Evidence of meeting #8 for Medical Assistance in Dying in the 44th Parliament, 1st Session. (The original version is on Parliament’s site, as are the minutes.) The winning word was suffering.

A recording is available from Parliament.

On the agenda

MPs speaking

Also speaking

Joint Chair  Hon. Yonah Martin, Senator, British Columbia, C
Brian Mishara  Professor and Director, Centre for Research and Intervention on Suicide, Ethical Issues and End-of-Life Practices (CRISE), Université du Québec à Montréal, As an Individual
Derryck Smith  Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual
David E. Roberge  Member, End of Life Working Group, The Canadian Bar Association
Marie-Françoise Mégie  Senator, Quebec (Rougemont), ISG
Stan Kutcher  Senator, Nova Scotia, ISG
Pamela Wallin  Senator, Saskatchewan, CSG
Sean Krausert  Executive Director, Canadian Association for Suicide Prevention
Valorie Masuda  Doctor, As an Individual
Joint Clerk of the Committee  Mr. Leif-Erik Aune
Kwame McKenzie  Professor of Psychiatry, University of Toronto, As an Individual

2:35 p.m.

The Joint Chair Hon. Yonah Martin, Senator, British Columbia, C

I call this meeting to order.

Hello, everyone.

Welcome to the meeting of the Special Joint Committee on Medical Assistance in Dying.

I'd like to begin by welcoming the members of the committee, the witnesses and those watching this meeting on the web. I'm Senator Yonah Martin, and I'm the Senate joint chair of this committee. I'm joined by the Honourable Marc Garneau, the House of Commons joint chair.

Today we're continuing our examination of the statutory review of the provisions of the Criminal Code relating to medical assistance in dying and their application.

The Board of Internal Economy requires that committees adhere to the health protocols that are in effect until June 23, 2022. As joint chairs, we will enforce these measures. We thank you for your co-operation.

I'd like to remind members and witnesses to keep their microphones muted unless recognized by name by a joint chair. I would remind you that all comments should be addressed through a joint chair. When speaking, please speak slowly and clearly. Interpretation in this video conference will work like an in-person committee meeting. You have the choice at the bottom of your screen of floor, English or French audio.

With that, I'd like to welcome, on behalf of our committee, our witnesses for panel one. They are here to discuss whether to permit medical assistance in dying for mental illness in Canada.

In this panel we have, as individuals, Brian Mishara, professor and director, Centre for Research and Intervention on Suicide, Ethical Issues and End-of-Life Practices, Université du Québec à Montréal; and Dr. Derryck Smith, clinical professor emeritus, department of psychiatry, University of British Columbia. We also have Mr. David E. Roberge, member, end of life working group, the Canadian Bar Association.

Thank you, witnesses, for joining us today. We'll begin with opening remarks from Dr. Mishara, followed by Dr. Smith and Mr. Roberge.

Dr. Mishara, you have five minutes. The floor is yours.

2:35 p.m.

Professor Brian Mishara Professor and Director, Centre for Research and Intervention on Suicide, Ethical Issues and End-of-Life Practices (CRISE), Université du Québec à Montréal, As an Individual

Thank you.

For 50 years I've been conducting research on suicide prevention and end-of-life issues and working in suicide prevention. In 1995 I held the Bora Laskin national fellowship in human rights research to study euthanasia in the Netherlands. I have published 12 books and over 180 scientific papers.

We live in a country where our laws and culture emphasize respect for autonomous choice. However, society does impose limits to protect us from making decisions that are dangerous to ourselves. We are legally obliged to wear a helmet on a motorcycle, a seat belt in a car and a hard hat at a construction site. Our government acts to protect competent people from making decisions that may endanger their health and well-being, whether they like it or not. We must protect people from making irreversible decisions to die when there is hope for recovery.

I believe suffering from a mental illness may be as intense as suffering from a physical illness. The key issue is whether it is possible to determine if suffering from a mental illness is interminable and irremediable. The expert panel report on MAID and mental illness states that there are no specific criteria for knowing that a mental illness is irremediable, and they do not provide one iota of evidence that anyone can reliably determine if an individual suffering from a mental illness will not improve.

According to research, 50% to 60% of persons with depression or anxiety will recover without any treatment. Even the most severe mental illnesses, such as schizophrenia, are unpredictable: 50% of people with schizophrenia meet objective criteria for recovery for significant periods during their lives.

