Mr. Speaker, I am very pleased to speak on Bill C-56. I am very much aware that the debate on Bill C-56 occupies a very special place among all the debates we shall have in this House. It is a bill unlike any other. This bill invites us to reflect on the human condition, on the definition of life. As well, of course, there is the whole matter of genetics.
We know that this bill is rather like the child of a planned pregnancy. Since at least the early 1980s, we have known how important it is to have legislative provisions to respond to these couples. We learned from the witnesses who came before us in committee that one person in eight experiences infertility problems at some point in his or her life.
Bringing Bill C-56 into the world was perhaps a painful process, but it was a wanted child. I can only hope that its sponsor will be able to meet our expectations.
Not only did we work very hard in committee, but we did so in a non-partisan manner as well. I believe the parliamentary secretary will agree with me that all members of the committee have given the best of themselves to it. We wanted to provide parliament with a significant report, a consensual one, a report that would enable the government to set out a certain number of principles.
Let us start at the beginning. Why must the issue of new reproductive technologies be addressed? We should perhaps explain to those who are listening to us that this bill consists of four separate elements.
First of all, there is a preamble, in which six main principles are defined. I shall be coming back to these. Then there are a number of prohibited activities: cloning, ectogenesis, payment for surrogacy, sex selection, in short a number of prohibited activities, which I shall also go into in greater detail. There is also the matter of the agency, the governmental structure that will issue licences and enforce the regulations. Finally, there is the matter of inspection.
Let us begin at the beginning. This bill is about a situation unprecedented in the history of humankind. For the first time ever, it will be possible to procreate without having sexual relations. With the new reproductive technologies, the conventional scenario whereby a man and a woman must have sexual relations in order to have children has changed.
Not only will there be a divorce and a disconnect between sexuality and procreation, but it will also be possible for a child to be the product of two parents who do not know each other and who have never met. From the point of view of ontology and the human condition, these are important facts in understanding why we want the new reproductive technologies sector to be legislated and what kind of legislation we want.
It is also important to bear in mind—and I will come back to this—that we recommended in committee that it not be possible, or that it not be authorized, to donate sperm or an ovum, that it not be possible to donate gametes without agreeing to reveal one's identity. I am sorry that the government did not go for this recommendation. I will come back to this.
We are facing a very important new reality: one person in eight has infertility problems. The bill sets out guidelines for dealing with the problem of infertility.
The problem of infertility can be solved by adopting—this is not covered in the bill—and also by using donors and sperm banks and, of course, by using donated gametes.
The bill attempts to uphold a certain number of values that are fairly essential and around which there is consensus. What is interesting is that each of the prohibitions contained in the bill corresponds to a value that parliamentarians will find easy to defend.
Allow me to provide some examples. Cloning for reproductive purposes is prohibited. Why has the debate over cloning received so much attention and why has it had such an impact on Canadian society? This is due to the fact that, obviously, we may have the technological means and we know how to clone.
We have the conviction that every human being is unique. Each human being, based on his or her values, weaknesses, strengths, unique traits, has a special place in the human community. We would not accept having two people who are exactly the same in every way and having science used to give two people the exact same genetic makeup. This is not acceptable based on the philosophy, based on the human ideal that every person is unique. Therefore, human cloning is officially prohibited.
Of course, there may be certain situations where we might think that cloning for therapeutic purposes should be permissible. For example, cloning an arm or organ tissue of a healthy person. However, the bill prohibits all forms of cloning and we believe that this is best for now.
There are other activities that are prohibited, those carried out for eugenics in an attempt to create an ideal human. In fact, altering the germinal cells in order to produce made to order babies is prohibited. With modern technology, it is now possible, at a certain stage in development, to create children with blue eyes, or girls with a particular hair colour. It is also possible to choose genetic characteristics so that, at birth, we would know not only whether or not the child is a boy or a girl, but we could also determine the major genetic characteristics of the unborn child.
Some people were in favour of this, thinking that it would also enable us to eliminate certain genes that are more lethal and that could carry degenerative diseases. The government chose not to go this way and said “No, it will not be possible to tinker with germ cells. It will not be possible to have made to order children. It will not be possible to determine the broad genetic traits of unborn children, always in the name of the principle of the equality of individuals”.
