability supports. There is no benefit to society in keeping people poor and vulnerable.

I'd like to conclude with the recommendations that follow.

The first is to develop a coordinated emergency response plan for people with disabilities, to be implemented across Canada, so that we are ready to respond when local, provincial, territorial and nationwide emergencies arise in the future.

The second recommendation is to increase the amount of accessible and affordable housing across Canada.

The third is to supply community-based health care workers with personal protection equipment.

The fourth is to continue to pay personal support workers what they are worth now and into the future.

Next is to ensure that payments made through direct funding programs—funding that supports people living in the community—increase, to ensure that people can live safely and independently in the community.

Another is to give people on disability supports the financial aid needed to cover extra disability-related costs associated with this pandemic.

Another is to continue video conferencing health services after COVID-19.

Another recommendation is to implement a national strategy to address violence against women.

Another is to implement a universal basic income for all Canadians, including people with disabilities.

Finally, we recommend implementing a nationwide strategy for disability and work to increase workforce participation.

Since March 11, when the World Health Organization first assessed COVID-19 as a pandemic, the most vulnerable among us have waited for support. All Canadians want to live with respect and with dignity. We're all in this together, and nobody should be left behind.

Thank you.

[The Chair, Liberal, Sean Casey]

Thank you very much, Mr. Adair.

We now go to the Fédération des mouvements personne d'abord du Québec.

You have the floor for a total of seven minutes. Who would like to speak?

Mr. Villeneuve, we are listening.

[Olivier Villeneuve, Director, Mouvement Personne D’Abord de Saint-Jérôme, Sainte-Thérèse et Saint-Eustache, Fédération des Mouvements Personne D’Abord du Québec]

Good afternoon, everyone.

My name is Olivier Villeneuve, and I am the director of the Mouvement personne d'abord de Sainte-Thérèse organization, whose primary mission is to collectively defend the rights of individuals with intellectual disabilities.

Our philosophy is to put individuals first. They are the ones who decide what our major policies will be and what cases we will handle. That is why I will provide a brief explanation. Afterwards, Louise Bourgeois, who is living with an intellectual disability, will speak to you about her experience during the pandemic.

During a pandemic, the various levels of government have a vested interest in every citizen having access to information whose format and content are accessible with regard to their condition. In that context, information comes before everything else. If I am well informed, my behaviours will reflect the best practices in terms of prevention and contagion, and I will tend to go to the right place to get tested, depending on my situation. What is even more important is that being well informed will alleviate Canadians' feelings of uncertainty and their distress, and it will help them maintain good mental health.

As a society, we have a duty to do everything possible so that every citizen, regardless of their condition, would have an equal opportunity to access understandable information at the same time. This is a right to equality protected by the Canadian Charter of Rights and Freedoms.

For people who speak English, the content will be translated into their language. For people who are blind, a Braille version will be provided. A person with an intellectual disability will also need the content and format of the information they receive to be adapted, so that they could play their role of responsible citizen.

Someone living with an intellectual disability will learn better if the right communication strategies are used, just as sign language is a good strategy to support a deaf person. They will understand the message content better if the information is spoken or written in their language. Verbally, it is recommended to use short sentences with concrete and simple words to convey one idea. Speaking to them slowly without, however, patronizing them, is a winning strategy.

As for written information, it should be pointed out that some people cannot read or have low literacy. For example, posters or information texts on the pandemic should always contain sentences that use simple and concrete words, as well as images supporting the content of the information.

We have surveyed some 50 individuals with intellectual disabilities over the past few weeks, and it is clear that COVID-19 is negatively impacting their quality of life significantly. Their safe haven has collapsed in the wake of radical changes to their routines. The safe haven of their feeling of control over their life has also collapsed, given the difficulty in processing all that complex and contradictory information. We currently all feel like we are living on another planet. Imagine the tremendous feeling of emptiness experienced by those for whom processing information as it becomes available is a bigger challenge.

With the stage set, we respectfully submit to you two potential solutions related to the issue of availability of accessible and understandable information for all Canadians, including those with an intellectual disability.

First, the federal government should constantly have the reflex to provide information in plain language. Second, federal officials who are experts in dealing with people with an intellectual disability must ensure that communications, regardless of their format, are aligned with the good communication strategies I have just outlined.

On behalf of our organization's members, we want to sincerely thank you for this highly noble exercise of making Canada more inclusive.

