Mr. Chair, members of the committee, thank you for inviting me to testify today.
For the past five years, I have been leading a research program on return to work following a perinatal death—that is, the death of a child during pregnancy, childbirth or in the first weeks of life. This phenomenon affects from 20% to 25% of pregnancies, representing approximately 100,000 deaths per year in Canada.
Scientific research is clear: A perinatal death is a devastating experience that can have a significant impact on parents' mental health. Studies show that, several months after the death, parents still exhibit high levels of symptoms of depression, anxiety or post-traumatic stress.
Our own data, collected from Quebec mothers, indicate that, within 12 months of the death, 50% of the mothers exhibit high levels of grief symptoms, while 30% of them meet the clinical threshold for a diagnosis of generalized anxiety. The vast majority of parents feel the need to take leave after a perinatal death. According to our research, 85% of mothers took leave following the death. That figure rises to 95% when the death occurs later in pregnancy, specifically from the 20th week of pregnancy onward.
It should be noted that, in Quebec, when a death occurs from the 20th week of pregnancy onward, the person who carried the child is eligible for 18 weeks of maternity leave through the Quebec parental insurance plan. According to our studies, more than 90% of eligible mothers used this leave. They subsequently reported experiencing greater psychological well-being upon returning to work.
In contrast, mothers who were unable to benefit from this leave instead resorted to sick leave, which involves administrative procedures that can be burdensome, or to leave without pay, which has significant financial consequences, or took no leave at all. Mothers who used these types of leave reported lower well-being and greater psychological distress upon returning to work. These levels of psychological distress were subsequently associated with difficulties functioning at work, including problems with concentration, lack of motivation and energy, and decreased productivity.
On another note, for nearly 60% of the mothers we surveyed, the return to work was primarily driven by financial reasons, even though they didn't necessarily feel ready to do so. Participants in our studies also reported that, in the month following their return to work, they did not feel well physically or psychologically during an average of 65% of their work time. This proportion rose to 74% for mothers who were unable to take maternity leave and to 80% for those who had to take unpaid leave before returning to work.
Finally, although there is more data available for mothers, it is essential not to overlook the experience of the partner, often the father. Studies show that fathers can also be deeply affected psychologically following a perinatal death. Often placed in a supportive role, many feel that it is less legitimate for them to express their grief, and their experience remains largely invisible. This invisibility is reflected in the support measures available to them, which are very limited. Most fathers return to work quickly, sometimes immediately or only a few days after the death. They report various difficulties at work, including a drop in concentration and energy. For some, the lack of time off eventually catches up with them a few months later, leading to prolonged absences. The fathers we met during our research report that they must rely on the luck of having an understanding employer to obtain the support they need, which creates significant inequalities from one person to another.
In summary, research findings show that, following the loss of a child during the perinatal period, the vast majority of parents feel the need to take time off. The lack of appropriate leave or a rushed return to work is likely to exacerbate psychological distress and subsequently impact work performance, which inevitably results in significant costs to workplaces and society.
However, Quebec's example of maternity leave for mothers in cases of late perinatal deaths illustrates that a uniform and accessible measure can help promote a healthier and more sustainable return to work.
Therefore, our research leads us to recommend the provision of paid leave for all parents experiencing a perinatal death. In addition, parents who are already on maternity, paternity or parental leave at the time of the death should not have their benefits interrupted. In this regard, our research data strongly supports Bill C‑222.
Better support for parents experiencing a perinatal death entails many benefits—for parents, by enabling them to properly recover; for workplaces, by ensuring employees function better upon their return to work; and for society in general, by reducing the significant costs associated with mental health disabilities.
Thank you for your attention. I will be happy to answer your questions later.