For example, it would be possible today to choose the sex of one's child. Some couples may decide to have a girl rather than a boy. Thanks to reproductive selection techniques, it would be possible today to engage in such practices. However, since the principle of the equality of individuals has been enshrined in the charters and in the various documents dealing with human rights, the bill forbids such practices, which I think is very wise.
Of course, maintaining an embryo outside the uterus for more than 14 days is also forbidden. This is an internationally recognized standard. Why more than 14 days? I see the member for Joliette, who always seems to want to know more, and I say to him that an embryo cannot be maintained outside the uterus beyond the 14th day, because that is when gestation begins and the nervous system starts to appear. It is believed that this is really the first stage of human life. So this is another prohibition on which there is a rather wide consensus.
Needless to say, it is also forbidden to create hybrids that would come from both animal and human genetic material. Hybrids of any form are forbidden, and it is not very difficult to understand why.
It is also prohibited—and I will get back to this—to provide and give gametes that will produce an embryo that would be used exclusively for research. It is important to understand this distinction.
The law maker believes that genetic material must primarily be used for procreation purposes. When a person gives sperm or an ovum, it must primarily be used to create an embryo and, ultimately, a child.
However, if a person goes to a fertility clinic and undergoes a cycle of ovarian stimulation, a number of ova may be generated through this technique. It will be possible for that person, with his or her free and enlightened consent given without any coercion, to give an ovum for research purposes. However, the basis and the premise that must be respected under all circumstances is that it is not possible to use and create an embryo exclusively for research purposes. Why? Because gametes, that is the sperm and ovum, must primarily be used to create an embryo that will eventually become a human being.
Since I alluded to research, I think it is important to make a number of distinctions regarding stem cells. The debate on stem cells is an important one, because in its first few days of existence, the embryo has some 200 of those stem cells. What is peculiar about these stem cells is that, at this point, their role has yet to be determined. These cells may become any organ, member and tissue of the human body. Because of this, they have huge potential in terms of regeneration and mobility. These stem cells are viable and they are important in the first few days of the embryo. Some researchers would like to use them to help people who are suffering from serious degenerative diseases and who may need these stem cells.
For stem cells to be used, an embryo must be destroyed. And since embryos have to be destroyed, it raises ethical issues. There has been an ongoing debate in Canada on which the Supreme Court of Canada made a ruling in 1988. The question is: At what point should an embryo be considered a human being? Is an embryo a human being? Is a fetus a human being? If one believes that an embryo is a human being from the moment of conception, then the destruction of embryos raises criminal, ethical and moral issues.
The regime set out in this bill will function by exception, meaning that the minister will issue licences. A researcher will be allowed to use stem cells only if he is issued a licence and if he can prove that no other genetic material will do. The system will function by exception.
Let me also point out that in committee, as those who have followed the work of the committee will know, witnesses representing major organizations have made very emotional pleas. We heard, for instance, from members of the Juvenile Diabetes Foundation, the Multiple Sclerosis Association, the Muscular Dystrophy Association and the Cerebral Palsy Association. The spokespersons for these organizations told us “Without research on stem cells, medical breakthroughs that would help improve the qualify of life of the people we represent will be virtually impossible”.
So, this raises questions. While some may respect life and the right to live from the moment of conception, others are committed to improving the quality of life.
If research on stem cells may improve the lot of a child with cerebral palsy or an adult with muscular dystrophy, if it may lead to greater autonomy for people, should it be totally banned? This is the kind of debate the bill is all about.
For now, the government has chosen a system that functions by exception. Research on stem cells will be possible only by ministerial permit and once it has been proven that available genetic material, human tissues and the conditions under which research can be done do not permit the desired research to be conducted.
We were presented an argument worth keeping in mind. Representatives from the Juvenile Diabetes Foundation appeared before the committee. They told us that in the 1950s--this was not several thousand years ago, but a mere half a century ago--the government was very reluctant to authorize research on recombinant DNA. It involved moral values and genetics. There were a lot of restrictions, barriers, debates and controversy surrounding this kind of research.