If it were possible to distinguish the very few people with a mental illness who are destined to suffer interminably from those whose suffering is treatable, it would be inhumane to deny MAID. But any attempt at identifying who should have access to MAID will make large numbers of mistakes, and people who would have experienced improvements in their symptoms and no longer wish to die will die by MAID.

Throughout the western world, it has been statutory and customary practice to protect suicidal persons from dying. Almost all high-risk suicidal persons I have talked with would meet the current requirements for MAID. Over 90% of people who die by suicide have a diagnosable mental disorder. They usually have had many years of mental health treatments, and they are convinced that their suffering is intolerable, inevitable and interminable. They are almost always wrong in their assessment. Even in extreme cases where a person is taken to hospital unwillingly, only 10% will attempt again, and only 1% to 3% will die. The vast majority are happy to have been saved and are usually very thankful to be alive.

For every heart-wrenching story of someone who suffered interminably from a mental illness, there are so many more people who got help and were happy to be alive. If MAID for people with mental illness becomes legal next year, a large proportion of suicidal people could be dead instead of getting the help they need.

Canada already has the most liberal access to MAID in the world. Elsewhere, all people who receive MAID are denied their request if there are other treatments available to alleviate physical and mental suffering. Both the physician and patient must agree that there is no reasonable alternative. In Canada the physician must inform patients of potential treatments, but if the patients don't feel they are acceptable, medical professionals are still obliged to end their lives.

In the Netherlands no one is forced to try the treatments, but the doctors are not allowed to end people's lives if they believe their suffering may be alleviated by other means. In the Netherlands only 5% of requests for MAID for a mental disorder are granted. After receiving an average of 10 months of psychiatric evaluations, almost all requests are refused, usually because untried treatments are available.

Even in medical cases of terminal illness, 40% of requests are refused because the doctor believes there is some untried treatment for the suffering, and hardly any of those who are refused repeat their request after trying the treatments. The expert panel's report ignored the research showing that a large proportion of people feeling utterly hopeless with a mental disorder will improve over time. It provides no evidence indicating that anyone can tell if a mental illness is incurable, irreversible and enduring, because the research indicates this is currently not knowable.

I have personally known—

2:40 p.m.

The Joint Chair Hon. Yonah Martin

Thank you, Dr. Mishara. Five minutes have passed.

2:40 p.m.

Prof. Brian Mishara

—hundreds of thousands of people who have convincingly explained that they wanted to die to end their suffering and are now thankful to be alive. If you proceed to allow MAID for persons with a mental illness, how many people who would later have been happy to be alive are you willing to allow to die?

2:40 p.m.

The Joint Chair Hon. Yonah Martin

Thank you very much, Dr. Mishara.

Next we will have Dr. Smith for five minutes.

2:40 p.m.

Dr. Derryck Smith Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual

My name is Derryck Smith. I am a practising psychiatrist. I was head of children's and women's psychiatry in Vancouver for 30 years, and I have been personally involved in two cases involving psychiatric illness and MAID, both of whom have received MAID, incidentally.

You've heard a [Technical difficulty—Editor].

2:40 p.m.

The Joint Chair Hon. Yonah Martin

I'm sorry, Dr. Smith, but your sound is going in and out. We're only catching a few of your words. I wonder if there is a technical issue.

2:40 p.m.

Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual

Dr. Derryck Smith

I don't know. I'll try again.

2:40 p.m.

The Joint Chair Hon. Yonah Martin

Would you continue? Thank you.

2:40 p.m.

Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual

Dr. Derryck Smith

I'm talking about the reliability of psychiatric diagnoses. There's good research that shows that psychiatric diagnoses are as reliable as other medical diagnoses. This is in spite of the fact that we don't have biological markers like blood tests or X-rays to make psychiatric diagnoses. The reason for that is that the brain's a very complicated organ and we don't understand it.

However, the courts have certainly relied on psychiatric diagnoses over many years. In fact, the Truchon case in Quebec, which ended up with Bill C-7 being introduced, relied extensively on psychiatric diagnosis. The madam justice found that a psychiatrist can make accurate diagnoses.

In my opening statements—which you have—I've included a table showing that, compared to other medical diagnoses, psychiatric diagnoses are just as reliable.