In conclusion, here is the testimony of Ms. Bourgeois, an adult who is living with an intellectual disability in the context of this pandemic.

I yield the floor to her.

[Louise Bourgeois, President, Fédération des Mouvements Personne D’Abord du Québec]

Good afternoon, everyone. Thank you for inviting me to testify before the committee.

At first, I was scared. I had a lot of concerns. I was wondering whether the Mouvement personne d'abord de Sainte-Thérèse would be closed forever. I did not know where things were going. I felt alone and isolated. I was worried about the pandemic because, for me, it was something unknown. I did not know what COVID-19 was. It was the first time I had heard of it, and I was confused.

I had a very hard time obtaining information. It was not clear. It was not reassuring to hear that we had to stay at home. Did this mean that we had to stay inside and never go out again? The information was arriving very late. I would hear the information and, two minutes later, simplified information would arrive.

What is more, access to protective equipment is difficult for our members, who do not have a lot of money to purchase it. So the Mouvement will provide all the protective equipment, including masks.

In addition, when it comes to information and explanations, big words should not be used because our members have a hard time understanding. The information must be clear and accompanied by images, pictograms. That could be an image with three tables and an individual at each table, with an arrow between two people and the number 2 to indicate that there should be a distance of two metres between them.

Thank you for having me and for allowing me to provide my testimony.

[The Chair, Liberal, Sean Casey]

Thank you, Ms. Bourgeois.

Folks, we have about 17 minutes left until we're scheduled to adjourn. In order that everyone will have a chance to pose a question, I propose that we shorten this round and allocate four minutes to each party. I hope that's in order, because if it isn't, we'll have no choice but to revert to the Standing Orders, which means that not everyone will have a chance.

We will start with Mr. Albas for four minutes, please.

[Dan Albas, Conservative, Central Okanagan—Similkameen—Nicola, BC]

Thank you, Mr. Chair.

In regard to the previous testimony in the first hour, some, like Mr. Moody, for example, weren't able to complete their statements. I was hoping that you would give the opportunity to all witnesses who weren't able to complete their statements to submit their thoughts to the committee. Mr Moody did have written notes.

[The Chair, Liberal, Sean Casey]

Absolutely.

[Dan Albas, Conservative, Central Okanagan—Similkameen—Nicola, BC]

Thank you very much, Mr. Chair.

I'd like to thank all of our witnesses for being here today.

I would like to let you know, Mr. Chair, that I'll share my time with MP Rosemarie Falk.

We've heard repeated concerns about access for persons with disabilities who were in hospitals or care centres at the time of the lockdown. There was a case in my province of British Columbia, in South Surrey, where a woman with a disability, cerebral palsy, was not able to be seen by her caregiver or any of her family as she was dying. I understand that British Columbia has made some improvements on this front.

I would like to ask some of the witnesses here if they feel other provinces have had similar instances. Are your provinces, or the federal government, doing anything to address this problem?

I don't believe anyone should be faced with that kind of circumstance. It would be heartbreaking for me if a family member were to pass away without seeing someone.

[The Chair, Liberal, Sean Casey]

Go ahead, Mr. Adair, please.

[Bill Adair]

Thank you for that question and that point.

The disability community, broadly speaking, applauds the new policy that the Province of British Columbia has released in the last two days regarding this issue. I completely agree that we should be calling on the Government of Canada to encourage and support all provinces and territories to adopt a similar policy to ensure that people are not left alone in a hospital setting, and also so that they can fully participate in decisions regarding their own medical care.

Thank you.

[Dan Albas, Conservative, Central Okanagan—Similkameen—Nicola, BC]

If no one else wants to answer, I'd be happy to move on.

Since I have you here, Mr. Adair, one of the things you've raised is the challenges that persons with disabilities face every day. One thing I've seen expressed by many advocates is barriers in public spaces. Persons with disabilities are largely confined to their homes under normal circumstances, yet many people are spending this crisis saying it's torture to essentially live the life that many persons with disabilities live with every day.

What would you like to say to those people, and are you hopeful that this crisis will show how barriers to movement and participation hinder everyone, particularly given the attitudes people have expressed?

[Bill Adair]

I think there are lessons in COVID-19 for people to learn in all areas of life. Certainly people living with disabilities face a great deal of isolation, more than the general population. It shows their resilience and their capacity and their ability to be creative and to find ways to find meaning in life even though they are often living in isolation.

We're hoping that people in the general population have a new-found understanding and respect for some of the challenges faced by people with disabilities.

