Madam Speaker, as I was saying, I do understand the concern that this child would know nothing of his or her medical history. However, the bill in fact does pay attention to that issue and does have clear guidelines on this. The bill as it stands proposes to ensure that the donors give solid medical history. Without agreeing to do that their donations would not be accepted. That is the first piece.
The second piece is that the solid medical history would not only be given at the time of the donation--genetic history, medical history, past history, social history et cetera--but it would also be followed up by some manner that would be devised later on so that as time goes on over the donor's lifespan, if new diseases or new genetic issues come up, that would also be known and relayed to the child or to the family whose child is born of that donation. Since there would be no payment associated with donation any more, it would ensure that the actual identity of the donor would not be known.
People would know that the person who donated, person x , had such a history and had such a problem, and that they should be careful about that in their own life and in their own medical history. However it would not be known that the person's name was Mr. or Mrs. Jones or whatever.
First, contacting the biological donor later on would have to be dealt with at the provincial level. Second, when a donor donates sperm or an egg when they are young, they may not believe that they would have someone come to them 25 years later to claim parentage, or for that matter, five people come later on in their lives to claim parentage.
This is a way of protecting the rights of all, especially and most important the right of children to know their own history and to be safeguarded in terms of how they live their lives and what treatment they need, and how they need to be assured that whatever genetic problems would not come back to haunt them. This finds that clear ethical balance that we have been seeking in the bill. I would like to speak strongly against those who would want to move further than that.
I also want to speak in support of Motion No. 72 which seeks to remove the whole paragraph that deals with who can and who cannot sit on the board or the agency. I understand the concern of many people that we do not want conflict of interest issues raised by people who sit on the board. But by removing these two sections, we still have that conflict of interest guideline in the very next clause.
This is too prescriptive. I know the committee debated this at great length, but when the committee put forward its amendment that stands in the bill right now, that amendment was so prescriptive and restrictive. I will give an example. Let us imagine a person who is well known in her community. She is well known for her good work and for her ethics. She is a member of the church. She has shown wisdom and kindness in the past. She has certain knowledge and is asked to sit on the board. However it turns out that her husband happens to work for a medical company. Medical companies would be exempt although the medical company her husband works for does not necessarily create any equipment to be used in these particular technologies, but other medical and pharmaceutical companies do. That person could not then sit on the board because of that indirect relationship.
We would be removing anybody at all who was in any way close to a person who was working in a profession that may or may not be involved in reproductive technologies but in a generic profession. Certainly, one of the problems is that we would leave ourselves with a board of people who have absolutely no expertise on this issue whatsoever. It is clear that we cannot do that. This is a very important technology. It is state of the art. It is moving constantly. There is new research coming about. We need people who have some understanding of the work, but who are not directly linked to having a licence or who own a facility, and would benefit fiscally from making decisions on the board.
We can do that with the amendments that were brought forward by the minister, by deleting certain sections but leaving very clear the sections which say that people who stand to gain financially or who are involved with doing reproductive technologies at that time should not sit on the agency. We do need people who are ethicists. We need people who are physicians. We need nurses. We need people who know somethings about these things on the full board. We need a broad spectrum of people. At this rate, we are limiting the people who can sit on the board to fur traders, I think, to people who have nothing whatsoever to do with pharmacology, medicine or science. This is a real problem.