Mr. Speaker, I am extremely pleased to speak to the bill introduced by my colleague from Nickel Belt, which seeks to establish a national strategy for dementia. This is particularly important for me as a nurse. I believe that this bill reflects a reality that we will have to face.
In order to understand how vitally important it is to have a national strategy for dementia, we need to understand that the population is aging. The number of Canadians with dementia is growing in tandem with the growing number of seniors. Although there is such a thing as early onset dementia, this disease mainly affects the elderly.
Right now in Canada, 740,000 people have Alzheimer's or a dementia-related disease. However, by 2031, this figure is expected to double to 1.4 million Canadians. In my region of Abitibi-Témiscamingue, 15.8% of the population was 65 or older in 2013. In 2031, 28.8% of the population will fall into that age category. Obviously, Alzheimer's and other types of dementia will be more widespread in a region like mine. It is therefore vital that we combine our efforts to develop a strategy to address this phenomenon, since it will take up a large share of regional health budgets and will become a growing concern for regional authorities.
Furthermore, it is important to better recognize the importance of prevention in order to identify early symptoms and intervene quickly. A strategy for dementia should be based on maintaining brain health and on preventing the illness among those who are particularly susceptible to it. Many studies have shown that some memory exercises can slow the disease's progression. However, if we wait too long to intervene such measures are not as effective.
The health system currently does not have the resources required to address this phenomenon. The problem could become overwhelming if we do not change our approach and if the federal government continues to neglect provincial transfers.
Direct and indirect medical expenses, such as the loss of income, currently total $33 billion a year. This could rise to $293 billion a year. We must create an integrated health system where we implement best practices to ensure that we treat these illnesses and provide community support.
The phenomenon of dementia is unique because those who suffer from this disease are primarily looked after by family caregivers. In 2011, family caregivers spent 444 million unpaid working hours providing care. This translates to $11 billion in lost income, or the equivalent of 227,760 full-time employees. It is therefore vital, when considering a national dementia strategy, to consider the circumstances of family caregivers. In many cases, dementia is an illness that develops slowly. People remain in their surrounding environment for a very long time.
The person's family members end up having to spend more and more time keeping him or her healthy and safe in his or her environment. This is extremely exhausting. Spouses can easily spend 10 to 15 years caring for a sick loved one, and regularly do, before health problems get too serious for them to handle. We need to make sure that family caregivers can keep doing this job and that they get support from their community to help their loved ones.
What people need when they are trying to help their loved ones, and what they often lack, is access to respite services. Caregivers often get worn out. Having someone who can take over every now and then for a day or a weekend enables caregivers to keep doing their amazing work caring for people with dementia.
The strategy must include mechanisms to ensure that staff have the necessary knowledge about the disease and the skills to deal with it. This means that people have to share information. The purpose of a national strategy is to share information. People should not be working in isolation. We have to find a way to make sure that everything we learn, everything that might be useful, such as best practices, is communicated to people struggling with the same problems. It is essential for people to have ways to talk to each other. The goal is not to step in for the provinces but to ensure that communication channels remain open and people work together. Real collaboration needs to happen so that people can share best practices. We have to make sure that nursing staff, doctors and other professionals have the right knowledge and skills to work with people with dementia and provide them with quality care that is appropriate for their situation.
They are often forgotten, but the volunteers who work in this field need to be able to understand the reality of a person living with dementia. It is not always an easy thing to do. There are certain situations that are very difficult to go through on a daily basis and it is hard to know how to intervene. The volunteers who work at these centres must have access to the knowledge and skills they need to properly understand the reality of the field they have chosen to work in.
As far as research is concerned, we have extraordinary Canadian researchers, but we could also form international partnerships to further our knowledge. In my opinion, the quality of daily life for people with dementia is an essential area of research. Lately, a lot of research has been done on daily life. In Quebec at least, there has been a shift from a very medically based approach to one focusing on the daily experience of dementia sufferers. The goal is for the transfer to long-term care centres to go as smoothly as possible. For that to happen, the person with dementia needs to create reference points. A lot of advances have been made because of these various approaches that focus on the quality of life and ways of providing care and intervention. Not only is this helping those living with dementia to live much more happily, but it is also enabling the families to be an integral part of the care process.
There is a lot to do. With the challenges this will present in the coming years, it is essential to share information in order to adopt an effective national strategy for dementia.