Thank you for that great question.

[Dan Albas, Conservative, Central Okanagan—Similkameen—Nicola, BC]

Thank you.

I'll pass the rest of my time to Rosemarie Falk, please.

[The Chair, Liberal, Sean Casey]

He left you about 20 seconds, Ms. Falk. You have a quick question and a quick answer.

[Dan Albas, Conservative, Central Okanagan—Similkameen—Nicola, BC]

Oh, I'm sorry.

[Rosemarie Falk, Conservative, Battlefords—Lloydminster, SK]

No, that's okay.

I was part of the study on Bill C-81. I recall the need for plain language and that it was kind of drilled at us that the government has a responsibility in helping create a culture of inclusion and equity.

I quickly want to know if any of you could provide this committee with examples of how the government can better ensure accessibility in its COVID-19 response.

[The Chair, Liberal, Sean Casey]

Mr. Onley, please give a short answer.

[David Onley]

Look at it through the prism of the Accessible Canada Act. Start there as a way of understanding the best way forward. The more the nature of that act is implemented, the more generally accessible society is going to be. The first people who are going to benefit from it are those with disabilities, but then everyone will benefit from it.

I used the example earlier of the automatic infrared doors. How many of us in the future are going to want to open and close doors unless we're wearing gloves? Wherever there's an opportunity to implement that aspect of accessibility, it benefits everyone.

[The Chair, Liberal, Sean Casey]

Thank you, Mr. Onley. Thank you, Ms. Falk.

Mr. Adair, I would encourage you, if you wish, to provide any supplementary information in written form. I want to make sure everyone gets a fair shot to ask questions here.

Next we're going to Mr. Turnbull, please, for four minutes.

[Ryan Turnbull, Liberal, Whitby, ON]

Thank you, Mr. Chair.

I'll be splitting my time with MP Vaughan, so I'm going to try to time myself and stick to about two minutes here.

Thank you, panellists. I admire all of you and the work you do every day.

Mr. Onley, one thing we've been hearing is that some people living with disabilities are concerned about provincial clawbacks to their social assistance. Those who qualify for the CERB are obviously getting the $2,000, but they're worried about those provincial clawbacks.

Our government has stated very clearly that it believes the CERB needs to be considered exempt from the clawbacks provinces and territories often employ. Minister Qualtrough in particular has been working with her provincial and territorial counterparts to ensure that the CERB and provincial and territorial social assistance programs work together and support Canadians so they're not penalized for receiving the CERB.

To date, there's a mixed review from provinces and territories. Some are clawing back partially, while some are clawing back the same amount.

I wonder, Mr. Onley, if you could tell us about how those clawbacks might hurt people living with disabilities. Can you please share the impact it may have on them?

[David Onley]

Certainly. It's a very good question.

Fundamentally, I find the clawback of benefits for people with disabilities, such as the ODSP in Ontario, which is really the area I know best, is basically obscene. The amount of money provided by ODSP is essentially at poverty level. Nobody lives well at that level; they just exist.

These are extraordinary times. Often this additional benefit that is being made available just inches these people above the poverty level. They are just trying to decide, literally, between heating and food. I know that has become almost a cliché, but I interact with people who face that kind of decision.

I urge all members to continue pressing on that level, insofar as the provinces are concerned, in terms of not having clawbacks, and in fact to look at it the other way. Look at it as what we can do to encourage people to pursue some process of income without worrying that this amount of income is going to end up in a clawback from their benefits, which is a common fear.

[Ryan Turnbull, Liberal, Whitby, ON]

Thank you, Mr. Onley. That's a great response. I appreciate it.

I'm going to pass my time over to Mr. Vaughan, even though I have a lot more questions.

[Adam Vaughan, Liberal, Spadina—Fort York, ON]

Mr. Chair, I have just a couple of quick questions.

Mr. Adair, you talked about supportive housing. There's been a lot of focus on long-term care housing. That's one form of support, but often people with disabilities are pushed into long-term care despite their age because of the lack of supportive housing. Would you agree that the issue here is broadening supportive housing across the country in our response, and not just long-term care?

[Bill Adair]

Yes, I would agree with that fully.

[Adam Vaughan, Liberal, Spadina—Fort York, ON]

Mr. Onley, the national housing strategy has set very strong standards around accessibility, in that 20% of units must be built to universal design. Is there any justification for watering down accessible standards at this time because of the crisis?