The second thing I want to talk about is whether psychiatric illness is irremediable. Mental illness usually isn't a terminal illness, unless you're looking at conditions like Alzheimer's. Under current law, one does not have to have a terminal illness as a requirement for MAID.

I think it's instructive to look at the case of A.B. from Ontario, where a judge granted MAID for a woman who had osteoarthritis. This is not a condition that is terminal or usually results in death. The judge agreed to providing MAID for A.B. because she looked at the whole person. One cannot look just at a diagnosis. You have to understand the nature of the human experience of the person who's sitting in front of you. Don't rely entirely on what the diagnosis is. It's the person that we're interested in here.

In a more recent decision, Justice Baudouin granted Jean Truchon, a disabled man, his request for MAID. In the judgment—which I'm sure you've had—on paragraph 466 it says, “The physicians involved are able to distinguish a suicidal patient from a patient seeking medical assistance in dying.” That was one of her conclusions.

Unlike the previous witness, I think, when it's tried in a court of law, the judge has accepted that psychiatrists can distinguish between suicidal thinking and people who are seeking MAID. I'm in agreement with that.

Now, “irremediable” is a term that's used when there are no more treatments available that are “acceptable” to the patient. Under law, the patient cannot be forced to take any types of treatments that are available. They must agree. If a person refuses additional treatment, I would, therefore, consider them to be irremediable. One of the major controversies in psychiatry is whether people with depression should be forced to have electroconvulsive therapy. I think the law is quite clear. The patient must agree. If they don't agree and there are no other treatments available, then the person has an irremediable condition.

We're not talking here about people who have been depressed for a day or have had six months of distress. We're talking about people who have been psychiatrically ill for years and have tried many different treatments—medication, psychotherapy and so on. All of the cases you've heard quoted from the Netherlands are chronic patients with many years of treatment.

The next thing I want to speak about is whether the vulnerable need protection. Again, this has been tried in court with both the Carter case and Truchon case. There is no evidence that vulnerable people are at risk for MAID. In fact, if you look at the actual people who are receiving MAID, they are typically white, well educated and well off. You could easily argue that the marginalized communities are disadvantaged because they're not accessing MAID. In the Truchon case, Justice Baudouin equally found that the disadvantaged are not being taken advantage of and you must do each case at a time.

I thought I would talk to you about the two cases I've been involved with.

One was a woman, E.F. This was extensively reviewed by Madam Justice Baudouin in her judgment. E.F. was a woman with a conversion disorder. She had the condition for about 10 years. It's a complicated psychiatric neurological condition. In the end, a justice in the Queen's Bench granted her MAID. The Attorney General of Canada appealed it and the court of appeal granted it based entirely on the psychiatric diagnosis.

That was before Bill C-14, when the rules flowed out of the Carter decision. We know from Carter that psychiatric illness was not an exclusion.

If you look carefully at Bill C-14, there is nothing that excludes psychiatric patients. Again, this was a finding from Madam Justice Baudouin in the Truchon case.

I, personally, was involved with a woman who was in her forties. She'd had an eating disorder for many years. She'd had every known treatment. The family was richly resourced. She'd been to treatment centres in the United States. I interviewed her and her father, who was a retired Supreme Court justice. Her father said knowingly that he understood the situation and it broke his heart to agree with his daughter that she needed an assisted death. In the end, it was his opinion that she should have an assisted death. After a full assessment program, she did have an assisted death. Those are the only two patients that I've been personally involved with.

The numbers across Canada up to this point are enormously small and they will, incidentally, continue to be small as well. If we look at the Benelux countries, there are very few patients who actually get approved for psychiatric illness leading to MAID, so we don't have to worry about a tsunami of psychiatric patients lining up, applying for MAID and being approved for that.

2:50 p.m.

The Joint Chair Hon. Yonah Martin

Thank you very much, Dr. Smith.

Lastly, we'll have Mr. Roberge for five minutes.

2:50 p.m.

David E. Roberge Member, End of Life Working Group, The Canadian Bar Association

Good afternoon, Chairs and honourable members of the committee.

My name is David Roberge, and I am a member of the end of life working group of the Canadian Bar Association.

On behalf of the CBA, thank you for the opportunity to address this committee.

The Canadian Bar Association, or CBA, is a national association of 36,000 legal specialists from across the country. The CBA end-of-life working group comprises a cross-section of members from diverse areas of expertise, including constitutional and human rights law, criminal justice, and health law.