We were told that if it were not for research on recombinant DNA, sophisticated techniques in the area of insulin could never have been developed, for instance. We all know how much insulin has improved the living conditions of people with diabetes.
There are pros and cons. When the time comes to vote at third reading, each one of us will have to weigh the moral arguments we believe in. For my part, I will readily say that, even though it is not for me, a simple backbencher, to decide, I will have no qualms asking the leader of my party, the member for Laurier—Sainte-Marie, to allow a free vote. Obviously, in a bill of this kind there are moral and ethical issues involved.
It is not clear cut. Members who believe that life starts at conception have extremely pertinent, rigorous, well founded arguments to defend their point of view.
The Conference of Bishops and other witnesses came before us and asked us to respect the right to life from the time of conception. On the other hand, those who believe that we must also concern ourselves with making progress in the area of medical research have equally valid arguments.
I have an identical twin brother who has cerebral palsy. When my mother gave birth to us, in the early 1960s, the medical reality was quite different from what it is now. We were premature babies, born during the seventh month of pregnancy. My twin brother came first. My mother experienced a lack of oxygen so my brother now has cerebral palsy. This disease means that dead cells cannot be replaced. Dead neurons and cells are gone forever.
What if, in a few years, research on stem cells made it possible to revitalize tissues and change the fate of those people with cerebral palsy, would we want to preclude that altogether? Should we not keep in mind that, in science, what is prohibited today may not be in the future? I believe we should keep that in mind when we vote at third reading stage.
Back to the prohibited activities. Naturally, it is also prohibited to transplant a sperm, ovum, embryo or fetus of a non-human life form into a human being. The use of any human reproductive material for commercial purposes is also prohibited. We would certainly not want to live in a society where it would be possible to buy or sell gametes or ova as if they were mere commodities on the market. Nobody would want to live in such a society.
The committee members were also faced with an issue of a very high ethical nature, that of surrogate mothers. For the time being, the Civil Code of Québec, for example, only prohibits paying for the services of surrogate mothers.
It is illegal to pay a woman to act as a surrogate. Furthermore, the law clearly recognizes the perfect appropriateness of the role of parent, which is recognized with all its privileges and obligations, to the fact of giving birth to a child.
A child can be entrusted to somebody else's care or can be raised by someone else. Another person can take care of that child, provide for his education and take all the actions that go with parental authority. However, neither the civil code nor the common law recognize that the mother is not the person having given birth to the child. These principles are maintained in the bill.
Thus, the main restrictions provided for in the bill are based on principles which are universally acknowledged and about which there is a consensus. I congratulate the government for being on the right track. The committee has also done a very good job.
I would now like to talk about the preamble. In the bill, the preamble has an interpretative role; it does not have a coercitive value like the other clauses of the bill. However, I believe it helps to understand what the bill is about.
The draft bill contained a statement. The committee wanted the bill to contain very clear principles to guide the courts of justice in challenges and in their decisions.
These principles are about health, security and the dignity of any human being. These are inalienable rights which are acknowledged in all the major conventions. It is also about health and the concern for the well-being of children. As a matter of fact, the well-being of children was central in all the work we did in committee. To us, this was a fundamental concern.
The bill also states that women more than men are affected by assisted human reproduction technologies. Of course, this does not mean that the debate has nothing to do with men, but we understand that it affects women more than men.
Furthermore, we wanted free and informed consent for all decisions regarding donation of gametes, giving birth to children and using assisted human reproduction technologies.
In its report, the committee went further than what is included in the bill. It believed that medically assisted reproduction technologies should not be used without counselling being made available. We recommended mandatory counselling.
The government chose to ignore this recommendation for fear of constitutional problems. A legislative solution was difficult to find because counselling is under provincial jurisdiction. I can understand that the government would fear a court challenge under the charter of rights and freedoms, a challenge it stood to lose.
As for the fifth principle, understandably, all forms of trade in gametes are deemed deeply repugnant to human beings, just as all forms of female exploitation are.
