Good morning everybody. My name is Isaac Bogoch. I'm an infectious disease and HIV physician and researcher based out of the Toronto General Hospital and University of Toronto. Thank you very much for inviting me to appear before the House of Commons Standing Committee on Justice and Human Rights to discuss the issue of criminalization of non-disclosure of HIV status.
Over the next few minutes, I'd like to touch on a few key points to frame how we can view the criminalization of HIV non-disclosure by focusing on updated science and data, and discussing the practical implications of this law. Specifically, I'd like to address two points: updates in our knowledge of HIV transmission in the current era; and clinical, public health and patient-level perspectives on the criminalization of HIV non-disclosure.
I want to do this all with an aim to demonstrate how criminalizing HIV non-disclosure is a counterproductive approach to reducing the burden of HIV in Canada and globally.
I'd like to preface these discussions with a comment that I have nothing but respect for those infected with HIV and those at risk of acquiring HIV. The goal here is really to discuss recent data, law and policy in a manner that is free of value judgment.
Let's start with the first issue and those are updates in HIV transmission and risk of HIV acquisition. Over the past decade and especially over the past three years, there have been tremendous advances in our understanding of the risks of HIV transmission, and how we can mitigate and essentially eliminate the risk of HIV transmission with drugs that treat HIV. I'll refer to those drugs as antiretroviral drugs.
Given our limited time, I'd like to highlight two studies that have helped transform global public health policy for HIV.
The first study was conducted by Alison Rodger and colleagues and was published in the Journal of the American Medical Association in 2016. In this study, 1,166 couples were enrolled, of which one of the two individuals in each couple was HIV-positive and on antiretroviral drugs. Couples included both heterosexual couples and men who had sex with men.
The study looked at transmission of HIV between individuals in each couple when condoms were not used, and if the HIV-positive person in the couple had an undetectable viral load. An undetectable viral load means that the antiretroviral medications are working and the virus cannot be detected in the HIV-positive person through conventional blood tests.
As a side note, we still know the virus is there. We still know the virus will return to detectable levels if the couples stop the medications. But if someone is taking their medications and they are effective, they will have an undetectable viral load.
During the roughly two-year course of the study, heterosexual couples reported 36,000 condom-less sexual acts and men who had sex with men reported 22,000 condom-less sexual acts. How many cases of HIV transmission were there within couples when the HIV-positive individual had an undetectable viral load? The answer is zero. There were zero cases of HIV transmission. That's an important number to remember. Zero cases of HIV transmission if someone is HIV-positive, taking their antiretroviral medications and has an undetectable viral load.
The second study I'd like to touch on has some Canadian content to it. It was led by Jennifer LeMessurier, and other Canadian physicians and scientists, and was published in the Canadian Medical Association Journal in 2018.
This is an interesting study, because it's a systematic review. A systematic review means that they evaluated several published studies, such as the one I just mentioned, and they combined all the findings of these prior studies into one big study for a more powerful look at the risk of HIV transmission, especially when one person has an undetectable viral load.
They included 12 studies here which gives a much larger sample size and adds tremendous validity. They tabulated the number of times the virus was transmitted from an HIV-positive person with an undetectable viral load to an HIV-negative person. They reported this as the number of HIV transmissions per person-years. Just like the study above, this one was commended for including both heterosexual couples and men who had sex with men.
In 1,327 person-years, there were zero cases of HIV transmitted from an HIV-positive person with an undetectable viral load to an HIV-negative person. Zero. Remember that important number? That number is zero.
These are just two examples of high-calibre studies published in high-impact, peer-reviewed medical journals. There are other studies that confirm these results as well.
These data and others are the impetus for what is now known as the U equals U movement. U equals U stands for “undetectable equals untransmittable”. This means that if an individual is HIV-positive, taking antiretroviral medications and has an undetectable virus for about four to six months, then that individual is untransmittable. That means that he or she can not transmit the virus to others.
U equals U is now adopted by major global public health bodies, such as the Joint United Nations Programme on HIV/AIDS, UNAIDS, the World Health Organization, the United States Centers for Disease Control and Prevention, the European Centre for Disease Prevention and Control, and, more locally, by the Canadian Minister of Health Ginette Petitpas Taylor and by Canada's chief public health officer, Dr. Theresa Tam.
In Canada, we have about 65,000 people living with HIV and about 2,500 new cases of HIV per year in the country. Roughly 20% of HIV-positive individuals are unaware of their diagnosis and not on treatment. These are the individuals who are at risk of transmitting the infection to others.
HIV treatment is readily available in Canada, but we must do better to reduce as many barriers as possible to enable access to HIV testing, treatment and prevention. The Canadian Criminal Code should be amended so as to not charge people if they are HIV-positive but have a zero to negligible chance of transmitting the virus to others, such as those taking their HIV medications with evidence of an undetectable viral load. There is an urgent need for Criminal Code reform in order to remove the offence from the realm of sexual assault law and have it focused on intentional and actual transmission.
The December 2018 federal directive, published in the Canada Gazette, that provides prosecutorial guidance on HIV non-disclosure highlights this and is a step in the right direction, but more needs to be done.
Given the enormous stigma that HIV continues to have in Canada and globally, our current Criminal Code is a barrier that prevents or delays people from getting tested for HIV. I hear this in my clinic at the Toronto General Hospital regularly. Many patients are scared to get tested and delay getting tested for fear of legal repercussion. Remember: those who are HIV infected and not taking medication are at greatest risk of infecting others, and this is contributing to the ongoing epidemic in Canada and globally.
Canadian law is preventing people from getting tested and placed on effective treatment that would eliminate the risk of transmitting HIV to others. It is crucial to end the use of sexual assault law as the means of criminalizing HIV non-disclosure and limit any use of the Criminal Code only to cases of intentional and actual transmission of HIV to another person.
If we're ever going to stop this epidemic—and we will—we must support law and policy that meet the needs of those who are infected with or at risk of HIV in a caring, supportive and value-judgment-free environment.
The current Canadian Criminal Code does not support these objectives. It further stigmatizes those with HIV and it's counterintuitive. Criminalizing HIV non-disclosure may facilitate HIV transmission as it is a barrier to those who may get tested and placed on effective therapy. We can stop HIV in Canada and globally, and amending the Criminal Code would be a smart step in the right direction.
Thank you very much for your time.