The CBA has demonstrated an abiding commitment to clarifying the law about end-of-life decision-making and stressing the importance of a pan-Canadian approach consistent with the criterial established by the Supreme Court of Canada in Carter.

We acknowledge that medical assistance in dying is complex and raises important issues and diverse views. This is perhaps even more so in cases of mental illness. The CBA recognizes the importance of appropriate health care and social support for people living with mental illness. Meanwhile, we must realize that the suffering of these individuals is no less real than those of individuals with physical illnesses.

As such, the framework should recognize the rights of persons with mental illness to make their own health care decisions, including MAID, in a manner that balances autonomy and appropriate safeguards.

In a nutshell, the CBA's position regarding the issue of MAID and mental illness as the sole underlying medical condition is as follows.

Firstly, Parliament should authorize MAID in some cases of mental illness pursuant to a patient-centric approach and provided appropriate safeguards are in place.

Secondly, Parliament must ensure that any additional safeguards, whether they relate to the expertise of the assessor, timelines, or informed consent, do not unduly prolong the suffering of patients would otherwise be eligible for MAID.

Thirdly, Parliament should ensure that in cases of mental illness, MAID aligns with current best practices in mental health care.

While some issues pertaining to MAID and mental illness would be more appropriately addressed by medical experts, the CBA wishes to highlight key considerations on the topic of appropriate safeguards from a legal perspective.

As to the scope of the law, Parliament must clearly define the scope of MAID in the case of mental illness to avoid any ambiguity on the applicable protocols and safeguards.

As to the assessor's expertise, in view of the inherent complexity of mental illnesses, Parliament might wish to require that one of the MAID assessors be a psychiatrist. Access to those specialists in practice must also be considered, because any delays could unduly prolong the patient's suffering.

Regarding time limits, currently, for situations where natural death is not foreseeable, at least 90 days must elapse between the initial request and the administration of MAID. An appropriate period is required to enable MAID assessors to conduct a full review of the patient's circumstances. Parliament must be mindful of the risk of arbitrariness in setting time limits, irrespective of the nature of the mental disorder.

Turning to informed consent, the patient requesting MAID must have been offered reasonable therapeutic solutions in order to make an informed choice. The opportunity to strengthen informed consent criteria is the subject of debate. In this regard, the CBA maintains that consideration must be given to the health care standards guidelines of provincial governments and professional regulatory bodies.

2:55 p.m.

The Joint Chair Hon. Yonah Martin

Thank you, Mr. Roberge and all of our witnesses.

We will go into our first round. Each member will have five minutes.

First, it's Mr. Cooper.

2:55 p.m.

Conservative

Michael Cooper Conservative St. Albert—Edmonton, AB

Thank you, Madam Chair.

Thank you to the witnesses. I'm going to direct my questions to Dr. Mishara.

Dr. Mishara, the final report of the expert panel concluded that, on the question of irremediability in the case of mental illness, that can be reasonably satisfied based on the evolution and response of the patient to past interventions and treatments. In other words, if treatments and interventions haven't worked and haven't made them better over a period of time, that would suffice to satisfy the requirement of irremediability.

I'd be curious as to your thoughts. That was also stated by Dr. Smith.

2:55 p.m.

Prof. Brian Mishara

I believe that Dr. Smith confuses irremediability of the diagnosis and the reliability of giving a diagnosis with the question of irremediability of the symptoms that lead to a request for MAID. Yes, you can reliably determine that someone has schizophrenia or suffers from depression, but the vast majority of people with those mental illnesses will not seriously consider suicide, request MAID or have severe, untreated symptoms that lead them to want to die.

I'm a scientist. The latest Cochrane Review of research on the ability to find some indicator of the future course of a mental illness, either treated or untreated, concluded that we have no specific scientific ways of doing this. We are relying on the clinical hunch of someone who hasn't known the person for 20 or 30 years and who has no scientific data showing that they can determine this.

I accept that many mental illnesses are not remediable, but that doesn't mean that a person with proper treatment will not have a good and full life, despite the fact of having a mental illness. The real issue is that, in suicide prevention, every single person who calls a crisis line meets the MAID criteria. They are suffering. They feel it's interminable, and they often have refused treatment.