The last principle we wanted to include in the preamble was the preservation and protection of human individuality and diversity. This covers the preamble and the main prohibitions.
I will now deal with another extremely important part of the bill, the whole issue of regulations. I was on the Standing Committee on Health when it considered the issue of tobacco labelling. The federal government set out on a campaign to curb tobacco use, which was a wise decision.
There are fewer and fewer smokers in Canada, but some very specific groups are smoking more. For instance, girls smoke more than men.
The hon. member for Chambly, a man who is not lacking in will power, and who does not have many faults, has one small one: he is a smoker. The combined pressure of all his caucus colleagues might reduce his smoking somewhat, but this is a matter of individual freedom, so the member for Chambly will carry on as before. He will quit when he is ready to. I believe, however, that he would be in far better shape if he quit his three pack a day habit. There is, however, no way we are going to pressure him. The hon. member for Chambly is going to carry on as he wishes, but the will power he has always expressed leads me to be extremely optimistic for the future outcome.
The connection I wanted to make with the tobacco labelling issue is that there was mandatory tabling in the House for the regulations on this. For certain bills, regulations are more important that the legislation itself. This is true. Why are the regulations important where assisted human reproduction is concerned? Because this is what will set out the conditions under which gametes are to be stored, how things will be managed in practical terms, the operational reality of fertility clinics. All this will be governed by the regulations, as well the entire matter of handling donated material.
In this connection, I would like to point one thing out to the minister and the departmental staff listening to us, who took the bus with me this morning. We had a quick and very friendly discussion. My reading of clause 65 of the bill was that there was no firm obligation for the government to bring the regulations before the House first, and then refer them to the Standing Committee on Health so that there could be an informed examination, with a report to the House, in order for the regulations to be processed with all desired transparency.
Let us look at sub clause 65.(1):
(1) The Governor in Council may make regulations for carrying into effect the purposes and provisions of this Act and, in particular, may make regulations
(a) defining “donor”, in relation to an in vitro embryo;
The member for Chambly will correct me if I am wrong, but when a bill says “the governor in council may”, it does not have the same coercive value as “the governor in council shall”. I would have liked subsection 65. (1) to contain an unequivocal requirement in the form of the word shall. The Bloc Quebecois will also be putting forward an amendment in committee to this effect.
I am sure that all members of the House will join with me in thanking the member for Drummond. She was very clear-sighted. In 1997, she introduced a private member's bill in an attempt to use the means at her disposal as an MP to cover this legal void. This was quite something.
Let us look at the history. After hearing from 40,000 witnesses, the Baird commission tabled a report, in 1993, if I am not mistaken. The government took nearly ten years to act upon it. The Baird commission began its work in 1989. The report was tabled in 1993. The commission's work cost $28 million.
I will take 30 seconds to remind the House of this saga. The Baird commission included a group of dissidents. I would mention that one of the top experts on this subject is the wife of the Leader of the Progressive Conservative Party. Back then, there was a genuine desire to make sure that the privy council would let the Baird commission do its work without political interference. An application was even made to the federal court to ensure that the Baird commission would be granted all the independence due such a commission of inquiry.
The Baird commission cost $28 million. It heard 40,000 witnesses. The report was tabled in 1993 and it took close to a decade—since we are now in 2002—for the government to take action.
The hon. member for Drummond put pressure on the government. She asked questions every day, because there was a danger. That danger was the following: if a public or private laboratory in Canada had engaged in cloning or other practices prohibited under the bill, how could we have upheld the fundamental principles that we have been talking about since 10 o'clock this morning, considering that there was no legislation?
Again, I am sure that all hon. members will want to join me in thanking the member for Drummond, who has been a pioneer in this regard, who took initiatives and who followed this issue very closely.
I have a minor disappointment with the bill. Overall, it is well drafted and our committee worked well and benefited greatly from the expertise provided by witnesses. However, the government erred in one aspect.
Indeed, in our report entitled “Assisted Human Reproduction: Building Families”, we made a recommendation—I believe it is recommendation No. 19, if I am not mistaken—to the effect that it should not be possible to give gametes, that is ova or sperm, without accepting the fact that the offspring may want to establish a link with the donor and get to know his or her biological parent.
