Good morning.
I'll speak in French, but I can answer questions in English, if they're not too complex. I'm a little nervous this morning.
Madam Chair and members of the Standing Committee on Human Resources, Skills and Social Development and the Status of Persons with Disabilities, thank you for inviting me to testify today. I previously appeared before this committee in 2018. Therefore, I'm very pleased to see that the project is ongoing.
I'm here as a researcher and trainer. For over 10 years, I held the Chaire de recherche du Canada sur la santé psychosociale des familles, which focused on perinatal bereavement. I am also a health research fellow at the Fonds de recherche du Québec, where our work has focused on perinatal bereavement for over 15 years. I will be speaking to you about work spread out over more than 30 years of research experience, involving more than 35 projects conducted to examine the experience of parents and stakeholders in perinatal bereavement.
I am also the mother of three daughters. My middle child died 36 years ago at 26 weeks of pregnancy. Had that not happened, my career might have taken a different turn and I might not have focused on perinatal bereavement. It must be said that back then, it was trivialized. Even today, we have trouble acknowledging that this has occurred.
To put perinatal death in context, one in four pregnancies ends in perinatal death, whether early, meaning in the first 20 weeks of pregnancy, or late, after 20 weeks of pregnancy. That's about 100,000 perinatal deaths per year.
The statistics take into account the 1,000 deaths that occur around the time of birth, but they neglect all the early deaths that occur at 12, 18 or 20 weeks, which parents experience as the loss of a person who is already a small baby.
A first episode of perinatal death also increases the risk of complications in the next pregnancy. A 25-year-old woman who experiences a miscarriage six weeks into her pregnancy is already more likely to experience a second miscarriage, stillbirth, premature birth or even infertility. These risks are amplified each time it happens. However, despite how prevalent it is, the phenomenon continues to be trivialized.
What our studies from the past 30 years have taught us is that men react to bereavement as strongly as women do, but their experience is often overlooked and they are relegated to a supporting role.
What about the other parent? We really have very little data on the experiences of co-mothers or adoptive fathers in a perinatal death.
What we know is that the symptoms of grief are just as significant for parents who experienced a perinatal death between 12 and 20 weeks of pregnancy as for those who experienced a later death.
Perinatal death and the resulting grief have harmful and lasting effects on the mental health of women and men. Up to five years or more after a death, they can experience depression, anxiety, post-traumatic stress, somatic symptoms and obsessive-compulsive disorders.
In our study of women who had a miscarriage in the first 20 weeks of pregnancy, one in five women in our sample had suicidal thoughts. That's not insignificant.
International studies show that one in four women sees a psychiatrist after a perinatal death. There is a cascading effect on the health care system.
What we also know is that symptoms of grief, depression and anxiety persist into the next pregnancy, and even after the birth of the child, particularly among men, who often react more strongly after the birth of a living child.
The mental health impacts on both parents are real in the short, medium and long terms.
These mental health conditions will also have an impact on children, both those in the family at the time of the death and those born afterward, because when children are exposed to depression and anxiety in their parents, they are also more likely to experience mental health issues, depression, anxiety and behavioural problems in turn.
Therefore, it is clear that perinatal bereavement has a ripple effect on the entire family.
Perinatal bereavement also has an impact on the physical health of parents, who may develop heart disorders, gastric disorders or inflammatory disorders.
The current lack of leave support therefore has consequences for the person, the relationship, the children and the workplace.
In terms of relationships, we know that when one of the parents returns to work prematurely, the spouses will have trouble supporting each other in their grief, which will lead to tension and distance within the couple.
The work done by Ms. Meunier, who gave a presentation earlier, tells us that returning to work prematurely has consequences, whether it's presenteeism, meaning when someone is at work but not really productive, difficulties related to returning to work or prolonged distress. If someone is unproductive in front of a computer, it's not that bad. However, if someone is unproductive while operating heavy machinery, that can have consequences for workplace safety, for them or for the people around them.
Parents also told us that they had lost their jobs because their employer felt that they had become unmotivated, that they were different, that they had changed. I wonder why.
In conclusion, not supporting parents when this happens and in the weeks and months that follow is costly for society. It's expensive. Perinatal bereavement has direct and indirect economic consequences that are still misunderstood.
Our studies have shown, as I mentioned earlier, that parents who experience perinatal death make repeated and increased use of health services in the ensuing months and during the next pregnancy. There are costs to the health care system that have not been catalogued.
At the same time, we know that there are also social and familial costs stemming from the psychological consequences on existing children, on family relationships and on extended family members. Grandparents write to tell me about the distress they are experiencing.
Mr. Chair, you are signalling that my turn is up, but I will take another second.
There are also costs associated with mental health problems in the workplace, which are not catalogued and are still misunderstood.
I therefore conclude by recommending that all parents who experience perinatal death be granted paid leave so that they can physically and emotionally recover from the shock, which is what Bill C‑222 proposes to do.
Thank you.