The difference between Canada and every other country in the world is that elsewhere in the world, if the physicians feel there is a treatment, the person doesn't have to do the treatment. It's up to them, but they don't kill them.

2:55 p.m.

Conservative

Michael Cooper Conservative St. Albert—Edmonton, AB

I'm sorry to interrupt. I want to allow you to pick up on that point, because Dr. Smith said that, in the case of the Benelux countries, a very small number of persons who access MAID suffer from a sole underlying mental illness condition. Hence, there's nothing to worry about. I think that ties in with what you were going to say.

2:55 p.m.

Prof. Brian Mishara

The number who are accepted is fairly small. In 2016, in the Netherlands, it was about 1,500 people who requested it. They have a very detailed protocol, which takes an average of 10 months of assessments and evaluation. Of those almost 1,500, they accepted 60 of those cases after spending more time with the patients than most mental patients receive in psychotherapy in Canada over the course of 10 or 15 years. The number who request it is fairly substantial.

In those countries, the number that are accepted is low because they have this criteria and they believe there is some treatment. Whether the person wants it or not is their choice, but they feel that the state is not obliged to end the lives of people who can be treated.

3 p.m.

Conservative

Michael Cooper Conservative St. Albert—Edmonton, AB

Right, and—

3 p.m.

The Joint Chair Hon. Yonah Martin

There are about 10 seconds left, Mr. Cooper.

3 p.m.

Conservative

Michael Cooper Conservative St. Albert—Edmonton, AB

My time, Madam Chair, has therefore expired.

3 p.m.

The Joint Chair Hon. Yonah Martin

Thank you.

Next, we will have Mr. Arseneault for five minutes.

3 p.m.

Liberal

René Arseneault Liberal Madawaska—Restigouche, NB

Thank you, Madam Chair.

I would like to thank the witnesses for their valuable contributions.

My first question is for Dr. Smith.

Dr. Smith, it is reassuring to hear that psychiatrists are able to distinguish between the two main categories of individuals with mental health problems, namely, those who are suicidal and those seeking medical assistance in dying.

Can you tell us more about how psychiatrists go about making the distinction between a suicidal person and a person with mental health issues who is seeking medical assistance in dying?

3 p.m.

Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual

Dr. Derryck Smith

Thank you, Mr. Arseneault, for that question. I'm sorry I cannot answer you in French. I'll do my best in English.

I think the detailed answer is in this report, which you have received already, the report of the expert panel on MAID and mental illness. I'm not going to be able to go over that in five minutes, but I want to reassure you again, as I mentioned previously, that in court this has been tried, not with a bunch of opinions but with cross-examination demanding hard evidence.

The hard evidence in the Truchon case was that there is a vigorous and strict process in place for MAID in Canada that has no problems with that. Second, physicians are able to distinguish between a suicidal patient and a patient seeking medical assistance in dying. Those are established facts from the courts.

We have no difficulty making these facts known when we are in court because there you must not just have opinions; you must have facts, and the facts can be tried. There can be cross-examination and new evidence for jurors.

I want to assure you that as a practising psychiatrist, we see people who have suicidal thinking all the time. It's part and parcel of psychiatry. I personally have no problems separating a patient who is having suicidal ideation from a person who is seeking MAID. For one thing, the person seeking MAID has probably been suffering with psychiatric illness for eight to 10 years. We're not talking here about an 18-year-old woman who suddenly got depressed and is having suicidal thoughts and is looking for MAID. That kind of patient is not what we're talking about. We're talking about people who have suffered interminably over a number of years.

3 p.m.

Liberal

René Arseneault Liberal Madawaska—Restigouche, NB

Thank you, Dr. Smith.

I will be quick since I do not have much time left.

What do you say to those who disagree with you? Dr. Mishra told us for instance that there is no proof that psychiatric conditions are irreversible.

3 p.m.

Clinical Professor Emeritus, Department of Psychiatry, University of British Columbia, As an Individual

Dr. Derryck Smith

Again, at the risk of being repetitive, I want to go back to the court decisions. The court decisions are where facts are established and rulings are made. The honourable gentleman's opinions were tested in court and found not to hold any water, so the court clearly found, when they heard all the evidence from a whole bunch of experts, including psychiatrists, people for and against, that psychiatrists are clearly able to distinguish between people who are suicidal and people who are seeking MAID. I rely on court decisions because the facts or the crucible of the truth come out of the cross-examination.