The committee heard from many witnesses who were born following the use of technologies such as the one that we are discussing this morning. These people gave us their views on identity, psychogenesis and all the things that allow a person to become a well-adjusted human being, a productive citizen involved in the community in which he or she grew up. These people urged us to ensure that this would not be optional.
Right now, a donor can say that he or she will later give his or her authorization to be traced. However, this is not compulsory. What is compulsory is that a register be maintained so that, as regards medical history—for example if a donor offspring needs to know the donor's blood type—it will be possible to obtain this type of information.
I would have liked to see this be made mandatory and the bill specify that if one consents to be a sperm or an ova donor, one has to accept that the child that will be born from that process will be authorized to openly trace the donor and could one day contact the donor.
I understand that two main concerns prevented the government from yielding to this argument. The government was afraid that if disclosure was made mandatory, the number of donations would fall.
I do not think that this argument is justified. In countries where disclosure was made mandatory, there was indeed a reduction in the number of donations in the first months or the first year, but after a while, thanks to a good publicity campaign, the situation returned to normal.
As for the agency that is being created by the bill, the minister and the agency share the responsibility to promote these technologies and increase public awareness. The government could have shown a little more courage and have implemented the committee's first recommendation.
The first argument was that by making disclosure mandatory, the number of donations would fall dramatically, and the government was concerned about this.
The second argument was that this was not necessarily a good thing for the family. However, if the donors remain anonymous, does this not contribute to stigmatizing infertility?
Is it good for us, as a society, to maintain this culture of secrecy linked with anonymity? Are people who are infertile not subject to prejudice? By surrounding the whole process of gamete donation with secrecy, with a sort of occultism, is the government not helping to maintain the culture of secrecy that surrounds sterility, which is not good? Sterility should be treated as a condition that has nothing to do with people's will. It should not be subject to any taboos. It should not be dealt with by exclusion. A sterile woman should not feel any less a woman, nor should a sterile man feel any less a man. A culture of secrecy does not help us achieve this goal.
Another concern we have is the creation of the Assisted Human Reproduction Agency of Canada. We are happy that this agency will be separate from the Department of Health. The committee believed it was important, even though the minister was required to table an annual report and be ultimately responsible for the enforcement of the act, to make the agency distinct from Health Canada. The government followed our recommendation.
However, we are concerned about the fact that the agency will be comprised of 13 individuals. There will be a representative of the federal government, yet in our report we recommended there be no representative of the federal government. If my interpretation of the bill is right, the provinces will also have a representative. As far as we are concerned, this is insufficient.
In her speech, the minister noted that Canadians wanted legislation on medically assisted human reproduction. This is no doubt true, but we have to realize that the whole issue of fertility clinics, and the medical procedures involved in reproductive technologies, on both ends of the process, come under provincial jurisdiction. The federal government has invaded the area of reproductive technologies through the criminal code. Because there are criminal offences involved, the federal government is avoiding any constitutional challenges to its jurisdiction when it comes to medically assisted reproductive technologies.
We will certainly move amendments to ensure that the provinces are more adequately represented. We will also propose amendments to ensure that the provinces are involved in the drafting as well as in the implementation of the regulations. We know that the only way to meet that objective is for the regulations to be tabled in the House of Commons and then referred to a parliamentary committee, as is the case of the Tobacco Act.
Since I am running out of time, I will use these last minutes to summarize. What we have here is a good bill. The Bloc Quebecois will support its speedy adoption. We think that it is important to fill the legal void that exists. We will move three amendments, including one concerning the regulations and one concerning mandatory disclosure of sperm donations. I will add that we may move another amendment. In the preamble, we will ensure that access to technologies related to assisted human reproduction is not subject to any form of discrimination, whether it is based on sexual orientation or on marital status.
We have been told that it is very difficult for single women to have access to these technologies. We think that, under both the Canadian and the Quebec charter, there should be no discrimination in this regard.
That concludes what I wanted to say about this bill on behalf of my party.