Thank you very much for the invitation.
Let me be very clear: The pandemic did not cause the problems in long-term care, deep-seated attitudes about sexism and ageism did. The pandemic was just the proverbial straw on top of long-term, long-standing neglect.
We have the highest death rate in long-term homes as a percentage of national COVID deaths in the world, over 80%, nearly double the hardest-hit countries. This is both a national tragedy and an international shame.
We've failed older adults who need this specialized care. They have died in excess numbers from both the virus itself and from the conditions it created. They have died alone, afraid, often in great suffering, and in the worst outbreaks, they died of dehydration and starvation in their own excrement. Tragically, disadvantaged women have borne and continue to bear the brunt of the impact of COVID in long-term care.
The residents, the older adults there, are extremely vulnerable: half of them are over 85, and are frail, with many co-existing conditions. About 80% of them have dementia, a progressive life-limiting neurological disease.
In the Canadian population at large, over two-thirds of older adults with dementia are women. In nursing homes, over two-thirds of residents are women, usually women of lower economic means.
However, the population of older adults in long-term care is not a homogeneous group of old white people. The population there is increasingly heterogeneous, as is our general population. These are people with not only dementia, who are not only overwhelmingly female, but also people with disabilities, of various religious and ethnic backgrounds, with and without family, members of the LGBTQ community and so on.
Over 90% of all long-term staff in this workforce, as Pat indicated, are women, with care aides, personal support workers, being by far the majority. They provide 90% of hands-on direct physical and emotional care. They are overwhelmingly female—90% to 95%—unregulated, middle-aged or older, and half are immigrants in urban settings.
The educational standards for this group are not standardized and vary from province to province and are the lowest of any required in the system. They are the most poorly remunerated workers in the system. As many as a third of them worked more than one job pre-pandemic to make ends meet. They work in homes that, pre-pandemic, were underfunded and high-stress environments, and are now facing serious mental health challenges because of the pandemic: anxiety, insomnia, depression, substance abuse, and in the most extreme cases PTSD, which will persist for years.
Our complacency and neglect, our attitudes toward the old and infirm, our attitudes toward women and the work of caregiving, our belief that anybody can care for an old person with dementia got us precisely where we are today—that and our baffling belief that we could manage the system without data.
The problems are solvable, but they are complex and wicked, tangled as they are with practical, readily solvable issues and the much harder to solve deep-seated values issue. However, if we do not solve them, this will assuredly happen again and again. We have thus far failed in our duty to care for our most vulnerable citizens, with particular savagery in some places in Canada. It is incumbent upon us to do better.
What needs to happen? We have to first fix the worst of the workforce conditions. We must help women workers whose children are out of school and whose own parents may need care. We must treat families like families, not visitors. We must have data. For heaven's sake, we need data.
What must not happen is another commission, inquiry, report. We can read the hundred, literally hundreds, that we have done over the years, and they all point to the same solution again and again. We must not favour acute care over long-term care. We mustn't be unrealistic. This is not easy, and it will take resources, and if we engage in endless acrimonious debates over federal issues versus provincial jurisdictional issues, we will not be able to progress.
We cannot solve the immediate or longer-term problems in Canada's care homes if we do not acknowledge and address the highly feminized environment of a long-term care home and what that means, if we do not value the work of caregiving, if we do not value lives that have been largely lived.
Thank you.